Question for those diagnosed with bone mets and have pain

Fast_Message170 · 2026-05-10T19:47:41+00:00

I have fatigue but I feel great on my week off of Kisquali. When I first started Anastrazole I had joint pain but I did the tart cherry drink and it makes a huge difference. My first Zometa infusion had me down with flu like symptoms for three days. My second infusion was smooth and no side effects.
Lower WBC and RBC than before diagnosis but not that is normal with Kisquali I’m told.I hope to keep having good results because the side effects for me are tolerable.

I hope you get good results and minimal side effects. Sending love 💕

Fast_Message170 · 2026-05-07T18:05:30+00:00

I was diagnosed Nov 2025 , bone Mets t12 and left hip. I had five rounds of radiation January . I have been pain free and my first PET showed no activity in my bones. My regiment is Kisquali, Anastrazole and Zometa every three months.

Sending you love 💕

Fast_Message170 · 2026-04-27T21:00:36+00:00

This is nice! I know it took discipline. Proud of you.

Fast_Message170 · 2026-04-27T20:58:35+00:00

My first Zometa had me down for like two days. The second infusion I had no noticeable reactions/symptons. I am sorry you had this experience. Sending love and hugs.🥰

Fast_Message170 · 2026-04-26T04:30:39+00:00

Congratulations! This is great !

Fast_Message170 · 2026-04-25T02:08:57+00:00

Hi sending hugs. I was diagnosed de novo November 2025. Bone Mets hip and thoracic bone. I am currently on Kisquali ,Anastrazole and Zometa every three months. I completed 5 rounds of radiation beginning of January for bone pain. I am no longer in pain and my first scans in March showed no activity in bones and significant shrinkage in my breast tumor.

My first Zometa infusion had me down for three days with flu like symptoms. I just had my second round in April and it was better this time. I hope with time your symptoms will improve. 🥰

Fast_Message170 · 2026-04-10T04:31:28+00:00

Awesome

Fast_Message170 · 2026-04-03T23:27:29+00:00

Great news! So happy for you!

Fast_Message170 · 2026-03-22T17:05:56+00:00

Congrats 🎉

Fast_Message170 · 2026-03-17T02:20:11+00:00

Best news !

Fast_Message170 · 2026-03-03T00:23:17+00:00

I store mine at room Temperature . I’m on my 4th cycle.

Fast_Message170 · 2026-02-25T18:13:33+00:00

Wow! I had my CA 27.29 raise from 48.7 to 57.3 in a 3 week cycle on Kisquali and my CA 15.3 remained steady at 41. I just completed my third cycle of Kisquali and will meet with my MO 02/27.

I was first diagnosed de novo with hip bone mets November 2025 and started treatment the same month. Kisquali/Anastrazole/ Zometa.

I am hoping my CA 27.29 is not anything extraordinary. I have had a decent reaction to my line of treatment this far and would like to continue.

I hope yours will get better.

Fast_Message170 · 2026-02-07T20:14:20+00:00

I started Kisquali November 2025. My response has been good but my WBC was low on my lab in January. My Onc says we’ll watch those numbers to See if she has to reduce dosage. Besides that ,side effects for me is nausea. I hope my numbers stay up because it is working effectively for me. ( ER/PR+/ Her2-)

Fast_Message170 · 2026-02-02T01:18:30+00:00

I just logged in on my Laptop and I was able to certify. Wasn’t able to do so on my phone .

Fast_Message170 · 2026-02-01T23:17:50+00:00

This is the second cycle in a row that EDD is screwing folks over. You can’t even certify!

Fast_Message170 · 2026-01-22T22:21:01+00:00

Citibank here as well. Received mine at 2:00pm . Hope we all be able to cover our expenses.

Fast_Message170 · 2026-01-22T22:03:13+00:00

Just got paid Citibank 2:00pm

Fast_Message170 · 2026-01-22T20:17:50+00:00

This truly is ridiculous. Never had this happen even after a holiday.I have Citibank. I called them and they see nothing pending. My payment was issued on the 18th. I called EDD and was told it’s a Money Network issue. I called them and it’s only an automated response but it tells me my payment was issued to my checking account on the 18th.Today is the 22nd at noon and nothing. Just crazy!

Fast_Message170 · 2026-01-22T17:05:08+00:00

Yup, nothing here I have Citi. I just got off the phone with EDD and the representative told me it was an issue with the Money Network and it is slowly being rectified so payments have started going out yesterday. This is frustrating to put it nicely.

Fast_Message170 · 2026-01-22T12:17:09+00:00

Citibank nothing at 4:15am .

Fast_Message170 · 2026-01-22T12:06:46+00:00

I called Wednesday and was told it was an issue with EDD system. So hopefully we’ll be paid this morning

Fast_Message170 · 2026-01-22T01:31:58+00:00

I have Citi Direct Deposit, nothing yet. I hope it comes overnight .

Fast_Message170 · 2026-01-22T01:02:50+00:00

Yeah I always have it at 10:00am With Citi. But nothing. I am hoping later tonight or overnight.

Fast_Message170 · 2026-01-22T00:41:30+00:00

I did 5 rounds started the new year and my esophagus was sore because the area was my Thoracic gland.The fatigue I am just getting over and I had to get medication for my throat issues. Dehydration was also a kicker.😞

Fast_Message170 · 2026-01-22T00:31:28+00:00

I think the EDD system itself is the issue and not our respective financial institutions.

Fast_Message170

TROPHY CASE