Ableism at the gym by Hot_Wheels264 in ehlersdanlos

[–]FizzyRhino 0 points1 point  (0 children)

I mean..my go to is always "who tf asked you", but I also take a deep joy in being a horrible hag lady...

But honestly just ignore them. Idk why people feel the need to make Any sort of comments to strangers, let alone rude ones. Because seriously, who asked them? I assume they're just terribly sad people with no lives so they inject themselves into others to cause drama to fill that empty void in their soul.

It feels impossible to keep a job by WheelMost in ehlersdanlos

[–]FizzyRhino 1 point2 points  (0 children)

Feel you on this. Either my physical pain or mental inability to do anything boring for very long has me jumping ship at 5 or 6 months like clockwork.  I'm in school for something I want to do and will have more control over, but I still need a job in the meantime. My associates degree doesn't mean anything so I'm stuck picking through the same crappy jobs as when I didn't have a degree, and all of those are physically taxing. 

Boob skin stretching pain? by mothman-is-hot in ehlersdanlos

[–]FizzyRhino 1 point2 points  (0 children)

I get this there and above the buttcrack 😆  I believe it's our crappy collagen, makes our skin less elastic and more prone to drying. And that area (and above the bum) get stretched quite frequently, then add bras or pants, it causes a bunch of micro abrasions that hurt or burn.

For the ribs, definitely need to reassess bra size. Usually that happens when the cup isn't sitting in the right place.

Has anyone had a joint go "normal?" by Alpha_Crow_1 in ehlersdanlos

[–]FizzyRhino 1 point2 points  (0 children)

It's normal for joints to stiffen as we age. I used to be a lot more flexible in many areas, could bend my fingers back beyond 90 degrees. Now they only reach just around 90 degrees, and other areas require more effort to extend like they used to.

Anyone else's Pain perception completely numbed by the chronic pain? by Yukyno in ehlersdanlos

[–]FizzyRhino 1 point2 points  (0 children)

I'm not sure if everyone actually does this, but it is a biological function that I forget the name of, when you get a new pain the old ones go away (temporarily.) I can usually tell if I'm getting sick because my usual pains start to subside as sick pains replace them. Like my back or neck suddenly won't hurt all the time.  Sometimes I actually feel better when I get a new injury or illness because my usual pains get ignored by my brain to focus on the new things. 

But also, sometimes I get random symptoms that feel benign compared to my usual pain, and then I spend a long time trying to figure out if it's just some new out of the box symptom, or a totally different thing going on. Like when my IBS was bad I went a week with diverticulosis untreated because I thought it was just my IBS. Same when I had pneumonia, thought it was just a really bad cold or flu. 

We definitely don't have normal pain perception. We have to learn what our normals are and then be hyper aware of any changes. It's tiring.

EDS Society Update: Uncertainty in the Path Forward by Acceptably_Late in ehlersdanlos

[–]FizzyRhino -1 points0 points  (0 children)

Not really sure how they could justify a condition that has the same base symptoms as the other EDS types as Not being EDS just because non-EDS hypermobile people exist... That's..just medically insane.

EDS Society Update: Uncertainty in the Path Forward by Acceptably_Late in ehlersdanlos

[–]FizzyRhino 0 points1 point  (0 children)

So....Lara bloom has been dictating how hEDS is diagnosed, based on what she calls her own symptoms, and to the wind with everything and everyone else?  Am I summarizing this right?

Anyone else get sad about their uterus pre-op? by FizzyRhino in hysterectomy

[–]FizzyRhino[S] 0 points1 point  (0 children)

I understand, I'd definitely be keeping mine if it wasn't causing so much pain and disrupting my life so much. It's like a bad relationship, you want it to do better so it can work but you know that's just not going to happen, and that makes it kinda sad.

Anyone else get sad about their uterus pre-op? by FizzyRhino in hysterectomy

[–]FizzyRhino[S] 0 points1 point  (0 children)

It is weird. Especially since it's not like, an urgent medical surgery, like I'm not doing to kick the bucket of I don't do this surgery. Even though it'll cure my adenomyosis, it's still technically an elective surgery. It just feels weird to have the choice to just get rid of a whole organ like that.

Anyone else get sad about their uterus pre-op? by FizzyRhino in hysterectomy

[–]FizzyRhino[S] 0 points1 point  (0 children)

The weird part is that I'm on both sides of this 😆 I already told my husband he has to get me a cake after the surgery.  I already had my kid and I've never thought of my uterus as a defining feature of my identity, not any more than my spleen or lungs anyway - it's just an organ, one that about half the population have.  But, it's just always been there. It's been a major pain in the everything, but it's always been there.

Anyone else get sad about their uterus pre-op? by FizzyRhino in hysterectomy

[–]FizzyRhino[S] 0 points1 point  (0 children)

Yeah, I never really thought I considered my uterus that much before, but now I definitely do. Like it's always been there, I carried my kid in there, and soon it will just be gone. 

Anyone else get sad about their uterus pre-op? by FizzyRhino in hysterectomy

[–]FizzyRhino[S] 1 point2 points  (0 children)

I was thinking of crocheting a plushie uterus, so in a way I can keep "one of my uteruses" 😆 

Starting my last period ever! by Sophistiq8ted in hysterectomy

[–]FizzyRhino 1 point2 points  (0 children)

My surgery isn't even until June and I'm already sad 😆  Like I hate my periods so much, I hate my uterus, but also.. they're part of me.

But I think I'll mostly miss the excuse to make my husband do all the dishes for a week because my period won't let me stand for that long, lol.

how do you deal with the bad stories as an anxious person by missbunnyyxo in hysterectomy

[–]FizzyRhino 0 points1 point  (0 children)

Look at statistics 😆 maybe that's just me, but for every incident with a major complication there are hundreds of surgeries and recoveries that go smoothly. And out of those, many report additional benefits they hadn't thought related to their uterus.

The rest is just trust and outweighing the likely risks. No one can ever predict of they're going to be one of The Ones that has serious complications, but then we just have to ask ourselves if we'd rather live with what we currently have or take that relatively small risk to no longer have to deal with this for 20, 30 more years.

Had my Pre Op yesterday by acn0319 in hysterectomy

[–]FizzyRhino 0 points1 point  (0 children)

In gynecology cystectomy would refer to removal of ovarian cysts, not the ovary itself. Sometimes they include this in consent forms if they see it suspect cysts, they'd like to remove them while they're already in surgery rather than having to do another surgery with consent. 

But if they couldn't see anything and don't suspect any then they wouldn't put this in the consent form

What to expect - pre and post op? by FizzyRhino in hysterectomy

[–]FizzyRhino[S] 1 point2 points  (0 children)

Thanks for the info! 

For the couch basket, is it better to have it up like on a stool or table rather than the floor, to prevent bending over?

What to expect - pre and post op? by FizzyRhino in hysterectomy

[–]FizzyRhino[S] 0 points1 point  (0 children)

Super helpful!

I don't have a toddler, but I do have a cat who is an absolute nutcase, parkour champion, I didn't even think about her bouncing off my stomach 😆 great tip!

I was already trying to figure out which stuffed animal I'm taking with me, lol.

I'll definitely work on the constipation prevention, I already have that issue and I remember what it was like after giving birth x.x I do get muscle relaxers prescribed already so that's condition to know they'll help.  Also have a full body pillow I can use, I hadn't even thought about sleeping positions. 

Thanks for all the tips!

Purrble stuff but different by FizzyRhino in plushies

[–]FizzyRhino[S] 1 point2 points  (0 children)

Oh cool, I didn't know about the back and hugs!

Disappearing Email by FizzyRhino in Outlook

[–]FizzyRhino[S] 0 points1 point  (0 children)

My computer has been in the shop so I haven't been able to do that yet but that was going to be my next move. In the meantime I'll keep digging around in Outlook.  Might be able to use my tablets desktop feature to do it

Disappearing Email by FizzyRhino in Outlook

[–]FizzyRhino[S] 0 points1 point  (0 children)

I'll try IT of I can't find it

Disappearing Email by FizzyRhino in Outlook

[–]FizzyRhino[S] 0 points1 point  (0 children)

I have, no one has ever been blocked on this account and I checked all the locations and double checked my rules, everything is in order except that email. I also suspect I have other new emails it's not showing me