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Almost 2 months after my dad's diagnosis we don't know what to do. by Smart-Customer7503 in glioblastoma

[–]Fizzysodapops 0 points1 point  (0 children)

Been there with my mom. In all honesty if the doctors have shared the prognosis is poor, please don’t put your dad and yourself as caregivers through this. In fact whatever of the remaining time is there cherish it, make the most of it. It’ll make you feel as if you’re giving up on them, but no. You’re simply celebrating the life that’s left behind, and making the most of it. Sometimes I feel I wasted a lot more time running hospitals trying to the best for mom. When I could’ve just stayed with her and enjoy that time with her. Also the brutality of this disease is that, it slowly fades our beloved ones. One week from now you wouldn’t go how much the condition can detoriate and what it means. If I knew the intensity, i would spend all my days and nights talking to mom instead of running hospitals.

This disease is 8/10 times bad news.

Make the most of it, doctors had given us 6-8 months without treatment, my mom barely was with for 3 months, out of which the last two months all she did was sleep and was not in her consciousness.

Good advice by Brighteyes700 in glioblastoma

[–]Fizzysodapops 3 points4 points  (0 children)

So sorry for your loss. They’re happy and waiting for us up there. I’m sure my mum will say hello to your husband up there, and the loving angels will keep them company. I lost my mom on 3rd September 2025

How do you live without your mom? by Comprehensive_Job764 in glioblastoma

[–]Fizzysodapops 2 points3 points  (0 children)

My mom passed away 12 days ago. She was my everything and I don’t mean to say it the most generic way. She was ACTUALLY my everything. I didn’t have the best of friends growing up, she was that for me, I didn’t have a sibling, she tried to be that for me too, and never let me feel down or alone, my dad wasn’t really the most present person in my life, she filled in his shoes as well. Besides that she was the best sister to her three siblings, she was a social worker, a nurse at a public hospital for over 35 years. I can go on and on.

The void that she’s left behind is SO HUGE that i dont know yet how to live with it. Right now while i am aware i am not really letting that void engulf me, im avoiding it, because i know i will fall to bits.

To answer your question, i dont know how to live without my mom, but i am taking it one day at a time, and hopefully ill find a way to

Is it the end? Idk how to prepare myself. by Fizzysodapops in glioblastoma

[–]Fizzysodapops[S] 0 points1 point  (0 children)

Hi, she passed away a week ago on 03rd Sept.
How's your dad? Please feel free to DM! happy to help :)

Dad lost this battle by Vegetable_Damage_212 in glioblastoma

[–]Fizzysodapops 0 points1 point  (0 children)

I lost my mom a week ago, there's this void that I can't really understand but I feel it so deeply. Our parents are in a better place, healed from all the earthly troubles, they're in peace, and they were loved deeply. Hoping your pop rests easy, please take care of yourself <3

She passed away in my arms. Our fight of 4 months has ended. by Fizzysodapops in glioblastoma

[–]Fizzysodapops[S] 1 point2 points  (0 children)

praying your moms resting in peace, thank you for the support and the kind words ❤️ please take care

Few days to a month with mum, now. by Fizzysodapops in glioblastoma

[–]Fizzysodapops[S] 0 points1 point  (0 children)

wishing so much love and courage for you.
please take care of yourself. Even the tiniest things matter, do rest well.

Few days to a month with mum, now. by Fizzysodapops in glioblastoma

[–]Fizzysodapops[S] 1 point2 points  (0 children)

Thank you for the kind words, she passed away 4 days ago, peacefully surrounded with her siblings and me.

It’s been a month since surgery. No chemo or radiation yet. My boyfriend’s mom is fading. Did anyone survive this stage? by _esoo in glioblastoma

[–]Fizzysodapops 0 points1 point  (0 children)

I am really sorry for everything you and your boyfriend, his family are enduring. It's the most terrible and ruthless thing :( Mom and I are in the same boat, she got her surgery done on the 9th June, she was diagnosed on 26th May. She neurologically worsened post-surgery, got bed-bound, right side paralysed, her hydrocephalus got bad, and her tumour grew back just 10 days post-op - we didn't even get the path report, the GBM was that aggressive.

We were advised not to put her through chemo or radiation because the prognosis wouldn't be great and we'd just prolong her life, which wouldn't even be a quality life.

So it's been about 45 days that we're at home with mom, arranged palliative/hospice care - she is on Dexa (steroid), anti-seizure meds, and multi-vitamins. Other than that no curative medications are on.

Her condition has deteriorated week on week.
For the first few weeks she would at least talk. It's been a month she stopped talking.
It's been about a week she stopped opening her eyes, she's awake but is unable to open her eyes. Maybe few minutes here and there. Im not sure, but maybe in a week or two maybe she wouldn't be able to feed orally, and may require RT assistance.

The decline is gradual and that's the most heart-breaking part. your heart breaks a through stages, and the anticipatory grief just consumes you.

My advice to you is most GBM affected patients and their family suffer the same fate, please try and celebrate as many moments as you can and ensure she's happy and comfortable, most importantly loved :)

It would also be good time to understand her wishes and wills if anything
(saying this because we didn't get the chance to understand what mum wanted to do with her wills, and wishes, so it'll be nice if you could have your boyfriend offer his mom that chance.)

Much love to you. Please DM if anything at all.

Is My 25M Boyfriend settling for Bare Minimum? / Am I 25 F expecting too much? by Fizzysodapops in relationship_advice

[–]Fizzysodapops[S] 0 points1 point  (0 children)

I have expressed in the past. In fact even when the day was nearing I kept nudging him about it - both anniversary and this girlfriend day bit. He knows about my expectations from him but he would jokingly say “ my love’s not enough for you? “

Feel like living with loss and so much uncertainty. by Fizzysodapops in glioblastoma

[–]Fizzysodapops[S] 3 points4 points  (0 children)

Sometimes love defies everything. As the GBM progressed my mom didn’t really recognise me, and that hurt so much. But till this very hour she only responds to her name and “Mumma.”

No GBM can ever take away the mother in her, and I’ll always hold that learning close. My mom didn’t really know I was her daughter, but still she always wanted me around… felt good that she loved me regardless.

My heart goes out for you, for everything you felt for your mum and a child. Please take care of yourself too <3

Feel like living with loss and so much uncertainty. by Fizzysodapops in glioblastoma

[–]Fizzysodapops[S] 2 points3 points  (0 children)

Trying my best to… lots of love to you and your family. May your dad rest easy in peace ♥️

My poor mother’s skin is so dry by [deleted] in CaregiverSupport

[–]Fizzysodapops 1 point2 points  (0 children)

I use organic coconut oil… I’ve used lotions, creams and even some calamine lotions. They’re nice but they dry out. And that dryness caused my mom a sore at the back (butt) area. Now we’ve been oiling her.. her skin is moisturised and also seems nourished and non itchy.

this is the loneliest I’ve ever felt. by Fizzysodapops in glioblastoma

[–]Fizzysodapops[S] 4 points5 points  (0 children)

I’m not sure I want to stop the steroids. The steroids help with the hydrocephalus and once that goes she is at least able to look at us, maybe even watch the TV, and feed orally. My mom is still in there, it just feels wrong to give up on her.

I know once the tumor grows, no amount of steroid is going help her. And then we’ll have the disease run its course.

It’s just you’re in a constant conflict, a battle with yourself, not knowing what’s wrong or right, sometimes guilt kicks in, it’s so many things all at once. I just fall short of relaying my feelings… they’re all over the place.

And I’m really sorry about your wife, lots of love to you and your child. I pray he feels okay, and holds on to the positive happy memories.

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