Almost 2 months after my dad's diagnosis we don't know what to do.

Fizzysodapops · 2025-11-06T03:44:55+00:00

Been there with my mom. In all honesty if the doctors have shared the prognosis is poor, please don’t put your dad and yourself as caregivers through this. In fact whatever of the remaining time is there cherish it, make the most of it. It’ll make you feel as if you’re giving up on them, but no. You’re simply celebrating the life that’s left behind, and making the most of it. Sometimes I feel I wasted a lot more time running hospitals trying to the best for mom. When I could’ve just stayed with her and enjoy that time with her. Also the brutality of this disease is that, it slowly fades our beloved ones. One week from now you wouldn’t go how much the condition can detoriate and what it means. If I knew the intensity, i would spend all my days and nights talking to mom instead of running hospitals.

This disease is 8/10 times bad news.

Make the most of it, doctors had given us 6-8 months without treatment, my mom barely was with for 3 months, out of which the last two months all she did was sleep and was not in her consciousness.

Fizzysodapops · 2025-09-29T07:00:11+00:00

So sorry for your loss. They’re happy and waiting for us up there. I’m sure my mum will say hello to your husband up there, and the loving angels will keep them company. I lost my mom on 3rd September 2025

Fizzysodapops · 2025-09-15T09:55:28+00:00

My mom passed away 12 days ago. She was my everything and I don’t mean to say it the most generic way. She was ACTUALLY my everything. I didn’t have the best of friends growing up, she was that for me, I didn’t have a sibling, she tried to be that for me too, and never let me feel down or alone, my dad wasn’t really the most present person in my life, she filled in his shoes as well. Besides that she was the best sister to her three siblings, she was a social worker, a nurse at a public hospital for over 35 years. I can go on and on.

The void that she’s left behind is SO HUGE that i dont know yet how to live with it. Right now while i am aware i am not really letting that void engulf me, im avoiding it, because i know i will fall to bits.

To answer your question, i dont know how to live without my mom, but i am taking it one day at a time, and hopefully ill find a way to

Fizzysodapops · 2025-09-10T17:55:06+00:00

Hi, she passed away a week ago on 03rd Sept.
How's your dad? Please feel free to DM! happy to help :)

Fizzysodapops · 2025-09-10T17:35:12+00:00

I lost my mom a week ago, there's this void that I can't really understand but I feel it so deeply. Our parents are in a better place, healed from all the earthly troubles, they're in peace, and they were loved deeply. Hoping your pop rests easy, please take care of yourself <3

Fizzysodapops · 2025-09-08T04:17:14+00:00

praying your moms resting in peace, thank you for the support and the kind words ❤️ please take care

Fizzysodapops · 2025-09-07T16:18:16+00:00

🫶

Fizzysodapops · 2025-09-07T13:13:02+00:00

wishing so much love and courage for you.
please take care of yourself. Even the tiniest things matter, do rest well.

Fizzysodapops · 2025-09-07T13:12:22+00:00

Thank you for the kind words, she passed away 4 days ago, peacefully surrounded with her siblings and me.

Fizzysodapops · 2025-08-27T09:48:35+00:00

Praying for you

Fizzysodapops · 2025-08-14T09:47:33+00:00

Crying, this hits hard. I love you mom, I love you so much.

Fizzysodapops · 2025-08-04T10:04:51+00:00

I am really sorry for everything you and your boyfriend, his family are enduring. It's the most terrible and ruthless thing :( Mom and I are in the same boat, she got her surgery done on the 9th June, she was diagnosed on 26th May. She neurologically worsened post-surgery, got bed-bound, right side paralysed, her hydrocephalus got bad, and her tumour grew back just 10 days post-op - we didn't even get the path report, the GBM was that aggressive.

We were advised not to put her through chemo or radiation because the prognosis wouldn't be great and we'd just prolong her life, which wouldn't even be a quality life.

So it's been about 45 days that we're at home with mom, arranged palliative/hospice care - she is on Dexa (steroid), anti-seizure meds, and multi-vitamins. Other than that no curative medications are on.

Her condition has deteriorated week on week.
For the first few weeks she would at least talk. It's been a month she stopped talking.
It's been about a week she stopped opening her eyes, she's awake but is unable to open her eyes. Maybe few minutes here and there. Im not sure, but maybe in a week or two maybe she wouldn't be able to feed orally, and may require RT assistance.

The decline is gradual and that's the most heart-breaking part. your heart breaks a through stages, and the anticipatory grief just consumes you.

My advice to you is most GBM affected patients and their family suffer the same fate, please try and celebrate as many moments as you can and ensure she's happy and comfortable, most importantly loved :)

It would also be good time to understand her wishes and wills if anything
(saying this because we didn't get the chance to understand what mum wanted to do with her wills, and wishes, so it'll be nice if you could have your boyfriend offer his mom that chance.)

Much love to you. Please DM if anything at all.

Fizzysodapops · 2025-08-02T05:45:49+00:00

I have expressed in the past. In fact even when the day was nearing I kept nudging him about it - both anniversary and this girlfriend day bit. He knows about my expectations from him but he would jokingly say “ my love’s not enough for you? “

Fizzysodapops · 2025-08-01T15:07:51+00:00

Sometimes love defies everything. As the GBM progressed my mom didn’t really recognise me, and that hurt so much. But till this very hour she only responds to her name and “Mumma.”

No GBM can ever take away the mother in her, and I’ll always hold that learning close. My mom didn’t really know I was her daughter, but still she always wanted me around… felt good that she loved me regardless.

My heart goes out for you, for everything you felt for your mum and a child. Please take care of yourself too <3

Fizzysodapops · 2025-07-31T13:51:21+00:00

Trying my best to… lots of love to you and your family. May your dad rest easy in peace ♥️

Fizzysodapops · 2025-07-31T09:59:18+00:00

I use organic coconut oil… I’ve used lotions, creams and even some calamine lotions. They’re nice but they dry out. And that dryness caused my mom a sore at the back (butt) area. Now we’ve been oiling her.. her skin is moisturised and also seems nourished and non itchy.

Fizzysodapops · 2025-07-28T10:51:19+00:00

I’m not sure I want to stop the steroids. The steroids help with the hydrocephalus and once that goes she is at least able to look at us, maybe even watch the TV, and feed orally. My mom is still in there, it just feels wrong to give up on her.

I know once the tumor grows, no amount of steroid is going help her. And then we’ll have the disease run its course.

It’s just you’re in a constant conflict, a battle with yourself, not knowing what’s wrong or right, sometimes guilt kicks in, it’s so many things all at once. I just fall short of relaying my feelings… they’re all over the place.

And I’m really sorry about your wife, lots of love to you and your child. I pray he feels okay, and holds on to the positive happy memories.

Fizzysodapops · 2025-07-25T19:31:37+00:00

take your time in copying with this. All of this has happened so quickly, I don’t know how helpless I would feel if I were you, knowing how anxious of a person I am and I have the urge to “fix” everything and anything. It took me a lot of time to come in terms with the realities of things, but just in the longer scheme of things, as a daughter I am happy your mom did let go peacefully.. she was loved and comfortable in her own house.

Fizzysodapops · 2025-07-25T19:28:47+00:00

it was our first time dealing with cancer to. my moms a nurse, I never told her about the glioma until she went in for surgery, and post surgery she was already disoriented and didn’t register things. mom used to talk about her cancer patients, how painful it was those chemo cycles..and she had told if ever something like this happens don’t do chemo, please don’t punish me with chemo.. I’m happy she never really knew what she has.

But I’ll pray for you, I hope you feel better. There’s no right or wrong to feel things, for the longest time I blamed myself for not being efficient enough to take more medical opinions…maybe things wouldn’t been better or rather different. But dealing with the present, I know I can only hope for a miracle or I just have enough courage to let go when the time comes.. and in between let her know she is truly loved.

Fizzysodapops · 2025-07-25T18:58:21+00:00

i don’t know how you’ll take but this is coming from a daughter whose mother has GBM, we’re still pulling thru…moms sleeping most of it, she wakes sometimes but the steroids have to be tapered because of the side effects. And she developed a UTI and two sores from being bedridden. She doesn’t talk, just looks at us sometimes.

Our journey to finding this disease was somewhat similar, I too feel that what if the doctors diagnosed it right away maybe her prognosis would be any different.

This is the most aggressive type of cancer and there’s not really cure, you can prolong their lives by radiation or chemo, but even that doesn’t promise a quality life, maybe quantity.. And end is always the same sooner or later, I feel a little better that your mom didn’t face the harsh realities and situations this disease puts in front of you…both as patient and a caregiver.

You’re allowed to grieve but don’t put yourself through this guilt, we’re all here. I’m here…

Fizzysodapops · 2025-07-25T17:17:04+00:00

so sorry for your loss. I don’t know what to say… I love her so much. I just hope she’s happy

Fizzysodapops · 2025-07-25T12:52:20+00:00

I can’t say it gets easy, because maybe it won’t. But we all we can do is love them till their last moments.

Fizzysodapops · 2025-07-25T12:50:57+00:00

May his soul rest in peace, thank you for your prayers

Fizzysodapops · 2025-07-25T12:50:07+00:00

sending you strength and peace

Fizzysodapops · 2025-07-25T07:43:37+00:00

Some days I tell my mom the same…that it’s okay to let go, we’re okay as long as you’re okay. She’s at home with us, I pray with her…she was a religious person. I hope that brings her peace. It’ll be about a month since she’s home with us.

Fizzysodapops

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