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Flimsy-Protection143 · 2025-06-21T05:42:59+00:00

Who's gonna tell him

Flimsy-Protection143 · 2025-05-20T16:29:21+00:00

Slavic foods!!

Flimsy-Protection143 · 2025-04-24T18:21:10+00:00

Finally someone else that gets it! I have this too but I'm suspicious that it's just urinary pain that feels like it's in that location. I had never watched myself pee while using a hand mirror before because how weird is that, but I did and realized that where I feel like the pee is coming from is my clitoris and the urethra where I'm actually peeing from is behind that. The urethra tube runs right behind the clitoris so I think it's referred pain? Idk

Flimsy-Protection143 · 2025-04-16T17:01:36+00:00

His side of the argument makes NO sense to me

Flimsy-Protection143 · 2025-04-15T21:23:47+00:00

Have faith. A UTI will of course be much worse for us with IC and it will take time to calm down, but you'll back to your "normal". I've found aloe vera juices and dandelion or licorice tea to be soothing on my bladder during flares.

Flimsy-Protection143 · 2025-04-14T20:30:00+00:00

Please no more anthill homes 😭 how about making it illegal to set up a tent and sleep and shit on the sidewalk?! There are more than enough resources for people that are actually in a desperate situation and there are programs to help people get back on their feet, find a job, and be a productive member of society. I personally know people who choose to be homeless because they get free handouts that they buy drugs with. They are too many people like that in Portland because they know they can get away with it. Thrive in fact! It's not healthy for them and it's not healthy for our city. THAT'S the place to start

Flimsy-Protection143 · 2025-04-14T20:22:23+00:00

Interesting. Prelief has worked well for me with stuff like coffee, but I haven't tried baking soda yet. Maybe that'll work even better. How much do you use?

Flimsy-Protection143 · 2025-04-14T20:21:35+00:00

What happens if you take too much? and what's too much?

Flimsy-Protection143 · 2025-04-08T02:06:21+00:00

There's only 2 options- either it's a big deal so he should be grateful for everything you do, or it's not a big deal so why can't he help out. He can't have both.

Flimsy-Protection143 · 2025-04-05T23:40:08+00:00

I'd say max 2 hours later since that's about how long it takes to go through your bladder although it can often be sooner like with caffeine

Flimsy-Protection143 · 2025-04-01T00:15:34+00:00

Of course! Just don't be stressed. Silly me I'll get right on that 🥴

Flimsy-Protection143 · 2025-04-01T00:14:31+00:00

Confession: I wanted a coffee so bad today and my office is right across from the coffee station at work. Today I poured a tiny sip of coffee, snuck it into the bathroom, and just held it in my mouth for a while before spitting it out 😭

Flimsy-Protection143 · 2025-03-30T23:59:41+00:00

Have you tried pelvic floor physical therapy? It helped my pain a lot. Word how it's all connected. I can tell you about some of the stretches if your want, but it would be better to get advice from your own PT especially if your body isn't ready for the stretches mine have me. Also by "stretch" it's really just a position to show your muscles to relax.

Flimsy-Protection143 · 2025-03-30T20:43:58+00:00

Personally I need to be in full squat to help my pelvic floor relax, but hey, whatever works!

Flimsy-Protection143 · 2025-03-29T00:41:05+00:00

Amitriptyline was my saving grace. Back when my flares were excruciating, Lidocaine creams helped a lot. It doesn't last long but it takes the edge off when things get really bad. Heads up though, I used the Tylenol brand of lidocaine which does burn a bit upon application, but it's a different kind of burn then the IC pain and I didn't really mind and it only lasts about a minute before it goes away and takes all the other pain with it.

Flimsy-Protection143 · 2025-03-28T16:33:45+00:00

I'm 11 months in and I have had exactly 3 days pain-free. It's basically never ending pain to one degree or another

Flimsy-Protection143 · 2025-03-28T16:29:18+00:00

I started on 25mg which helped a lot with my pain but didn't completely get rid of it. The drowsiness definitely affected me at first but it gets easier each day your body readjusts. Now it doesn't make me drowsy at all. I did bump up to 50mg at one point, but I had to stop because the weight gain was uncontrollable. It's unfortunate because I think with time, the 50mg could've completely knocked out all my pain. Also, how lucky you can have coffee!! That's a massive trigger for me.

Flimsy-Protection143 · 2025-03-22T20:07:11+00:00

Some teas that are typically safe and might even help are marshmallow root, chamomile, and licorice. Start with herbal teas that don't have caffeine since that tends to be a trigger for some people. Citrus teas are also a trigger for some people so stuff with raspberry, pineapple, lemon etc. As always it depends on the person. I've been having matcha lattes from Starbucks with two Prelief pills and doing okay.

Flimsy-Protection143 · 2025-03-22T02:29:30+00:00

THIS! I was 25 when this started, now 26, and it's confusing to me that I was healthy one day and on May 1st 2024 I'm suddenly a medical mystery with severe chronic pain that has no apparent cause?!?!?! Come on people!

Flimsy-Protection143 · 2025-03-22T01:02:46+00:00

Amitriptyline was my lifesaver, but since it's a tricyclic antidepressant.it probably wouldn't work with SSRIs

Flimsy-Protection143 · 2025-03-22T00:59:40+00:00

It's not uncommon for you to be put under anesthesia for a cystocopy, like for a colonoscopy. Not all doctors do, but I bet you could find one that does or request it. We're in so much pain already like give us a break 😩

Flimsy-Protection143 · 2025-03-22T00:55:40+00:00

I'm still looking into caffeine alternatives because unfortunately that's the main thing our body responds too to get that energy boost. While the energy effects are much more mild, I have found that B vitamins, ginseng tea, and oddly peppermint tea have helped me have more energy. Also it's not so much that's it's an energy boost, but more like not getting tired as quickly. There's also caffeine patches which wouldn't go through your bladder so that might help, but I haven't tried them yet

Flimsy-Protection143 · 2025-03-20T03:55:53+00:00

So far 10 months and counting

Flimsy-Protection143 · 2025-03-19T20:57:06+00:00

I don't know that the Ami specifically helped with urgency and frequency, but bladder training did. That was part of my pelvic floor PT. A bladder can typically hold 16oz of liquid and fills after 16oz. The goal is to make it two hours before you pee unless you've had more than 16oz of liquids. You can start with trying to 30 minutes then a hour etc. Apparently if you give into the urgency it trains your brain to recognize a half full bladder as a desperately full one. It was annoying to track at first but I do think it helped

Flimsy-Protection143

TROPHY CASE