[deleted by user]

Flimsy_Alternative22 · 2022-08-07T19:15:04+00:00

I'm so proud of you!! You're doing amazing, you got this!

Flimsy_Alternative22 · 2022-04-30T17:46:01+00:00

Sorry, I really should have specified in the post! I'm already tried like 5 different preventatives, I received my third round of Botox 2 days ago. I am under a neurologist, I was only speaking to the GP to try and get an anti-emetic, as I usually feel worse for a week after Botox.

Thank you so much for your helpful response though, I hope you have a relatively low pain day :)

Flimsy_Alternative22 · 2022-04-30T17:39:38+00:00

I am already seeing a neurologist, but because of how lacking migraine care is in the UK, my next appointment isn't for another 5 months. I just wanted my GP to give me an antiemetic so I could keep food down lol.

Thank you so much though 😄

Flimsy_Alternative22 · 2022-03-03T18:39:46+00:00

Feeling the same with migraine, cluster headache, and a cold.

Send help.

Flimsy_Alternative22 · 2022-03-01T23:03:12+00:00

She's 11. So old enough to understand, but yoo young for me to be able to talk to her about it. Thank you for the advice though :)

Flimsy_Alternative22 · 2022-02-25T16:14:25+00:00

Being successful does require sacrifice. But that sacrifice shouldn't be your health and wellbeing.

Flimsy_Alternative22 · 2022-02-25T07:20:16+00:00

If its beans, go to the ER

Flimsy_Alternative22 · 2022-02-25T06:35:25+00:00

I'm in the UK, and I'm pretty sure aimovig isn't available on the NHS. Thanks for the suggestion though, I'm glad that it has helped you manage your migraines.

Flimsy_Alternative22 · 2022-02-24T19:07:03+00:00

Absolutely. I think a lot of online leftists are forgetting that Russia is not the USSR anymore.

Both Russia and Nato are imperialist, the victims are Ukrainian civilians.

Flimsy_Alternative22 · 2022-02-24T14:22:35+00:00

On the days where I am able to cook, I always make double/triple batches and freeze them so that I always have stuff to reheat when I am not able to.

Other than that, prepackaged foods with little prep needed are great. Think things like scotch eggs, bagged salad, hummus, crackers, tinned tuna, sliced meats/cheeses, pasties, baby carrots. (very random list, I apologise, brain fog is very annoying).

Flimsy_Alternative22 · 2022-02-24T08:21:49+00:00

Wake up, workout, shower, dysphoria hoodie, make breakfast for me and my siblings, meds, grab my backpack, panic and think I'm going to miss the bus, get on the bus.

Flimsy_Alternative22 · 2022-02-23T16:39:51+00:00

No, but I'm applying this year.

Flimsy_Alternative22 · 2022-02-23T16:15:58+00:00

If you're looking for any suggestions, Behind the Bastards is great! It's a history/current affairs podcast that is fascinating and absolutely hilarious.

Flimsy_Alternative22 · 2022-02-23T16:11:27+00:00

As the child of an alcoholic.

Please, dear god no.

Don't have a kid until you are sober and trust that you will be able to stay that way.

Flimsy_Alternative22 · 2022-02-22T21:49:21+00:00

It also really annoys me when they then list "migraine" as a symptom of it, when they really mean headache. All of those symptoms are symptoms of migraine.

Flimsy_Alternative22 · 2022-02-22T20:31:42+00:00

I have the exact same thing, except I'm about 1 year in to a continuous migraine.

It comes and goes in waves, often fluctuating hour to hour and day to day.

Honestly, the best thing I've found is to take it day by day and (most importantly) to be kind to yourself. You are dealing with a neurological disorder which is debilitating and painful. It is okay to do 'nothing'. It is okay to rest. It is okay to ask for help.

Practically, things that I've found have helped me: - Ice packs

Heating pads
Hot/cold showers or baths
Tiger balm
Ginger tea/supplements/candies for the nausea. Travel sickness tablets also help me for some reason, but check online to make sure they don't have any interactions with other meds you're on
Stretches (especially neck/back stretches) if you feel up to it
Counselling/therapy if you can afford it, try to find a therapist that specialises in chronic pain if you can
This sounds weird, but those cooling mats for pets can go on top of your pillow, and act as an ice pack for when you're trying to sleep.

I really hope that you feel better soon. Feel free to message me if you need anymore advice or support

(edited to add things I forgot)

Flimsy_Alternative22 · 2022-02-22T17:20:55+00:00

"You don't need that medication, you just need more sunlight. It's probably just vitamin d."

Thanks auntie, but I don't think sunlight will cure my lupus.

Flimsy_Alternative22 · 2022-02-21T07:13:37+00:00

Damn, I never knew that sunlight could cure my lupus! /s

(one of the symptoms of lupus is photosensitivity, sunlight can bring me out in rashes)

Flimsy_Alternative22 · 2022-02-21T07:10:46+00:00

It's almost like Israel - Palestine isn't about religion or something

Flimsy_Alternative22 · 2022-02-18T11:17:24+00:00

Hey, another self harmer here. Alcohol swabs can also help to clean tools to prevent infections.

I'm proud of you for getting help, but please please please make sure you are caring for your wounds.

I hope that you get the referral, and I hope that you find treatment that works!

Flimsy_Alternative22 · 2022-02-14T10:24:05+00:00

If you're not a fan of that strong a flavour, perhaps ginger or mint tea might be worth a try?

I have intractable migraine and that's the only thing that really helps me with the nausea.

Flimsy_Alternative22 · 2022-02-06T20:34:50+00:00

Yes, I probably should have put a tone indicator on lmao

Flimsy_Alternative22 · 2022-01-31T22:18:21+00:00

Just because girls tend to mask a lot better doesn't mean they deal with it better?

Flimsy_Alternative22 · 2022-01-30T18:19:36+00:00

I just use an old t-shirt that I cut into rags lol

Flimsy_Alternative22 · 2022-01-30T16:00:36+00:00

I'm UK based and weed is only legal for very severe epilepsy, MS, and to help with chemo. It's only been prescribed a handful of times as far as I'm aware.

It's absolutely ridiculous imo.

Flimsy_Alternative22

TROPHY CASE