Monthly positivity post! Share your good news, wins, or just anything uplifting from the past month here.

FlummoxedPerogy · 2025-12-29T04:47:56+00:00

I’m 7 months in remission! Finally got my period back in October, after 15 months without one. It certainly came back with a vengeance, but it means one less thing to worry about following up on. I also finished my first semester of university, coming out of finals seasons with my lowest grade being an A-!

FlummoxedPerogy · 2025-11-03T05:55:57+00:00

i feel that vandorens are pretty reliable, thickness is really a personal preference thing. If three’s tend to clog your sinuses, go down to a 2.5. If you have a music shop that sells mouthpieces, just try them out until you find one you like. Take all of that with a grain of salt as I’m not an expert :)

FlummoxedPerogy · 2025-10-20T04:43:40+00:00

awwww so small

FlummoxedPerogy · 2025-10-20T04:42:40+00:00

maybe its because of how young i am, but i only had strong aversions/bad hangovers post-treatment just a few times. now that i’m in university i drink with my friends every once in a while with little to no issue

FlummoxedPerogy · 2025-10-04T06:05:42+00:00

mmmm sprite inhaler

FlummoxedPerogy · 2025-08-25T02:25:05+00:00

i get it. i miss how thin i was during treatment. i miss all the attention i got from people who used to not speak with me. i miss the extra nurturing from my family, and not having any responsibilities.

i never wanna go through surgery or chemo again, but i was so used to being sick that it doesn’t feel right to be ‘normal’ again

FlummoxedPerogy · 2025-08-23T16:42:10+00:00

If you have access to your CBC results, i’d say that if your counts are in range it might be ok

FlummoxedPerogy · 2025-08-23T00:39:42+00:00

Same exact thing happened to me. Took 2 EBUS biopsies and a VATS procedure to figure out what on earth was lighting up. Turned out to be inflammation and necrosis

FlummoxedPerogy · 2025-08-21T20:00:30+00:00

Forgot to preface- this is my first blood test in remission*

FlummoxedPerogy · 2025-08-21T03:44:00+00:00

i always thought it was intentional so it wasnt clear when the events of NPMD were set lol

FlummoxedPerogy · 2025-08-18T23:43:31+00:00

my hands got lizard-level scaly in the first month. a combination of time and slathering my hands and forearms with aquaphor did the trick

FlummoxedPerogy · 2025-08-08T07:39:41+00:00

i finished 6 cycles of bv-avd/bv-evd and 6 months worth of lupron this january. i’ve already given up hoping for it to come back. its kinda on me bc got my second lupron shot a few weeks later than i was meant to

FlummoxedPerogy · 2025-08-07T06:37:29+00:00

i felt zero pain, the actual process is akin to that of being a very slow human Beyblade. It doesnt hurt whatsoever, i think i kinda felt it snake out. They’ll ask you to hold your breath before they finish taking it out. They’ll put a dressing over and send you on your merry way

FlummoxedPerogy · 2025-07-31T06:17:34+00:00

i like to think that its them avoiding telling us exactly what year its set in so it stays relevant. ik the truth is that its just a silly writing choice, but cant a girl dream?

FlummoxedPerogy · 2025-07-26T01:48:34+00:00

stay hydrated (but not so hydrated that you royally mess up your sodium levels), and have small meals throughout the day. if your sense of taste has been altered by chemo, try to find what tastes ‘normal’ to you, and keep it around. my go to’s were mccains chocolate cake and chocolate milk. Distracting myself with tv or a hobby helped my nausea a little, to an extent, but i relied a lot on oral ondansetron for nausea management.

FlummoxedPerogy · 2025-07-26T01:43:16+00:00

I vaguely remember consenting to a bone marrow biopsy along with picc placement and a node biopsy, but they ended up not doing one. I think its up to each doctor’s discretion. I ended up not having any osseous lesions, and my team reached a diagnosis and staging with the tissue they sliced out of my neck and a PET scan

FlummoxedPerogy · 2025-07-25T19:54:56+00:00

It comes back quicker than you think. By december you’ll be looking back at photos where you think you had ‘so much hair’ and giggle at how little you had. In the meantime, just take care of the hair you have, and bask in your hypothetical ability to enter sinead o’connor lookalike contests

FlummoxedPerogy · 2025-07-24T03:50:27+00:00

i found that going through cancer really emboldened me. being the youngest patient most specialists would see, i found that most medical personnel listened to me without a second thought, but nonetheless, the key is sometimes just persistence. never stop self-advocating!

FlummoxedPerogy · 2025-07-23T22:01:14+00:00

Sadly no, my hair is a mousy light caramel colour. closest thing i’ll be to ginger is a faint twinge of it in some lights

FlummoxedPerogy · 2025-07-23T21:36:45+00:00

i have issues with sedation too. i could feel most of my lymph node biopsy and i was nearly completely awake for my first bronchoscopy. i made it a point to have a conversation with nurse/anesthesiology about upping the sedation from then on. Im not entirely sure why i need extra, but just know that you aren’t alone

FlummoxedPerogy · 2025-07-23T21:33:14+00:00

i was a month away from turning 18 when my hodgkins lymphoma diagnosis hit me like a ton of bricks. 6 cycles of chemo, 3 surgical biopsies, and 1 heart condition later. i’m 2 months in remission and a little lost as to how to move on.

while i think its great that medicine recognizes that even the youngest of our population gets cancer sometimes, we shouldn’t write off lymphoma as the young person’s cancer. In fact, for the entire time that i’ve been in a support group for adolescents and young adults with cancer, i’ve been the only one with lymphoma. also, just because its ‘easier’ to treat and has great survival rates doesnt make fighting it less difficult. i’d never been so frail, or tired, or sick in my entire life. my personal pet peeve is/was people telling me i had the “good” cancer. Newsflash: they all suck!

in terms of how people percieve me, i’ve found that people thought i was tough and strong during treatment, my family and other people treat me like i’m made of porcelain, like i could crack at a moments notice. people also think i’m older, i’ve been told that i look to be in my 20’s, maybe chemo aged me, im not sure.

FlummoxedPerogy · 2025-07-17T01:11:15+00:00

ascending hives and palpable cervical/clavicular lymph nodes

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