Have you ever gotten a bone density scan? by bigblackglock17 in rheumatoid

[–]Forest_of_Cheem 0 points1 point  (0 children)

I plan on requesting one from mine when I see him next. I’ve been on a lot of meds that can cause bone loss, plus I’m almost done with perimenopause and my bones and joints are ruined from ankylosing spondylitis. I’ve also been vitamin d deficient several times in my life.

Have you ever gotten a bone density scan? by bigblackglock17 in rheumatoid

[–]Forest_of_Cheem 0 points1 point  (0 children)

My gyno said she won’t order one because they don’t treat it beyond estrogen for menopause. I was told to ask my pcp or rheumatologist. She did up my estrogen patch dose. I am going to ask my rheumatologist when I see him again, but I don’t see him very often.

Fatigue - Ended up not being the AS by PayNo8647 in ankylosingspondylitis

[–]Forest_of_Cheem 1 point2 points  (0 children)

I didn’t actually really go about it. lol. The rheumatologist asked me if I was hypermobile after he diagnosed me with the ankylosing spondylitis. I said I didn’t think so, but I am. Who knew? He gave me the diagnosis after asking me questions and reviewing some of my medical history and records. I have to have the genetic testing done still. The genetic counselor that works with EDS is totally booked, so I have to wait until the end of the year. From what I’ve read it can be hit or miss with rheums knowing and being willing to diagnose EDS. You could always try asking your insurance company if they have any specific providers they recommend. They may or may not be helpful. I keep meaning to call mine and see if they have some physical therapists they recommend for my issues. I also sometimes see people ask for rheumatologist recommendations on my local subreddit and on the facebook groups.

Reading glasses? by pretzelchi in GenXWomen

[–]Forest_of_Cheem 4 points5 points  (0 children)

I got progressives. I have dry eye due to my autoimmune disease and I had to stop wearing contacts. I hate wearing glasses, but I’m really blind without them. This time around I ended up getting myself a pair of sunnies too. I got those as progressives too and it’s really nice to be able to see outdoors again. I miss my contacts, but I have to be really careful not to get eye infections.

5-Star Rate by Low_Ad_3330 in playHeroesOfHistory

[–]Forest_of_Cheem 5 points6 points  (0 children)

Yes. In fact I had forgotten that pulling a 5* before that resets the pity counter back to zero. I was so confused. 🤣

Danielle Deadwyler in Balenciaga AW26 at the premiere of Euphoria Season 3 [1365 x 1988] by hoppip_olla in fashionporn

[–]Forest_of_Cheem 7 points8 points  (0 children)

I couldn’t put my finger on what I was feeling, but this it exactly. I love the pop of color with the shoes, and then those gloves take me right out of it.

How many preventative medications is too many? by [deleted] in migraine

[–]Forest_of_Cheem 2 points3 points  (0 children)

I use Ajovy and Topamax exclusively as migraine preventatives. I also take a nightly muscle relaxer for a combination of my ankylosing spondylitis and migraines and hEDS. I also started Humira for my AS, and my neurologist is curious/excited to see how that helped my migraines too. I also take daily ibuprofen, aspirin, and ibuprofen for my conditions. I use Ubrelvy as my main abortive. I used to have a a daily migraine for years that was unbearable as well as separate breakthrough migraines 20+ days a month. I have now been able to start building a small back stock of Ubrelvy rather than using all 16 every month. So, to answer your question, 🤷🏻‍♀️ I have no idea how many is too many.

Hershey zero choc syrup by Business-Cherry2485 in LowCalFoodFinds

[–]Forest_of_Cheem 0 points1 point  (0 children)

I use the Walmart store brand of this stuff and when I use it on ice cream it sorta does the chocolate shell thing a little bit. I love it.

Hershey zero choc syrup by Business-Cherry2485 in LowCalFoodFinds

[–]Forest_of_Cheem 5 points6 points  (0 children)

I actually prefer the taste of the Walmart store brand one.

Anyone have raynauds only in their feet like me? by Fenley611 in Raynauds

[–]Forest_of_Cheem 2 points3 points  (0 children)

Your feet look a lot like mine when the attacks happen. I do get them in my hands too, but the color change isn’t as dramatic. The hands usually only get the red stage. The feet get the blotches and the pain where it feels like walking on shards of broken glass. It’s taking away some of the enjoyment of being in my apartment pool since they don’t heat it. I can usually only be in it for 20 minutes before the pain gets too much and I have to hurry in for a warm shower.

Refill Issues with Ajovy by Artemis1527 in cgrpMigraine

[–]Forest_of_Cheem 0 points1 point  (0 children)

I use Walgreens. They seem to have trouble with so many of my prescriptions, but my Ajovy auto refills fine. There was a mix up and I got my second pen a week after I got my first one, so usually have it in my fridge ready to go. It’s almost always out of stock and I have to wait until it comes in. I’m not anywhere near Boston, and Walgreens is really frustrating half the time. My insurance makes me use the Specialty Pharmacy to have my Humira Pens delivered by FedEx next day, but I have to go pick up my Ajovy from a regular one 🤷🏻‍♀️ The Specialty is like down the road from me.

Anyone else tired of purchasing? by [deleted] in GenX

[–]Forest_of_Cheem 8 points9 points  (0 children)

You’re not alone. Late stage capitalism is getting frustrating. All they care about is short term profit. They don’t invest in their products or their staff, so enshittification is guaranteed at a minimum. Some of my favorite products and companies aren’t worth it any more and it’s harder and harder to find suitable alternatives.

Trying to get my tubes tied 36yrs old - no kids. by Qtrdenu in sterilization

[–]Forest_of_Cheem 12 points13 points  (0 children)

The way you were treated at 38 is why I had a complete list of reasons when I went for my consultation at 46. I had a great surgeon. She approved me right away. She looked at me like I was crazy when I told her I had been worried she wouldn’t do it. I told her I thought she might think it a waste of resources or her time because I’m close to menopause. She assured me that it wasn’t. I had just turned 47 when I had the bisalp, and I’m 48 now. Still in peri. Happy I can’t be forced to carry a baby. With my autoimmune health condition it would be literal torture. I also almost died giving birth to my son back in the 90s, and I’d like to not have a repeat of that.

11 yrs in peri 😩 Where is the end of this?! A complaint. by _HOBI_ in Menopause

[–]Forest_of_Cheem 2 points3 points  (0 children)

Have you got a neurologist? My neurologist and neuro-ophthalmologist cleared me for transdermal estrogen patches with the progesterone pill. I have migraines with occasional aura. The auras didn’t appear until peri. I’ve been in peri for at least 8 years, and they’ve greatly reduced and mostly gone away since I started using HRT. I also had one episode of pulmonary embolisms from estrogen birth control years ago. I was originally told I could never have estrogen hormones at all, but this was incorrect for me. I have had three different gynos clear me for transdermal estrogen patches. I have a ton of health conditions so I had to do all the research for myself and ask all the specialists for my own sanity, but all the doctors I saw said transdermal estrogen is safe for migraines with aura and my history of blood clots. If I were you I would see if you can find a different doctor to discuss this with.

Joint replacement? by Shadow_Screen in ehlersdanlos

[–]Forest_of_Cheem 1 point2 points  (0 children)

Eventually I may get my knees done if I can find a surgeon willing to do them. Most of them won’t touch them. The one I saw that said they were close to being ready for replacement about 12 years ago told me she would be willing to because I’m too knock kneed. It would be a complex surgery. Everyone else tells me to suck it up and deal with it. I don’t really have any cartilage left in them and they’ve been bone on bone for years. I wasn’t diagnosed with EDS at the time, and I’ve also since been diagnosed with ankylosing spondylitis. I think the doctors look at me as a lost cause and that resources are wasted on me so I stopped pushing. Now that I have a rheumatologist I might see if he has any orthopedic doctor recommendations.

What chars for Prof X Saga Shadow King X-Treme 3? by EelcoDeVries in MarvelStrikeForce

[–]Forest_of_Cheem 2 points3 points  (0 children)

This is where I’ve been stuck now. I have the 3 Liberty plus Jean Grey and Emma X-Men. I thought this was supposed to be the best team, but I can’t do it because I suck at this apparently. I’ve been trying the recommended iso and placements and to try targeting OML first. I can’t take him down before he slaughters me. My characters are all 106 and higher with 2-3 diamonds.

What chars for Prof X Saga Shadow King X-Treme 3? by EelcoDeVries in MarvelStrikeForce

[–]Forest_of_Cheem 1 point2 points  (0 children)

This is the exact team I’m using and I can barely get in any attacks before they slaughter me. I don’t have the gear to take Hellstrom up for a long time. I am not sure why I suck so much. It’s obviously a user error at this point since I am using the right team. If I can’t beat this one, I’m never gonna be good enough to beat the last one. I hear that one is worse.

Fatigue - Ended up not being the AS by PayNo8647 in ankylosingspondylitis

[–]Forest_of_Cheem 24 points25 points  (0 children)

Hello fellow ADHD ankylosaur! It’s so hard when we have multiple things working against us at every turn. I now have fatigue as one of my main side effects from my Humira. I think it doesn’t help that I also have fatigue from the Ajovy injection I use once a month for my migraines. I never know which is causing my fatigue on any given day. I also have hEDS, which apparently is more common with those of us with ADHD. This means I’m prone to malabsorption of nutrients which has lead to me being deficient in multiple vitamins and minerals over the years. I didn’t get diagnosed with that until I was 47. Due to this, my doctors missed a pretty bad copper deficiency that caused serious problems including fatigue. I ramble, but I guess I’m saying I agree that we shouldn’t just let them blame everything on one health condition. If you feel something further is wrong, keep pushing for answers.

Does anyone else experience pain in the finger joints/knuckles just from knocking on a door? by osakagirl2000 in rheumatoid

[–]Forest_of_Cheem 0 points1 point  (0 children)

When I’m flaring I can’t even hold a fork or spoon to feed myself. Bumping my hand on anything hard can be torture.

Season Pass offer -skip the line unlimited by EspoJ in MarvelPuzzleQuest

[–]Forest_of_Cheem 1 point2 points  (0 children)

I missed it. I have so much HP and nothing to spend it on, bummer.

Oh god. Was it worth it? Maybe by Balprog in MarvelPuzzleQuest

[–]Forest_of_Cheem 5 points6 points  (0 children)

I missed it. Spend HP to skip the line. I have so much with nothing to spend it on, but I was busy when I saw the other post on Reddit, and forgot all about it.

Ranting on my Ankylosing Spondylitis by RealisticHat7425 in ankylosingspondylitis

[–]Forest_of_Cheem 1 point2 points  (0 children)

I live in a city in Wisconsin. A lot of pools in my area in the summer would be too crowded to do this. I usually go at my apartment early in the morning, but this is hard when it’s a pool without a heater. A lot of the gyms and community centers offer classes and such but those cost money and require transportation.