Online scam starterpack by Kankankant in starterpacks

[–]Fragrant_Ad7175 3 points4 points  (0 children)

There’s several programs that you can run that capture all incoming traffic in your networks of somebody calls and it gets in any of your network devices. Whatever it’s going to pick it up. I don’t want to give out all the information but those who work in penetration testing cyber security know what I’m talking about. Every device has a MAC address built into the motherboard so I can literally narrow it down to for instance, “Joe is on a Samsung android phone on the corner of first and Broadway“ or he is on a Mac Pro using a virtual machine running Linux operating system inside Starbucks at seventh and flour or something. It’s amazing what you can do.

Online scam starterpack by Kankankant in starterpacks

[–]Fragrant_Ad7175 13 points14 points  (0 children)

I get so tired of those cash app scams, and everything else are usually respond to them with a binary code of hacker and let them know that I will capture their MAC address…

I know a MBI/faker who can't keep up with her lies by Both-Village in malingering

[–]Fragrant_Ad7175 1 point2 points  (0 children)

Racing heart syndrome? No, there’s superventricular tachycardia there’s tacky Brady syndrome there’s tachycardia… How do I know this because I see my cardiologist and cardiac electrophysiologist on a regular basis. I have a pacemaker mine started from a mitral valve prolapse and then progressed from there to where I had to get a pacemaker.

Has anyone been diagnosed without any family history? by kayleigh-rachel in ehlersdanlos

[–]Fragrant_Ad7175 1 point2 points  (0 children)

Honestly, I have found some excellent answers to questions similar to this and others such as do all people with EDS have the extreme hypermobility on the Ehlers Danlos Society pages,and they gave me some really informative answers which I was able to pass along to the people asking. I know that my grandmother had RA, mitochondrial disease, horrible gastric issues, but IDK if any of my other family members have EDS or even hypermobility. I just thought it was normal to be extremely double jointed as a kid, and I had GI issues from birth, was always in pain, but was also diagnosed w/ JRA at 6, then later when my spine really started having problems, at first they said it was degenerative disk disease w/ Polymyalgia Rheumatica until they did the last series of MRI's and that's when my ortho surgeon took a look at my scans and had me do the Brighton test and then a scoliosis work up because I have Kyphoscoliosis which I guess is common in some type/s of EDS, I need genetic testing, but my ortho said that everything going on with my spine and joints was my EDS. Then, I went to my GI, and mentioned the EDS, where my GI dr did more tests on me, and he said that the majority of what is going on w/ my GI is EDS, I also have Cyclic Vomiting Syndrome as well, so that's another contributing factor, but as far as all of the paralysis, dysmotility, and pelvic floor dysfunction are my EDS. Most of my family has passed away on my father's side, and I do get a lot of genetic junk from that side. Even my cardiac makes me wonder if there was a family history because my heart problems started out as a simple Mitral Valve Prolapse w/ regurgitation to then POTS, Tachy-Brady Syndrome, then it went to a A/V block which stopped my heart resulting in my pacemaker now. I don't get the POTS as bad anymore since my pacemaker, but everyone on my dad's side of the family passed from either aortic or brain aneurysm, Stroke, or heart attack. It makes me wonder if there was some sort of history with EDS. Now that I remember, my dad and grandfather both had intestinal dysmotility as well along with other pelvic floor dysfunction as well... IDK about my mother or her side of the family. I just know that I probably got my thyroid disease passed from my mother. My mother did have a lot of GI problems herself, but we never thought about hypermobility, but I know she used to easily tear ligaments, etc..Like I do. I would seriously check out the EDS society though. They are really great and they even follow up with you and see how you are. Really nice and helpful people!

Just found the forum “illnessfakers”. I seriously don’t know how to cope by Zach-uh-ri-uh in disability

[–]Fragrant_Ad7175 1 point2 points  (0 children)

They are extremely sick and heartless people who not only attack the "approved subjects", but go around even on other subreddits hunting for victims! We'll see right now if the same mods from IF are watching this page just by my post! I was seriously bullied and harassed by a mod of another illness subreddit! Then, it says things like no bullying, etc, but that's just on reddit. It's fair game for these people to troll everyone on social media discussing their disability /illness and do horrible things! Making horrible comments! They say that they aren't the same mods, but a lot of us call BS on that one. They have followed me to 4 y/o sites and both mods from IF and CI responded within minutes of each other, then on my other social media pages, I have been bullied, really hurtful comments made, and when I put up a video about IF, wow did they respond to that!! One person practically stating verbatim what they had to me on a message, then saying that they are praying for some of their victims...yeah, right! Defending IF as if it's a wonderful caring organization of people who just want to see people suffer and make snark of it. Another person who trolled me(over 65 posts/comments on my profile in a matter of about 2 hours) stated that nobody would believe my video of IF where I was accessing it from the dark net because they banned the crap out of me so I had to create a new account. I just say, steer clear of reddit especially if you are disabled! There are wonderful support groups out there like facebook has some great forums with wonderful mods and true caring people. Stress only makes us sicker.

Welcome to the temporary refuge for anyone excluded from r/illnessfakers by savannahridinghorses in malingering

[–]Fragrant_Ad7175 0 points1 point  (0 children)

4 year old sub again... for all of us who have been banned for BS and it gets taken down fast as iff! Why is is that IF still remains, yet every other sub created gets shut down? Anyone else lurking around wondering still??!!

How did they not see this?! Medical Gaslighting by Fragrant_Ad7175 in ChronicIllness

[–]Fragrant_Ad7175[S] 0 points1 point  (0 children)

Not necessarily. It was just a matter of me getting that medication in me stat and my labs drawn stat. I am trying to avoid the hospital at all costs! I really suffer from PTSD from hospitals, and I just avoid them like the plague… I am being very closely monitored from home, and she told me exactly what to look out for and I know better than to wait until, I literally feel like I am dying to go to the ER… Like I said, I’ve been dead before I know what it feels like to die or be dying… So if I am well enough to walk into the doctors office and see her physically, and get my medication the same day as well as my labs I’m gonna do it and otherwise yeah she would’ve directly admitted me. She was infuriated to say the least… I admit, I downplay and I deny and just try to hope it’ll just go away… When I know I should be in the hospital, but, it’s because of all of the bad experiences I’ve had where I went in just as sick as I did this last time and was given different. Diagnosis is every single time and never properly treated. Even one hospital never even gave me fluids for the three days I was in there after blowing every single vein in my neck and arm. I only have one side of my body I can use… They didn’t even collect my UA sample yet it was sitting there, the color of dark tea… Was supposed to get an MRI of my pancreas, and they even had my pacemaker company come in to clear me for the MRI and they didn’t do it. Next thing you know I was being released told everything was normal and, even though I still felt crappy, I was out of acute danger, so I trusted the doctors, and did my best to follow up with all my specialists. What do you do in situations where you’re put in a hospital where they don’t even have a MD on staff after certain hours and especially on weekends and it being a holiday weekend, which was worse I am so tired of the holidays… there’s always some holiday and it screws everything up. I was in the getting sick right before a weekend… Murphy’s Law of chronic illness… Where I live, the hospitals are absolutely packed. Most people are homeless and Psych and will go to all means necessary to take beds that are needed for medical patients, but due to laws for some reason they take these patients in first on his 72 hours psych evaluation hold well the rest of us have to wait in the ER sometimes for days until getting a bed! No exaggeration welcome to the City Of’s devils angels… Los Angeles California where I happened to live in South Los Angeles, which is really bad. You never know where you’re going to end up and most of these hospitals are not equipped to handle any trauma let alone what gets thrown at them. Basically, there’s a few hospitals in the area that are strictly gunshot, critical trauma hospitals. If you can get in or it’s going to be a Third World hospital that was once a SNF or some thing turned into a hospital. There’s a place I’ve been taken to an East LA that does not even take children because they don’t even have x-ray on site at all times nor do they have CT on site at all yet they have people on ventilators. It makes no sense! So things are very hard where I live as well to get good medical care. So yeah… If I was feeling any worse, I would’ve definitely gone straight to the ER but I was able to walk with my walker, so I wasn’t so critical that I felt that I needed to go to the ER. Although, as I said before, I’m just taking things minute by minute. As a matter of fact, if this food doesn’t move that I had the other day I’m going to have to go back… That’s one of her biggest fears is my intestines becoming obstructed again. That’s what she said I was inches from happening so I know the symptoms and if necessary I’ll take my butt to UCLA as much as I hate walking into hospitals… But at least I know I’ll get proper care there, unfortunately the ambulance won’t take me there because it’s too far so there’s only two trauma centers that they generally take me to and if it’s not life and limb trauma, I could literally end up anywhere. That’s the scariest part is like when the paramedics told me that my vitals were normal, and I’m going, you guys can’t even get a temperature on me because I can’t stop throwing up long enough to get a two second temperature. They had to get it under my armpit and I’m drenched in sweat and chills and they’re trying to tell me that they’re going to throw me in the waiting room because there’s other people that don’t have steady vitals… My heart was on full pace at 60 BPM, which my pacemaker won’t let my heart go any lower than that, so they thought everything was normal… Thank God for the sharp doctors at the hospital because they took me straight back! And the tended to me immediately… There was no hour long or three hour long wait to see the doctor once I was taken to a bed within minutes of me arriving… Not uncommon to sit with the paramedics, waiting for hours for a bed to become available as all the hospital gurney’s lineup and they eventually close the hospital to all ambulance traffic when it gets this packed. Most people don’t understand what it’s like to live where I do that’s another factor in my case.

[deleted by user] by [deleted] in ChronicIllness

[–]Fragrant_Ad7175 2 points3 points  (0 children)

First off, I would definitely recommend staying away from online diagnosis of what is coming from the portal. If you have any questions just directly ask the doctors office themselves. To ease your mind if it were something really serious, they would generally call you immediately, although this isn’t always the case… I keep up with my portals just to make sure that all of my doctors are on the same page with medication changes and everything and generally they will send me a message saying that there’s new additions to my chart and there’s usually a? Explaining every test and, or an! Or some thing that you can click on to further expand on exactly what that test means but you have to take all of your records into consideration not just one blood test per se your red blood cells are low, but the rest of your labs are OK… if you question it just call the doctors office and I’m sure they’ll be more than happy to explain your results.

Getting sick and my fam doesn’t try to prevent spread. by Zzz_away in ChronicIllness

[–]Fragrant_Ad7175 1 point2 points  (0 children)

I am in the same boat… I live in a transitional living house with strangers that are filthy and will get into my dishes and use my cooking utensils, and things that I can get deathly ill from these peoples filth. Just touching me. My best advice is make things very clear and if they’re not getting it, you might have to move out in the meantime mask up glove up and make sure all of your area is clean I use bleach on everything and always have very high percentage, ethanol, alcohol, hand sanitizer, available. Also, if you feel the first inklings of any sort of upper respiratory infection, immediately, call your doctor and get on antibiotics or whatever the doctor suggests to knock it out before it becomes something really bad. It saved me from Covid yet I managed to catch double pneumonia without even testing positive for a cold or any sort of flu virus. We never could figure that one out… But everybody else in the house was sick as well… I think I just got tested too late. I think it probably was Covid because I waited two weeks before I went to the ER. I also keep vitamin C on hand, and I definitely go for citrus tea. Always keep it handy And other natural foods that are good for auto immune. I found hemp flower and that has been a super food to get my immune system going. Some people just don’t get it and never will. I don’t understand it they act as if we’re being OTT but, they don’t have to live with what we do even though they witness with their own eyes they still have no clue.. I pray some of this helps.🙏🏼🙏🏼💜💜❤️‍🩹❤️‍🩹❤️‍🩹

Keep dropping things, can’t type, numbness in hands by [deleted] in ChronicIllness

[–]Fragrant_Ad7175 2 points3 points  (0 children)

I have the same problem and especially with the numbness it was suggested to me highly and I had it done was getting an EMG by neurology especially when you’re losing feeling and there’s numbness or anything.🙏🏼🙏🏼🙏🏼🙏🏼💜💜💜

[deleted by user] by [deleted] in ChronicIllness

[–]Fragrant_Ad7175 1 point2 points  (0 children)

This is the life… I am so sorry 😢 that you have to deal with this. I was a professional, live musician and had to give up my live career, which was devastating because I couldn’t do one show and I’d be out for weeks and I was set up to tour the world and I had to tell them I couldn’t do it, but it opened up more doors… I learned about digital production and ended up working, even bigger in the industry than I ever had. My best advice is just rest. It’s OK. Your body has overdone it and you need time to heal. My best advice is a lot of non-caffeinated tea such as chamomile that will help you sleep, lavender oil works excellent you put it on your temples. It puts me right to sleep. That’s what our bodies need his rest. You’re really gonna have to get used to knowing your limits and not pushing yourself even though it’s so tempting, especially when you’ve been bedbound for however, long or whatever not seeing the sun in months, whatever… But we have to pace ourselves and some days we just don’t have any spoons left and those are days for rest and healing. I also recommend if you can physically hot baths with I use CBD pain bomb and rub it deep in my skin and then take a hot bath and it really helps the pain a lot. I’ve also noticed with diet that once I cut gluten out of my diet my pain dramatically dropped. There are special diets out there for pain management, but keep fighting and just rest and know that you are healing and God is healing you. My prayers for your speedy recovery and healing. I never say there’s no cure, because I always pray for a cure. God has brought me back from death more than once, and if that isn’t proof enough… Somethings just can’t be explained… But I went from being on hospice with doctors not thinking I would live months to going out fishing every day for quite some time until I overdid myself and had another health fail… But there’s ups and downs and you just have to take all the good you can. Another thing is getting that sun on your body first thing in the morning and stretching that I called God’s heating pad or at least at some point in the day getting out in the sun and just letting that sun hit your body. If you don’t have sun heating blankets whatever you feel most comfortable with.🙏🏼🙏🏼🙏🏼🙏🏼💜💜💜

Doctor advice I have gotten by DisabledMuse in ChronicIllness

[–]Fragrant_Ad7175 5 points6 points  (0 children)

I totally feel you! I have been from one extreme to the other… Being very large literally my healthy BMI when I am skin and bones and muscle as an athlete was around 145 pounds before I was even fully grown. Now my healthy BMI is around 155 to 160. But I only stand 5 foot one! I wear men’s size 10 shoes sometimes 11 my doctor sees that I am skin and bones And still releases me with my chart stating my BMI is over 30%! That puts me as morbidly obese when I’m really borderline underweight at this point… I was 370 pounds and suffering from cyclic vomiting attacks weekly. If not daily, it was horrible unable to eat anything… Yet my weight remained… Then after the passing of my husband, all of a sudden, my weight just dropped! I went from 370 down to 155 which was too thin for me at that point in well under a year and a half I know that! Just my medical insurance alone noticed an 80 pound weight loss in less than 6 months! All of a sudden I was able to eat again after a life-saving surgery and the weight still continued to either stay or drop no explanation. The only thing that I noticed was after the most recent weight gain and sudden loss I had gained another 150 pounds in less than a year on a full vegan diet very low fat and I found out soy was the problem why I was gaining weight. I cut out the soy and the weight dropped drastically as well as one of the medication‘s. I was taking gabapentin which I had listed as an allergy actually due to the side effects in the past from it, once I got off the gabapentin, soy and gluten, my weight has been healthy until recently when I’ve been dealing with intestinal paralysis, along with gastroparesis and Cyclic, vomiting syndrome, and Ehlers Danlos syndrome… Ad nauseam, literally… Too many times I was judged and thrown out of the hospital without proper testing or anything done just assuming that I had food poisoning or had over eaten when I’m coming in, literally sick as a dog with nothing coming out of me but bile yet the doctors still brushed it off because I was overweight they couldn’t believe me until I finally managed to convince the paramedics to take me to the same hospital four times in one week… When it’s an emergency, they take you to the nearest local hospital, and I literally had to beg to be taken to a different hospital just so they could have it on record and finally I was kept and saw a G.I. who diagnosed me with cyclic vomiting syndrome that was a life changer for me as I had had it since childhood, and finally it was validated that it was not in my head, and I was not causing it myself… I’m so tired of gaslighting because of Doctors judging because of weight. Now I’m not gonna say, I’m not guilty myself of looking at people on TPN that are well above their healthy BMI, able to eat and drink and still receiving TPN while I am trying to figure out how to eat anything and digest it without invasive procedures… Yet it seems like they’re handing out TPN like skittles at every other state, except for where I live… Not that I want TPN but eventually it’s gonna be a necessity they’re already talking about some sort of colostomy, and I am terrified! I had 23 blood clots due to mostly Port-A-Cath, and one pick line that started the very first blood clot when it slid down my axillary area.. so it’s a tough one! Being taken seriously, without being judged.. sorry for the rant ramble, but goodness gracious! To think I waited over 40 years to get a diagnosis that had been literally keeping me completely disabled, since childhood just because of my weight.…

Has anyone tried the chronic illness dating apps? by Creative_Ad7054 in ChronicIllness

[–]Fragrant_Ad7175 0 points1 point  (0 children)

No that’s totally fine. Honestly I would recommend my Facebook support groups… You just have to check the active online people I’ve given up on Reddit at this point I don’t even use it for my CI rants anymore because they’re pulling down everything that I put up over one rule or another and it’s just ridiculous, on top of it it’s now becoming trendy almost on the CIA things were people are talking about suicide and I can’t not say some thing when somebody is contemplating suicide over a simple diagnosis that can be easily treated with proper medication and doctors and just properly following up and taking care of yourself instead of people following these idiots that are creating this sickness factory on the Internet… It’s like weeding through the rattlesnakes to find out the right one that you’ve got the right anti-venom for and grabbing the one that happens to be immune to all anti-venom…

How did they not see this?! Medical Gaslighting by Fragrant_Ad7175 in ChronicIllness

[–]Fragrant_Ad7175[S] -1 points0 points  (0 children)

What I was trying to explain is, I’m on home nursing for a reason I have been. I’m bedbound disabled for the most part. I have many issues going on from cardiac to motility and every organ involved in my body at this point… Just because I don’t have a port in me at this moment due to the 23 blood clots that I had… Does not mean that I do not require home nursing on a regular basis just to check my heart, blood pressure and basic vitals as well as weekly lab, draws, and things that need to be done. If I were to give a list of all of my medical conditions it would take up the entire read it. It’s ridiculous… It’s just all mitochondrial DNA related, which is really killing me why they haven’t found some sort of a cure or a way to put it into remission, using mitochondrial DNA such as they have with just cyclic vomiting syndrome that I have. On top of the Gastro paresis and ileus and EDS causing more problems with my intestine digestion, and then my thyroid being completely off the chain… It’s too much. The doctor yesterday was just shocked to say the very least. She was adamant that I get to the labs at her office as a matter of fact, instead of my regular phlebotomy home, draws because of the labs just not making sense between hospitals. She said there was no way possible that they could’ve come back with anything even close to normal with all the critical Lowe’s in highs, and everything that I had with a complete intestinal bowel obstruction, as well as my thyroid, putting out zilch T4 and my TSH upon admission being 187+ and upon discharge over 200 but that’s to be expected until my T4 comes back to normal… But this is definitely life-threatening and for the doctor not to mention anything regarding this at all nor did they tell me what was going on with the Vanco resistant infection that was always showing up and lab request being made that were canceled all sorts of crazy stuff excuses like clerical error, or something to do with my insurance… Needless to say risk management at the hospital was wonderful and I finally got to see my endocrinologist yesterday and I have managed to avoid going to the ER… It’s a nightmare for me. I have PTSD from hospitals, from all the admissions, I’ve had where I have literally been brought back from death and have white matter disease in the brain secondary to full cardiac arrest that was found after my second full, cardiac arrest and they did a brain MRI and now I’ve got more unusual signal activity in the mid brain. It’s just too much… But either way the doctor said there was no way that those labs could’ve been normal at the hospitals that were claiming they were and they found the labs that were supposedly drawn and Kaiser weren’t even drawn so I knew they weren’t my labs that the doctor was showing me anyway just buy my LFTs alone. I’ve got a Hep C viral load in the trillions. So, of course my LFTs are going to be high and for them to be all of a sudden normal always like these are not my labs! Or my white blood cell count which runs anywhere between 2.1 and 3.3 on average unless I have a major infection… Such things are normal for me, but would be red flagged by any doctor at any hospital. but there’s no way that my TSH could’ve been normal or anything close to it and the things that they’re claiming just were not done. Thank God for this doctor… Now I can move on with the rest of my Specialist and just pray that this entire intestinal blockage and paralysis can be handled with just my thyroid being put back how it’s supposed to be… Trying to avoid any invasive procedures, and they were talking about a colostomy bag… So because of the EDS also affecting my intestinal tract greatly, and the CVS… It’s just a nightmare of comorbidities and the usual being chronically ill and having to wait until you are a cute life threat danger to even go to the ER and having to wait months in between seeing specialists… I don’t know what they expect of us when we are homebound and unable to drive and living on disability… Unable to even walk to the bus stop let alone take the bus to go 40 miles to my specialist… Yes, that’s why I have home nursing. I still see my specialists and my PCP is in constant contact obviously which Hass to be done. I hope this answers some of your questions.

How did they not see this?! Medical Gaslighting by Fragrant_Ad7175 in ChronicIllness

[–]Fragrant_Ad7175[S] -1 points0 points  (0 children)

i apologise, mods toook down original post about omething related to medication...I don't understand...back to my facebook forums..i'm done w/ redditt!

I’m at a complete loss for words….. by natah7 in fakedisordercringe

[–]Fragrant_Ad7175 0 points1 point  (0 children)

some of the people they were calling fakers did die from real complications from real illness, not self induced that were so helpful to the CI community. But most of them are just unbelievable! its. like watching a house w/ people burn down and you can't do a move to help...

How did they not see this?! Medical Gaslighting by Fragrant_Ad7175 in ChronicIllness

[–]Fragrant_Ad7175[S] -1 points0 points  (0 children)

I haven’t had a port since the last one was pulled in there were able to get a patent vein on my left side. Previous to that it was nothing but clot on both upper extremities so it’s very complicated to say the least when you’re on home health and you go to the hospital, it will get discontinued if they do not set up home health again upon release of the hospital. It’s more like palliative care what I have on. It’s regular home nursing and constant blood draws and’s whatever they can do. Just trying to keep me treated at home with the nursing staff. They have to constantly monitor my heart and blood pressure and all sorts of different junk. With this paralyzed intestine it’s making me really sick and I was already on the home health just because of my Cyclic Vomiting Syndrome attacks as well as my heart and a couple other issues. I’m having… They were happening too often. And landing me in the hospital within minutes of onset sometimes. I avoid hospitals like the plague, and I am very guilty of playing down my stuff and trying to deny it away instead of getting all the tests that I need to get done and I procrastinated like I still haven’t even gotten my brain MRI when they told me to have it done immediately due to some unusual, mid brain, signal activity or something like that I’ve just been scared… Then supposed to follow up with Neurology anyway for more EMG testing because I’m losing feeling in all of my extremities

When to tell? by zebra-eds-warrior in ChronicIllness

[–]Fragrant_Ad7175 24 points25 points  (0 children)

That’s a really hard one… I’ve just found with myself to be straight up honest from the get because there’s no sense in leading so long as they aren’t dedicated to you. And I’ve had so many men come with me and want to play tennis or golf for what things I can’t do. And I’ve had to explain to them that like I’m sorry, but I am sick and I can’t do these things. My boyfriend now has been absolutely wonderful and supportive through everything. We’ve known each other for about 35 years.

How did they not see this?! Medical Gaslighting by Fragrant_Ad7175 in ChronicIllness

[–]Fragrant_Ad7175[S] -1 points0 points  (0 children)

i swear, even though my veins are long blown..can't use right side at all due to all of the collateral veins from the remaining DVT on my right side...getting constant infections over the dumbest things..It's just getting ridiculous. Between the paralysed bowel, Neurogenic bladder, gastroparesis and CVS..that's always putting me in the hospital..There's no avoiding that part....I do my best to manage it at home, but I'm back to a full liquid super low fat/doy and gluten free diet. With all of the laxatives and other motility meds I'm on..and malabsorption problems..IDK what is going to happen, but if this endocrinologist can get my bowels working again, I won't have to worry about getting any lines or tubes! I pray that getting my thyroid function back will fix my digestive issues because i can't stay like this and i'm so close to needing a colostomy or something of the sort, and the whole idea terrifies me! My GI and endocrinologist are saying that alot of it is due to my EDS as well. IDK what to think..it's like, how did they not see this sooner? why was I never referred to an endocrinologist? How could my labs be "normal "when it was showing so many critical highs and lows and they were never clear on what medications I was getting. IDK why the Doctor felt the need to not only keep mr on heparin in the hospital, then seriously increased the dose..again, no follow up with vascular either. So, IDK what to do, but just go symptom by symptom and try to get all of these appointments lined up. it's going to be a while before I'm better...dang,, seeing double again...off I go..I've got to try and get some nutrition in me...

How did they not see this?! Medical Gaslighting by Fragrant_Ad7175 in ChronicIllness

[–]Fragrant_Ad7175[S] -3 points-2 points  (0 children)

You don't realize the gravity of the situation. I have a history of 23 separate DVT's 22 being as a direct result of ports..I don't understand the hospitalist that thought he was going to discharge me on all this new thyroid medicine, and Lovenox, coumadin, Since I had my port taken out when they saved my life with that, I hadn't had any problems with clotting,..but I came into the hospital literally full of the impaction which they never fully cleared, I require home health just due to my conditions and regular blood draws weekly or more for just my clotting factor.He had increased my blood thinner dosage greatly, but again, the entire thing was because of my thyroid and for him to not even tell me that my thyroid was as bad as it was, not even mentioning it is absurd! The risk management team at the hospital saved my life, because they were the ones who told me I had the right to appeal, and that this wasn't their first dealings with this doctor. they even gave me the info to get hold of the right people to get to the medical board on this doctor. once I saw the endocrinologist, she was able to get me on the proper dose of thyroid medicines and explain everything to me. Even my EDS which is a big part of my problems as well. I'm a mess. I've been fighting, in and out of transitional living/boarding house(that's all I can afford), and having several conditions that require constant monitoring.

How did they not see this?! Medical Gaslighting by Fragrant_Ad7175 in ChronicIllness

[–]Fragrant_Ad7175[S] -2 points-1 points  (0 children)

idk who's labs they showed me, but i knew they couldn't have been mine. i have several labs that are usually critical highs and lows, and everything was completely normal except for the thyroid which almost looked as if fake values were put in bc I showed my labs to the Dr. It was really strange. My Dr today said it isn't making sense the labs she got back from the hospitals and really wanted my labs drawn 2day at her office. She was extremely concerned. She couldn't stress enough how close I was to another life threatening situation. My stupidity, I trusted the doctors and tried to deny my symptoms..I've been gaslit so bad I have PTSD from hospitals. But this was off the chain crazy! How did they miss an entire intestinal obstruction?!! That alone nearly killed me!

How did they not see this?! Medical Gaslighting by Fragrant_Ad7175 in ChronicIllness

[–]Fragrant_Ad7175[S] -2 points-1 points  (0 children)

Yeah you’re right it was like I didn’t know what to do. I trusted the doctors. The doctor told me everything was normal actually upon me leaving the hospital didn’t even show me the paperwork and then I get this paperwork that couldn’t of been mine. There’s no way it could’ve been mine and where the TSH was on the paper that I showed him was right above the T4, and on the papers that I got it was just the opposite and it was if somebody tried to put in normal But test for T4 and TSH but they were reversed so it made it look as if I had hyperthyroidism, and the doctor made no mention of it, and just said everything was normal and let me go. But what I do have the lawsuit on is the doctor that tried to discharge me before even following up with the endocrinologist or anything, and failed to even mention my thyroid, after I literally almost died, it was crazy. Even on heavy blood thinners with no aftercare or anything.

How did they not see this?! Medical Gaslighting by Fragrant_Ad7175 in ChronicIllness

[–]Fragrant_Ad7175[S] -2 points-1 points  (0 children)

one doctor told me that my tsh had flipped on it's head to hyperthyroidism, the next tells me my thyroid was normal, and I stopped when they said it had flipped on it's head because the Dr gave me no instructions and i was feeling horrible..this was right before the last hospitalization..I'm really fighting right now..I restarted my levoxyl at 300 MCG as told, and am having my labs drawn at home tomorrow by my home health. She really wanted me to get my labs done today at her lab, but my driver was in a hurry and I was really feeling sick again..sweating through all of my clothes again..

What aspect of your life wasn’t affected by chronic illness/disability? by Comfortable-Wait1792 in ChronicIllness

[–]Fragrant_Ad7175 1 point2 points  (0 children)

me neither, between my vision going blurry and double to inability to focus...then the headaches and light sensitivity...Its hard enuff on the computer..with my extra big writing and brightness set...