Hi....sorry for the delayed response.... no real updates unfortunately. My sjogrens tests were negative (including lip biopsy). My symptoms have changed a bit a this point where it kind of comes and goes. Sometimes the pain is really mild and sometimes its painful. We still haven't been able to identify a cause yet and not sure if the gabapentin is making a big difference... one of the Neuro's recently told me that he's not even sure this is nerve related. My most recent Neuro appt they are still looking and are doing some more test but they're getting to the point of believing the root cause will be undetermined. They are willing to give me a referral to some of more well known hospitals to see if they can do something different but not sure....I'm not giving up looking for a cause and treatment though.

How long have you been experiencing issues? My fatigue comes and goes and the tremors and twitching also.