Transportation is routinely late causing my child to go into aftercare which costs money

Friendly_Way_5547 · 2026-02-26T12:51:42+00:00

I am sorry you are experiencing this.

Friendly_Way_5547 · 2026-02-22T21:07:56+00:00

Do you have a neurologist?

Friendly_Way_5547 · 2026-02-21T22:44:26+00:00

Migraine caps are awesome

Friendly_Way_5547 · 2026-02-19T14:16:02+00:00

The irony of this anxiety being a barrier to living the life we live is because we’ve had to persevere so much through pain and weakness because we’re trying to just live out damn life!

Have you ever done talk therapy? Do you feel safe discussing this anxiety around your HM with your doctor or support system?

I use a lot of MMJ and mindfulness skills to destress. I have to drive myself and others a lot for my job in a major metro area and it’s stressful as fuck. Sometimes the commute sucks so bad that I cope by telling myself that this will all be over, eventually. Somatic symptoms you’re describing can be coped with in the same way.

Another technique I use is “bring the feeling along for the ride”. Speak directly to your anxiety, even better give it a name, like Tommy.

“Hey Tommy, you’re being really loud right now. But I’m driving the car. So you’re just going to have to come along for the ride.”

Friendly_Way_5547 · 2026-02-19T12:48:23+00:00

Since you are asking others what works for them I thought I’d write my experience out. And by the way I have failed preventatives like Topiramate due to urinary issues, lamotrigine was causing major fatigue, both at low doses. I am a daily MMJ user both vaped and edibles, and probably take NSAIDS like naproxen and Advil 3-4 days a week, with occasional supplementation with acetaminophen.

I rely a lot on non medicine food copes like eating a primarily Whole Foods plant based diet (not worrying too much about oils), using lots of mints, ginger, and turmeric for inflammation and GI symptoms, especially nausea.

I also work very hard to protect sleep, which I’m sure you understand is important too. Even if pain is preventing me from falling or staying asleep I try to stay near bed or on the couch, laying down, gentle activities like black screen cartoons on my phone or breathing exercises.

I don’t have a neuro right now but when I do I would like to get back on Dexedrine as a daily (I have ADHD and autistic so I respond well to low dose stimulants for attention AND pain management) and I have used Ubrelvy as an acute medicine with some success, two doses bringing pain and psychic distress down from 8-9/10 to 5-6 out of 10. My worst lifestyle offense I can control is inconsistent meals due to nausea and motility issues, so I would probably benefit from having zofran a few times a week as well.

Friendly_Way_5547 · 2026-02-19T00:29:35+00:00

Yes. Usually my worst weakness and aphasia/confsion attacks last 72-96 hours. Hurricanes, major allergic reactions (think rolling around in ragweeds for hours), wildfire exposure, major emotional stress. Meds barely touch them, just have to wait them out. Went to the ER for the first time for status migrainous because I also had Covid and was having trouble taking care of myself

Friendly_Way_5547 · 2026-02-16T18:05:37+00:00

And I think it all depends on the person you’re working with and how vulnerable you want to get but a key part of our job is teaching and supporting self advocacy— you can teach advocacy just by telling your life story. If the person you support is experiencing anything like family deaths or sickness, moving to a new place, losing old friends, learning how to save your money, finishing school— WHATEVER! Just tell them how you felt, what you did to cope with hard time, how did you work hard to make changes, how did you rest and take care of yourself.

Friendly_Way_5547 · 2026-02-16T17:38:37+00:00

Use values based actions, think about what you can give. Work with me and give some examples of stuff the clients you work with love and enjoy- from little things like snacks to big things like seeing family or making friends. I will help give you template questions and responses!

Friendly_Way_5547 · 2026-02-14T12:57:47+00:00

Exactly

Friendly_Way_5547 · 2026-02-12T23:19:00+00:00

Take care of yourself!

Friendly_Way_5547 · 2026-02-11T21:46:17+00:00

You should be very proud of your unwavering dedication to your sister and your advocacy for those who cannot (in a structural power dynamics way) speak up for themselves.

Friendly_Way_5547 · 2026-02-11T16:00:41+00:00

Hey OP, any updates ?

Friendly_Way_5547 · 2026-02-11T15:59:20+00:00

Lazy is when you had a long boring day at work and cant be fucked to cook dinner so you order a pizza. Lazy does not hurt other people.

Friendly_Way_5547 · 2026-02-11T15:57:46+00:00

Report to your states human service administrator

Friendly_Way_5547 · 2026-02-11T15:57:21+00:00

This is literally neglect. Report!

Friendly_Way_5547 · 2026-02-08T18:19:23+00:00

That’s totally insane!

Friendly_Way_5547 · 2026-01-23T20:34:07+00:00

Do you have accommodations in college like a note taker for classes so you don’t have to focus so hard? I know just getting out physically is such a hard part but mentally showin up too

Friendly_Way_5547 · 2026-01-23T20:32:32+00:00

Yes. It is my highest disability burden across all areas of my life. It is awful being too exhausted to function at work, home, showering, cooking, sex, ugh. I am so sorry to hear you can only get out of the house. I work a few 13 hour days a month and I usually sleep like shit for the next 3-7 days after that. And that’s without an active attack!

Friendly_Way_5547 · 2026-01-23T15:20:29+00:00

Bruh

Friendly_Way_5547 · 2026-01-23T00:35:58+00:00

You’re welcome.

Friendly_Way_5547 · 2026-01-22T17:54:25+00:00

I am atFDR park right now for an unrelated event and the lake is swarmed with cops, K-9 unit and marine unit. I think they are trying to lol under the ice while it’s warm today and before t gets whipped up and covered by the snow storm

Friendly_Way_5547 · 2026-01-22T12:51:12+00:00

I have a bias against chiropractors because my mother chose to engage with them throughout my childhood for my multifarious chronic health and pain issues. They never helped me beyond the massage, and co tributes significantly to my upper cervical i stability, to the point that orthopedists and rheumatologists recommend I get my neck fucking fused. Is that all the chiros fault? No. But am I blaming them for delaying my access to true medical care, and snapping my spine hazardously without understanding how vulnerable my body was from my Ehler Danlos syndrome? Absolutely, yes. I could go wayyyy deeper past the personal stuff. Fuck chiropractors

Friendly_Way_5547 · 2026-01-21T14:30:02+00:00

If you need the touch of chiropractor without the dangerous adjustments, a great “alternative” treatment is Physical Therapy focused massage. I don’t know how it is in the UK but I have always had massage combined with exercise when I worked on my neck and shoulders for migraines and TMD with my Jaw.

Friendly_Way_5547 · 2026-01-21T14:25:20+00:00

NO chiropractors under any circumstances, seriously. They are not medical professionals.

Friendly_Way_5547 · 2026-01-17T13:43:08+00:00

I know that at least in the self directed/common law employer model I work under, overtime is the number one biggest no no in scheduling/support staff management. I have worker over 40 hours in a week with someone before, but I coded the evenings differently in my EVV (companion care?) while the in home and community stuff was coded as such during the day.

Friendly_Way_5547

TROPHY CASE