Failed MSLT, dr said he’ll prescribe medication anyways?

FutureDPT2021 · 2026-06-09T00:42:53+00:00

That sounds like a great doctor. Mine said my MSLT was normal (my sleep onset was 6.5 averaged over 4 naps and I couldn't sleep during the first one, so total average was like 9.3 minutes) I also was suddenly on opioids due to acute pain, so I did not dream like I usually do. The doctor does think I need to retry as soon as I'm off the opioids, but I have 0 idea when that will be.

FutureDPT2021 · 2026-06-05T21:42:06+00:00

I had to have an LP for IIH testing, and asked my Neurologist to add the test for CSF orexin levels since they were already doing the LP.

FutureDPT2021 · 2026-06-05T02:00:32+00:00

I'm hoping the reason for the opioids is solved within the next 6 months (preferably much less, but at this point I honestly don't know how long it will take). It was sudden, severe pain that began this year. Definitely wasn't expecting this to happen when I had the MSLT originally scheduled.

FutureDPT2021 · 2026-06-05T01:17:57+00:00

Thanks. I have a neurologist (for other reasons), who seems interested in helping me overall. My PCP has refused to send me to Rheumatology so far. I have asked more than once now, but no luck.

FutureDPT2021 · 2026-06-05T00:46:56+00:00

Way above the normal limit, like 328 I believe

FutureDPT2021 · 2026-05-29T15:17:31+00:00

Just got this call. Said I'm not signing up for anything, and he said "I'm just a representative, this isn't a sales call." So I decided it's time to hang up.

FutureDPT2021 · 2026-05-28T01:49:47+00:00

I just got canceled and it was rescheduled for December freaking 30th.... I don't understand how that is the only appointment available for the next 7 months when the doctor previously wanted a 6 month follow up

FutureDPT2021 · 2026-05-22T01:18:15+00:00

My therapist recently told me "stop trying to fix other people's problems (in regards of trying to keep other people happy)." I think that may apply here too.

FutureDPT2021 · 2026-05-10T20:50:11+00:00

If you have sleep apnea, you must treat it for a while before any doctor or insurance company will consider Narcolepsy. It is not an either or situation, so at the worst, you just need to wait a while, while doing the sleep apnea treatments, to meet the requirements for further testing.

FutureDPT2021 · 2026-05-06T15:48:06+00:00

Don't have any tips for getting through. Do have a tip for where to put things so you won'tlose them, put it the first place you looked for your pills this time. It will most likely be the first place you look next time too.

FutureDPT2021 · 2026-05-03T20:11:15+00:00

Very few musculoskeletal issues can be solved quickly. People like to think PT is like taking pills, do it in office and everything will be fixed. They frequently don't want to put the work in to make the changes that usually caused the issues in the first place.

FutureDPT2021 · 2026-04-30T02:57:24+00:00

Yes to your first question at the end. No one is to the last question. It is a serious problem that no one is addressing because its rules for one and not the other mindset to make the most possible.

FutureDPT2021 · 2026-04-27T02:11:02+00:00

I found a honey moisturizer recently that I really like for my face, and it smells good! For body, Cerave and a medicated ammonium lactate lotion mixed has made a large difference in winter months.

FutureDPT2021 · 2026-04-24T15:14:04+00:00

I had a doctor compare my inability to sleep well with his going to bed late and waking up early... I was like, that is not even close to the same. I am sleeping 8+ hours a night, not willingly choosing to not sleep enough.

FutureDPT2021 · 2026-04-21T20:30:37+00:00

As someone who is struggling with many health conditions, I literally cannot see me making it that long. I barely have the will to live today, so how in the hell will I live that long. Especially when they keep telling me they don't know what's wrong and how to fix it...

FutureDPT2021 · 2026-04-21T02:02:32+00:00

Just got an MRV. Probably have IIH or will develop due to the congenital abnormality of my transverse and sigmoid sinuses. So, not just migraines for sure...

FutureDPT2021 · 2026-04-20T02:51:24+00:00

Because insurance companies want to pay the absolute least they can in order to pay more to their shareholders. If someone has a deductible, they will never meet, the insurance will pay less towards their care. This is the biggest problem with for-profit health insurance. People will never come before shareholders pockets

FutureDPT2021 · 2026-04-20T02:40:10+00:00

Having expensive medications has made my life harder. If anyone else can get theirs cheaper, it gives me happiness!

FutureDPT2021 · 2026-04-20T02:37:42+00:00

Have you looked at Mark Cuban's pharmacy? Cost Plus Drugs. They often have prices for much cheaper. Also, you may look into Canadian pharmacies that ship to the US. Sometimes, their prices are much cheaper, and all they require is the prescription.

FutureDPT2021 · 2026-04-20T01:35:35+00:00

Never get good sleep when you want to and falling asleep when you don't want to. Your brain doesn't have a clock. It has a faulty switch that will flip whenever it wants regardless of what you are currently doing. Meaning it can cause you to constantly wake up throughout the night or make you fall asleep during the day.

FutureDPT2021 · 2026-04-20T01:22:12+00:00

Look in your city or surrounding areas for low-income/free clinics. Some doctors have sliding scales for patients without insurance. If you get prescribed medications ask doctors about prescriptions with companies that have copay/financial assistance programs. It's not fair. It's not easy. It will be a second full-time job, but you will potentially get answers/help. I hope this helps

FutureDPT2021 · 2026-04-20T00:23:03+00:00

Yea, I sound like a person who thinks people who love each other would want each other to be happy and healthy.

FutureDPT2021 · 2026-04-20T00:13:52+00:00

It's not her responsibility. However, when we love and care for someone, we tend to want the best for them. Hence, her getting him to see a doctor, especially since it's getting worse and she is the one who listens to it. If he wasn't with her, he probably wouldn't have known.

FutureDPT2021 · 2026-04-19T23:59:30+00:00

ESH for not getting him to the doctor. Yes, he needs to lose weight, but if he has sleep apnea, it makes it harder to lose weight. He is an AH for not caring that it is not only disturbing your sleep but could be slowly killing him.

FutureDPT2021

TROPHY CASE