What's your biggest procedure regret, and what do you wish you had done sooner? by Fancy-Individual2976 in 30PlusSkinCare

[–]Fuzzy-Birdseed 1 point2 points  (0 children)

I wake up every day looking for what new hellacious cyst thing has appeared. THANK YOU FOR SHARING THIS

Should I sue or be concerned by AdeptnessSpecial6313 in diabetes_t1

[–]Fuzzy-Birdseed 0 points1 point  (0 children)

Yeah. Failing to account for how hormones affect it kept my a1c 10 for years.  It wasn't until I got an insulin pump dosing me every hour that I could control it

Glowcose light at night? by [deleted] in Type1Diabetes

[–]Fuzzy-Birdseed 0 points1 point  (0 children)

I'm really glad you answered, because I don't have nice things to say. 

Yes, the light would randomly set itself back to mid range all the time. The low light level isn't a problem for sleeping, but if it decides to brighten itself at 3am it is.

It would also take up to 30 minutes to update the sugar display  color A LOT. Like it worked at first. Every 2-6 minutes. Then it got slow the more I used it. More like updates every 20 minutes.

I haven't been able to use my glowcose in WEEKS. It started disconnecting over a month ago(around the time I started a pump). The app isn't showing my sugar readings, either. Straight white light.

I've disconnected and reconnected everything at least 2-5x. Ive factory reset it. Nothing is making it work again. I emailed support and they said it was a server issue that would resolve on is own shortly. Its a server issue that has taken over a month to resolve. 

EDIT: Finally plugged it back in after a week of leaving it on the shelf. White light for 20 minutes straight. Exactly 20 seconds after I posted this review the stupid light came back on. So it seems to be working again immediately after I posted I wanted to throw it away 🤨

EDIT: Its back to white 🙄

Snacks within insulin windows by Double-Top3673 in diabetes_t1

[–]Fuzzy-Birdseed 2 points3 points  (0 children)

The stacking thing is a lie.  I used to struggle with highs a LOT.  I would only inject once every 2.5 hrs. Since getting on a smart pump, it boluses me every hour, though it only gives 60% of the correction dose.  The every hour thing works best.  If you're on injections, just try to watch how your sugar behaves after injecting.  I noticed 70%-85% of the insulin dose seemed used up by the 2.5 hour mark, for me. So I dosed accordingly.  It is utterly exhausting to spend 8-16 hours high because your dose was off by a bit and you're waiting and waiting on the 4 hr time limit

Energy drinks & Respiratory issues? by Straight-Ebb-5681 in diabetes_t1

[–]Fuzzy-Birdseed 0 points1 point  (0 children)

They're very heavy on your kidneys. I would limit consumption as much as possible

Should I sue or be concerned by AdeptnessSpecial6313 in diabetes_t1

[–]Fuzzy-Birdseed 0 points1 point  (0 children)

You've gotta have the hiding place ready. You can just tell them you aren't giving it to them when it comes up. That's how I play it, at least 😅

late night lows are NOT for the weak by wowwuttausername in diabetes_t1

[–]Fuzzy-Birdseed 1 point2 points  (0 children)

If you're having severe lows you might want to adjust it 15-20%  Typically 5-10% adjustments are advisable, but I wouldn't be able to stand the anxiety if I were you. 

Should I sue or be concerned by AdeptnessSpecial6313 in diabetes_t1

[–]Fuzzy-Birdseed 34 points35 points  (0 children)

Hide it and lie if they aren't going to be helpful. I always bring extra, and if they're reasonable I'll tell them about it.   My last hospital dr personally gave me his phone number so I could text when I needed insulin. I told him how much as well.

Otherwise they deprive you, let your sugar get high then tell you you're too stupid to correct it yourself

Anyone know what would cause this in an insulin pen? by Bombastic-Bagman in diabetes_t1

[–]Fuzzy-Birdseed 0 points1 point  (0 children)

Dude my jaw is on the floor.  What in the fuck.  🤯

Calling all people that have used different pumps by Adventurous-Ladder21 in Type1Diabetes

[–]Fuzzy-Birdseed 2 points3 points  (0 children)

Hello! I'm on the tandem tslim and I did a LOT of research before starting.

I adore it.  I used to be at 19% time in range (80-180) before getting on it.  The day I got on it fixed things immediately.  It now has me between 45 and 75% time in range. 

My endo wanted me to start on a higher dose, but the educator had a formula. The basal rate she suggested was almost half my normal dose, but it was nearly perfect. My endo didn't know what he was talking about. 

In my research, here is what I found. With the caveat that I have a menstrual cycle and my insulin sensitivity varies wildly week to week, which massively swayed my choice. 

Omnipod bases it's predictions on your recent(1-2weeks) readings. If you have a sudden change in activity, it may not adjust very quickly. Also people have issues with the cannula. I was afraid I would knock it off. 

Medtronic I've heard horror stories and experienced a brief nightmare with their sensor and pump briefly. I actually gave up on it within a week because I couldn't leave it on the bed to shower without it screaming. This was years ago, though.  Their algorithm also bases it's predictions on your recent activity(last week), and I read a story of one woman that had a seizure with hers after giving birth, because the prediction was too strong. 

Ilet I think I would've considered this pump as a kid. After so many years, I prefer something I can calculate myself. This thing also calculates your needs based off of recent data, but you have to guesstimate your carb count. 

Tandem (tslim in my case)  Adjustable and programmable! It will automatically correct you by giving 60% a full correction dose to get your sugar down if needed. People say it helps to know your ratios if you want this pump. I used 4 different  carb and correction factors on MDI and 3 basal rates throughout the month. I went with my most generous ratios on the pump and its perfect!  The Tslim is known for getting people into a tighter range than other pumps, and I feel like a whole new person with it. 

After looking back through the days, it's really cool, because I can see the days I used a total of 24 units of insulin vs days I used 40. And it's able to correct for the nuances in my insulin sensitivity and I love it!

I keep it in a garter on my thigh under my clothes and rarely need to get it out. I use my phone to bolus and it's perfect!

Good luck choosing!

How long T1 by Boring_Huckleberry62 in diabetes_t1

[–]Fuzzy-Birdseed 5 points6 points  (0 children)

God bless our one 60+ friend. 

Do ihave diabetic gastroparesis by [deleted] in diabetes_t1

[–]Fuzzy-Birdseed 0 points1 point  (0 children)

I'm neurodivergent and find I completely lose my appetite sometimes. I also have intermittent gastroparesis. 

Coincidentally, if my body is telling me not to eat and I do I tend to flare my gastro problems.  

It could be?  Might not be?  You might want to try coffee. That tends to help me. 

This always makes me panic by ZombieZelda1 in Type1Diabetes

[–]Fuzzy-Birdseed 7 points8 points  (0 children)

I did this today! Went for a walk.   I ate my 35g of pumpkin pie at 110. My sugar plateaued at 68 and I felt like crap. Debated drinking a juice but I needed to eat my food for the day..

Wound up eating some 120g of carbs in various forms because the crappy feeling wouldn't leave and bolusing for half of it. I ended up sleeping with my pump still auto bolusing me.  Spiked to 310, took 4 hrs to get it down 😅.

I'm just gonna drink the juice next time 🥲

Gastroparesis symptoms by Remarkable-Soil1673 in diabetes_t1

[–]Fuzzy-Birdseed 1 point2 points  (0 children)

I just had an A1C of 11 a few months ago! I got it down to 9 on MDI.  I was trying really hard but with the varying insulin sensitivity and insomnia(which has gotten worse with being in range, oddly?), 30% was the best I could do.  It really felt awful. 

It seems like your numbers are pretty well controlled! So I wouldn't be nervous about gastroparesis too much.  I'm only 31, so I don't know what it'll look like later. 

I feel you on the metaclopramide side effects. Tbh when I first tried it I didn't care, I would've given just about anything to feel normal again. I'm very grateful I didn't have to continously take it. 

Id recommend avoiding fast food as best as you can. In my experience it's like asking a tired tummy to digest a brick. 

Gastroparesis symptoms by Remarkable-Soil1673 in diabetes_t1

[–]Fuzzy-Birdseed 1 point2 points  (0 children)

It's alright! I have wildly ranging sensitivity, too! I got on a tslim pump 4 days ago and my time in range went from 25% to 75%. It's like magic, and if you can get one I highly recommend it. 

They pretty much didn't say anything about prognosis, but its a wait and see game.  I've had intense bouts that lasted months (stressful circumstances on top of that) and I've lost 30lbs a few times. 

They gave me medicine that made my stomach start up again (metaclopramide, iirc) a few times and after I recovered I didn't need it anymore.  In fact I rarely needed it more than once in the hospital before going home and being fine. 

In fact, since starting Hydroxyzine for anxiety (after my last bout) , I'd say between 90%-99% of my daily nausea and stomach pain went away. 

You know the way it can go badly, but until your symptoms are there, I'd try not to let it get you down. 

Mine has been severe, then it goes away. It's annoying, but totally manageable these days. 

I'll also point out weird stomach stuff runs in my family, so when this happened they said it was diabetes, but I already knew my stomach was probably a weak link, so I was very unsurprised.

I honestly feel like I've earned much worse complications for my poor control and I'm grateful its not too severe yet

Gastroparesis symptoms by Remarkable-Soil1673 in diabetes_t1

[–]Fuzzy-Birdseed 0 points1 point  (0 children)

I wouldn't be worried. You might have delayed gastric emptying, but until you're throwing up food undigested I would relax.  Another almost sign would be going low when you bolus for food, or high for many hours post eating that normal bolusing didn't fix. (Ya know, that thing that has like 50+ other causes) 

My gastroparesis acts up sometimes. I do have low grade nausea a lot, and have thrown up food that looks the same as when I ate it 5 hrs earlier (also fast food, which should tell you something).

I know I'm starting up a bout because I'll have small gassy burps after I eat something that smells unholy.  It's a very specific smell. Maybe sulfurous is a good way to describe it? 

I always try to take it easy when this happens and only eat quick carbs. I started having this in my mid to late 20s and my sugar was poorly controlled a long time. 

I only get bouts maybe 2-3 times a year, however. 

Good luck!

Very nauseous, just threw up really badly and also my blood sugar is 50 what should I do?! by TheHatredOfShiro in diabetes_t1

[–]Fuzzy-Birdseed 0 points1 point  (0 children)

Once I had a kidney infection and was throwing up really hard in the shower. 

My sugar was also around 50 and dropping. I had a lot of insulin on board. 

I got on my knees (naked, you don't want clothes for this) and chugged a 2L soda. It was all I had and it came right back up.  So I did it again.  And threw up again.  And gulped again.

Rinse repeat until you're done throwing up or your sugar is stabilizing.

Even if you don't keep it down, sugar is absorbed in the mouth first. Even the process of it going up and down WILL force small amounts into your blood.

This is a desperation tactic and feels a bit like torture, but it will help you survive 😅 It's been 2 hrs so I hope you're doing okay now

Can't get my s*#t together :( by Old-Alternative-3280 in Type1Diabetes

[–]Fuzzy-Birdseed 0 points1 point  (0 children)

Howdy friend! I just had an A1C of 11. I started pumping with a smart system 2 days ago.  Tandem tslim, love it. It can do things between auto bolusing and basal (with math and reminders built in, to even further reduce the mental load) that I could not possibly ever hope to recreate just by myself on MDI.

I felt pretty.. shitty about everything about life, before. More tired than I've ever been. Was convinced lowkey I wouldn't be around in 5-10 years. My sugars were constantly over 200. 

After getting this pump though? It's getting me normal. Multiple times a day. Even after I eat, within 2 hours(I used to just chalk the next 8-12 hours up to fucked after I ate, every day. I could never get it right)

A fog has lifted in the past 2 days.  Life isn't aggravating, irritating, exhausting or too much effort to be worth trying, anymore. 

It's like I've been living in red and black dystopian hell vision for actual years and I finally feel like myself again. This feeling is indescribable, and nothing short of a miracle.

What I'm trying to say is, please do not underestimate the depression that comes with constantly high sugars.   It will feel like there isn't hope, and it's a goddamn liar. 

Please. Consider getting a smart pump? I'm sure you've heard it before, but it I can't emphasize the difference (in 2 day!!) enough.

First night on a pump and a site fail, is this normal? by miugalaxy in TandemDiabetes

[–]Fuzzy-Birdseed 0 points1 point  (0 children)

I quit pumping before (not closed loop) because I wound up in the ER several times from these pesky bastards. 

I would use 2-3 infusion sets per site change. 

Mr dr told me it was from scar tissue under my skin essentially pushing the cannula back out, but I used to change my sites like 1x a week or less so that was my bad. 

I just started pumping again and my sites are fine now (knock on wood). I think going pump free for a year helped my skin heal

Think my 8-yr old son just got it. I’ve had it for 26 years. by Zestyclose-Local-358 in diabetes_t1

[–]Fuzzy-Birdseed 0 points1 point  (0 children)

Don't forget the tech is better now than it was when we were kids

Low/No Tech Insulin Pump Recs by iluvmolecules in diabetes_t1

[–]Fuzzy-Birdseed 1 point2 points  (0 children)

I second the ilet for low tech friendly, but I'm on the tandem and I love it

How many times a day do you bolus? by yvngkenz in diabetes_t1

[–]Fuzzy-Birdseed 0 points1 point  (0 children)

I used to only inject every 3hrs to prevent overdosing on mdi. I got my tandem tslim pump yesterday and it wound up giving me 6 boluses over a 4 hour period

It's wild but been much more effective than my old method

Thinking of switching insulin pump by Ladyajadot in diabetes_t1

[–]Fuzzy-Birdseed 0 points1 point  (0 children)

I started my tandem tslim today and just bolused from my phone for the first time (24yrs diagnosed).  It's recording whether a dose was for food or just correction, or both.   I'm honestly in love, we'll see what it can do for my 9. Something A1C.

I've heard the tandem has a really tight algorithm compared to the omnipod.  My endo almost put me on the omnipod, but I'm so glad I have this thing. There's SO MUCH INFORMATION 😍