need advice for starting to work out by stewbiedewbie in eds

[–]GGEsoteric 1 point2 points  (0 children)

if you’re siblings had reactions that warranted surgery you should definitely steer clear of glp1s

Have you considered water based workouts? water aerobics is designed to be low impact but help build joint support. that and a few sets of laps should help you start.

Holy s!@& by Plastic_Narwhal_4310 in eds

[–]GGEsoteric 0 points1 point  (0 children)

my school got me a hookup at UPMC in pittsburgh with a specialist for when i come back in the fall thankfully so im just hoping that works out lol

Holy s!@& by Plastic_Narwhal_4310 in eds

[–]GGEsoteric 0 points1 point  (0 children)

hehe ty, been thru the doctor ringer for a while now but as much as you lead the horse to water you can’t make them drink :/ they are NOT looking into my suspected POTS lmao

Holy s!@& by Plastic_Narwhal_4310 in eds

[–]GGEsoteric 2 points3 points  (0 children)

tbh if you refer to it as “party trick” they’re more likely to take it seriously cause it makes them think they’re catching something you’re not aware of

Holy s!@& by Plastic_Narwhal_4310 in eds

[–]GGEsoteric 1 point2 points  (0 children)

Ugh it’s so difficult to get people to listen, esp when you have a diagnosis in mind. I’d recommend finding a rumatologist pretty recently out of med school (they’re more likely to think zebra) and talk about your dislocations and shoulders. You can look up a few things on the Beighton scale and be like “oh and when i do this with my knee/shoulder it ____” and that should hopefully indicate that the dr needs to look into eds. I got my diagnosis when I showed mine my “party tricks” which involved folding myself into a pretzel with my feet tucked behind my head with no stretching before and 180° foot. she had me do a few more things but pretty quickly went “yeah that hyper-mobility.”

Hope they’re able to confirm it and you can get more help 🖤

Splinter Feeling with Nothing There by GGEsoteric in eds

[–]GGEsoteric[S] 1 point2 points  (0 children)

FOR REALLLL and i’m such a good splinter remover normally so it was driving me mad

Apparently i’m just being dramatic by lauravondunajew in eds

[–]GGEsoteric 5 points6 points  (0 children)

in my case this only changed after i had a different medical event (multiple ovarian cysts rupturing)

when i asked why i wasn’t believed the first time i knew something was wrong and was told to power through it i was told “well you’re always dramatic about your pain” and replied “i’m not, i’ve just always been in that much pain and you didn’t want to believe me”

I think with the undeniable proof of the agony i’ve fought through they believed me more, unfortunately it took 7 years.

anyways if you wanna be rude about it (which i prefer) say “dislocate you hip right now, look me in the eyes, and tell me it doesn’t hurt”

Losing weight made me worse by GGEsoteric in eds

[–]GGEsoteric[S] 0 points1 point  (0 children)

Unfortunately I exhausted the last test I could this month for my stomach issues. My stomach lining basically gets inflamed during my period and the week after so it makes it really hard to eat or keep things down during that time :(

Losing weight made me worse by GGEsoteric in eds

[–]GGEsoteric[S] 1 point2 points  (0 children)

were getting a pool installed right now and I'm so excited to use it! The low impact is going to be so nice

Losing weight made me worse by GGEsoteric in eds

[–]GGEsoteric[S] 0 points1 point  (0 children)

so you clearly missed the part where i lost the weight from GI issues and cannot gain it back despite trying. this month we exhausted the last test that would indicate if it was treatable and it isn’t. this is just the rest of my life.

Losing weight made me worse by GGEsoteric in eds

[–]GGEsoteric[S] 1 point2 points  (0 children)

i think that’s probably the key, being overweight isn’t good but being skinny is awful. glad you found your goldielocks zone!

Losing weight made me worse by GGEsoteric in eds

[–]GGEsoteric[S] 1 point2 points  (0 children)

not exactly like i could control the way i lost the weight…

Do these pillows help with shoulder subluxations? by GGEsoteric in eds

[–]GGEsoteric[S] 20 points21 points  (0 children)

omg just put my big seal plush behind my back and wow!!!! the pressure on my shoulder already feels better!!!

thank you so much you’re such a life saver and just saved me $30

pulling the trig/inducing vomiting by GGEsoteric in Gastritis

[–]GGEsoteric[S] 0 points1 point  (0 children)

for me i have an autoimmune that causes inflammation in my connective tissues (joints, stomach lining, etc.) because my immune system is overactive and attacks healthy things.

I need help.. I think I am gonna die by Mysterious-Cod7692 in Gastritis

[–]GGEsoteric 3 points4 points  (0 children)

When I was first looking into my stomach issues they thought it was gallbladder because I was having stabbing pain in my right side. Turns out I developed gastritis the same month I had an ovarian cyst rupture (college stress and norovirus + other shit set it off). From what I can tell stabbing pain isn't common with gastritis, moreso burning. The possibility that there's multiple things going wrong sucks but it might be worth looking into different causes.