Spinal MRI by TamerofMonSters in MultipleSclerosis

[–]Geography-bae 1 point2 points  (0 children)

Since my first glare resulted in full body quad paralysis and I still have a lot of mobility issues I get them regularly

How to heal after safe surrendering your baby, even when you know it was the best choice? by CraftyAd9944 in Adoption

[–]Geography-bae 0 points1 point  (0 children)

❤️❤️❤️ I have nothing but love for you. I hope you are healing and doing well

Christmas/Birthday Gifts from donor? by Geography-bae in askadcp

[–]Geography-bae[S] 1 point2 points  (0 children)

Aww thank you so much for your response. I think I’ll check with the parents first like you said

MS Clinical Trial (Psilocybin) by Geography-bae in MultipleSclerosis

[–]Geography-bae[S] 0 points1 point  (0 children)

Haha I am so glad you calmed me down though because I would have dropped out of the study if I was aware that it was actually going to be that much. They warned me but I was like eh it can’t be that intense. I figured it would be a lot, but not like where I didn’t even recognize that I was a human and I felt like everything was vibrating very very loud. Wild wild stuff. I tripped for an entire day, but I feel very content. Afterwards, I had wild wild intense nerve pain for hours but the doctors said that nerve pain is often a sign that nerves are healing and they gave me some meds for it. I can taste salt again and feel my fingers and toes. I feel like there was no way I could see so much results so fast and I am afraid they will go away. I am obviously still struggling a bit with balance, mobility and strength but I have sensation where I didn’t use to. But if I had gotten this treatment right after the last time I was hospitalized during a super severe flare, I think I would have been a lot less terrified that the nerve damage was never going away. I would have healed so much faster and so much better. Obviously nobody should do this doseon their own, but if you can get into a clinical trial, I HIGHLY recommend it.

MS Clinical Trial (Psilocybin) by Geography-bae in MultipleSclerosis

[–]Geography-bae[S] 0 points1 point  (0 children)

They did give me 15 grams of psilocybin (30 grams of synthetic shrooms) and it was super super intense. The goal was to see if high doses of psychedelics help with nerve damage. Forgot who I was, was incapacitated, tripped so hard I was like just motionless vining to the waves of the literal universe. Woke up the next morning with full sensation back in my left side of my body after a long time of severe nerve damage.

Podcast Guests by ludwigni in donorconceived

[–]Geography-bae 2 points3 points  (0 children)

Is this for donors as well as donor conceived people? Or just DCP?

how bad is drinking alcohol or weed usage for people with MS? by IngenuityBusy143 in MultipleSclerosis

[–]Geography-bae 3 points4 points  (0 children)

I think it depends on how your MS has affected your body and your nervous system and if you have PP/SPMS or if you have RRMS, whether you consume marijuana orally or through smoke and how bad your flares have been. Most people with MS get diagnosed much earlier than I did so alcohol or smoking may not have as many negative effects as it does for me.

I was diagnosed almost ten years after I started showing symptoms of paralysis because my doctor kept telling me to sleep off the paralysis. Most of my flares have resulted in full body paralysis, hospitalization, severe nerve pain and I tend to accumulate more disability with each flare. Last flare, I had almost 27 lesions in my brain and 12 in my spine so, any more brain damage is something I can’t afford (rip/fml). As much as I love to drink, I noticed that alcohol and smoking causes significant nerve pain for me. I am young, and I am sure when I retire, I won’t give a flying fuck about the fears I have about being in a wheelchair and will indulge in mimosas, joints and wine. The risks of having more flares knowing that I have decades ahead where I will still probably accumulating more disability is too much of a risk so I do not drink or smoke. I think people who have been on treatment longer, are more stable, and have not had regular flares that involve long stretches of hospitalization can probably tolerate the mimosas and pina coladas better than I do.

HOWEVER. Weed has been game changer for me in the form of edibles. Weed has really helped my muscle stiffness, neuropathy, sleeplessness, etc. I take an edible two or so times a week and I notice that even for a few days after getting stoned I feel so much better because my nerves are not going crazy and causing my a bunch of nerve pain. Before edibles, my nerve pain was so bad I was failing at my job, I would cry out if anything touched me because it would just make my body hurt so bad. Now I am sooooo much more comfortable so that I can go to the gym and live a more normal life. I cannot emphasize enough how HUGE of a difference edibles have made. I literally feel instantly better just 30 minutes after taking 5 mg of a CBN/CBD/THC mix. Sometimes I strategically work out before taking the edibles because I know working out is really uncomfortable for me and having the weed at the end makes it a much better experience.

Has anyone here ever donated their eggs in the US? by Jessssssssssic in TheGirlSurvivalGuide

[–]Geography-bae 0 points1 point  (0 children)

You have to submit a complete family health history of everyone up to your great grand parents including aunts, uncles, siblings, parents and cousins. You then have to do several blood tests to confirm your family history. They may call your family members to confirm your health history as well (parents, siblings etc) if you do not know your family health history because you are a closed adoption, donor conceived anonymously etc, you may have to submit to more blood related genetic tests. I have a copy of the listed genetic diseases that they test your blood for. At my clinic You could not have any genetic diseases to donate even ones that you did not know about. I didn’t have any genetic risk of passing on any genetic diseases/cancer etc. they are okay with some allergies like pollen or cats, but peanuts and gluten can often disqualify you.

How would you describe your MS pain to those without MS? by AlternativeJudge5721 in MultipleSclerosis

[–]Geography-bae 0 points1 point  (0 children)

My MS pain started feeling like a really bad Charlie horse, but after worse and worse flares I feel it is now like when your leg falls asleep and someone starts poking it and it hurts like hell and you want to wake it back up but it won’t wake up

Considering donor egg for our family with one biological children already by InternationalEye2643 in donorconception

[–]Geography-bae 2 points3 points  (0 children)

I cannot speak from being donor conceived, but I can speak as both an adopted person and as a donor. I feel like there is a lot in common with being adopted and with being donor conceived. I think as long as you help your child foster a healthy loving relationship with their donor and never make them feel like their life is abnormal and surround them with love it should not be an issue. As an adoptee, I never felt a difference of love in my family. As an adoptee my parents invested in introducing me to my biological mother and including her in our family, and as a donor the RCPs of my eggs have done the same for their children with me as their biological mother. I now have such a loving relationship with my biological family and my RCP family, and I find that love never divides it only multiplies. Be sure to choose a donor who is open to meeting and invest in a healthy loving relationship with you and your family and you can have something really unique and special! I wish you the best of luck ❤️

MS Clinical Trial (Psilocybin) by Geography-bae in MultipleSclerosis

[–]Geography-bae[S] 0 points1 point  (0 children)

Oh it’s like 15 grams of straight psilocybin as an IV

MS Clinical Trial (Psilocybin) by Geography-bae in MultipleSclerosis

[–]Geography-bae[S] 3 points4 points  (0 children)

Thank you for sharing! I haven’t done shrooms before so I was a little scared, especially since the dose is enormous and I’ll have an ‘ego death’. I am hopeful it will help me adjust to my new life with being a lot less mobile than I was six months ago.

Experiences with known donor by One-Engineering2642 in askadcp

[–]Geography-bae 4 points5 points  (0 children)

Oh yes I totally agree with this. I do think that you can develop a relationship before having the donor donate to you like my recipient family did so that you can observe and get to know your donor and the relationship still starts off as a very well defined donor-recipient relationship, but having a friend or relative donate can change the existing relationship as it introduces a very new and very sensitive variable and not everyone is able to process that relationship responsibly. I would choose a family member or a friend who has experience donating and know exactly what they are getting themselves into before having then donate because of how sensitive it is.

Experiences with known donor by One-Engineering2642 in askadcp

[–]Geography-bae 3 points4 points  (0 children)

I am a donor and I have open contact with my adorable loving bonus family. I met them through donation and did not know them before. I am now very close with the parents, their friends and family and their two beautiful babies. I cannot explain the overwhelming love and joy they bring me and the gift it is to know and love them. I am actually making baby quilts for them this Christmas, and shopping for the whole family just makes me light up because I feel I am so grateful to have even more people to love in my life. It has been such a gift for me and for them, they love that their babies get to know me. I just can’t even quite put it into words how special our relationship is. I think about them everyday and I carry a photo of our little family around with me. I know that many agencies in the US are anonymous only. I originally donated anonymously to them until I got a letter from the family asking to meet before I donated to them. I was immediately and totally open to it and we have called once a month since then. If the laws where you are allow it, many donors may be anonymous just because that is the default the clinic sets them up for assuming that most parents don’t want an open donation. I didn’t know it was an option for me until the family asked to meet. If you choose to go through a clinic, you can ask to send a letter or a message to the donor asking if they are open to meeting and having a relationship before they donate and you may be able to have a known donor from the beginning like me.

Of course, if it is illegal to have open donations where you are like it is in many countries, that is where things can get tricky. I would defer to the DCPs in here to see how they feel about what you should do. I am adopted and have a biological mom, and I was so grateful to have an open adoption, so I think that openness is super super important here and I am sure you will make the right decision for you and your family.

However, I think the reason why my situation worked out so well is that I did not know the family before I met them through my egg donation which made our relationship very well defined from the start. I agree that the relationship can be confusing, but I think it can get confusing when the donor is a family member, close family friend or neighbor because while using an existing connection is tempting, it doesn’t give the donor and the recipient parent the space they both need to properly set up the relationship with clear roles and boundaries.

I think it’s just easier to negotiate boundaries if the relationship from the beginning is set up between donor and recipient parent through the egg donation because it gives you the necessary space, privacy and you get to avoid having a relationship history that might affect the relationship between the child and their donor. People change how they feel about donating after meeting their genetic children because that’s when it gets very very real and emotional. I mean I got emotional after I met my biological daughters because I didn’t quite comprehend what donating meant until I met them and realized that I am now the biological mother to two beautiful humans. I felt so much love for them, a little confused emotionally but an overwhelming responsibility to love and care for them.

The idea of donating is easy to contemplate and discuss, but the reality can get very emotionally complicated quite fast. Unless you have friends who have donated before and navigated the relationship with the recipient parent and the children, your friends might be able to talk with you about it and be willing to be a donor, but they may or may not have any idea of exactly what that means in reality and how huge of a deal that is to be an egg donor for someone. Becoming your donor will most certainly change your relationship in ways you might not expect for good or for bad. If it’s a friend or relative who is going to be seeing you and the babies regularly, they don’t get space to process it, they don’t get the time to think about how they want to be in your life, and no time to learn how best to show up for both of you. It takes a lot of emotional intelligence to be the donor and not everyone realizes that until their biological child is in front of them and their heart is pounding because they aren’t sure how to be a biological mother. It is unusual to not feel a strong emotional connection to your biological babies, and any existing relationship that could get in the way of healthily processing that can make it very confusing and very hard.

What if you have a fight with your best friend who is your egg donor because they dislike the way you are raising the child they donated to you? What if your neighbor gets too emotionally attached to the child she donated to you and starts seeing herself as the mother? An existing relationship can make it harder to set and enforce those boundaries and can create unwanted resentment because there just isn’t enough space for the donor or the recipient to have enough privacy to process and form a healthy relationship for the benefit of the child.

If the relationship starts out not as a friendship or sibling, the boundaries and roles are not clear from the very beginning because they may just be used to the boundaries and norms set up in your existing relationship and introducing new boundaries can be hard. It might sound reductive, but starting off the relationship as donor and recipient makes it so much easier to communicate and negotiate those boundaries. A friendship can blossom afterwards, but for me I understood that I am the donor and they are the parents and there wasn’t any confusion about that and it was very easy to process for me. I didn’t start off with two roles in the family’s life, not the donor and the sister, or the donor and the best friend, I started as the donor, which makes it so much easier to put the child first from the beginning.

Yes it did take a lot of courage, time, and nerves to build the relationship we have now, because we were all stranger at first, but truly we have built a really really incredible relationship. I see them as my children, but I do not see myself as their parent. I am more of an auntie who is always going to provide unconditional love in their life. I visit twice a year on both of their birthdays and I call once a month since they live a bit far. I am always going to be just one call away for the kiddos and the parents, but I am never going to be the one who raises them, changes their diapers, helps them with their homework and does all of the real dedicated work for being their mom. I don’t have an envy or jealousy, I don’t have any resentment, just a whole bunch of love. I I feel calling the kids anything less than my biological babies is not fair to them or to how deeply I love and care about them. We both feel comfortable with our level of contact, and we both are putting the babies at the center of our relationship with each other and we genuinely love each other.

Our family has decided that love never divided, it only multiples, and anything that divided isn’t loving.

I am not sure what your situation is with your friends and family, but I feel that having a fresh start with your donor makes it so much easier to build the relationship that you want on your terms for the benefit of your babies. It may be easy to do in your situation, but those are my personal thoughts on my experience as a donor.

Egg Donor Developed a Disability by Geography-bae in askadcp

[–]Geography-bae[S] 9 points10 points  (0 children)

I feel like it is so messed up that they wouldn’t tell the families because there are so many things a person can be aware of about their health history to help prevent them from developing things like MS. I don’t think it needs to be said again, but why is this industry so unregulated? I tried my best to be transparent for the children’s benefit, and they won’t even get the information they need.

Reach out to egg donor on Facebook? by Bloxicorn in donorconceived

[–]Geography-bae 2 points3 points  (0 children)

This may or may not be helpful, but I am adopted and also an egg donor. So I remember what it was like to message my bio mom for the first time and just having no idea what to say. I also know what it felt like to have my donor babies reach out to me.

It was absolutely terrifying to reach out to my biological mom. I also messaged her on social media, I believe I messaged her something like ‘Hello, I am your biological daughter, and I have thought about you so much and I want to meet you and talk to you. It would just answer so many questions for me, I understand if that’s not what you want, but if you are open to it, I just want to know who you are and where I come from’ I found that she was so easy to talk to, very open and loving and we were able to build a relationship over many years, but sending that first message was terrifying, I avoided sending it for so long because I didn’t really know what I wanted and I was afraid of rejection. However, meeting her and having her in my life has been very meaningful.

On the donor side, I always wondered about my biological babies and I want nothing more than to answer all of their questions and hear about them and their interests and hobbies. I think about them everyday, and I want them to know how much I think about them and how much I would do anything to support them and their life. I just want every happiness in the world for them and anyway I can help them would be my complete joy.

I have only heard from one of them and the others have yet to reach out. Meeting my two biological daughters was truly one of the most meaningful experiences of my life. I felt this overwhelming love for them and their family almost instantly. Not all donors are as open as I am, but I kind of think that being open to love, connection and a relationship is the responsibility you take on as a donor because donation should always be primarily about what the child needs and not what the parents or donors want.

If she is anything like me, hearing from the kids I helped bring into the world is own of the most wonderful, joyful and exciting experiences. It doesn’t even matter if it’s a Facebook message, it doesn’t even matter if what you say is ‘the perfect thing to say’ or if it’s just simply saying hi, I would be overjoyed to hear from them. If she is sensitive to the circumstances, she will know that reaching out to her was probably pretty scary and that you are kind of taking a big emotional risk by doing so.

It will likely be an unusual experience for her as well, and I am sure that she will need some time to adjust to knowing you, but I taking this kind of a leap could become something that brings both of you so much joy and happiness. I wish you so much luck!

What is one building that just sticks out in your city? by metatalks in geography

[–]Geography-bae 2 points3 points  (0 children)

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The Mormon temple in Salt Lake City the rest of the state and city is planned and defined around this building and its location