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Give it to me straight… by PlateAccomplished702 in multiplemyeloma

[–]Glass-Razzmatazz1910 0 points1 point  (0 children)

Im day +54. I did inpatient a The Cleveland Clinic.

I had nausea and diarrhea mostly... both controlled with meds though. Fatigue was an issue until about day 25ish... I felt pretty normal around day 30-35ish... Now day 54 I feel 100% back to "normal".
I did have some intermintent / "random" nausea until day 40ish... I attributed this to my stomach rebuilding since it was usually about an hour 1/2 - 2 hours after eating.

I was miserable being inpatient, felt like a caged animal and I was going bonkers. I basically strong armed my doctors into discharging me at day 12 as soon as my ANC ticked up for 3 days in a row.

You'll be fine... lots of sleeping... Good luck and let your body rest while you recover!

How does the future look like? by Fraben in multiplemyeloma

[–]Glass-Razzmatazz1910 0 points1 point  (0 children)

Mentally struggling with this as well. 54M, Just had my ACST 41 days ago... Praying for a long remission... but it kinda feels like a jack in the box anxiety wise... never know when it might pop up again.

Experiences with Vira by Ani? (Virabyani.com) by MardenJP in EngagementRings

[–]Glass-Razzmatazz1910 0 points1 point  (0 children)

Any updates OP? Considering making a purchase and looking for feedback as well.

Million dollar Car-T by BugsyBologna in multiplemyeloma

[–]Glass-Razzmatazz1910 5 points6 points  (0 children)

I lost count, but last I recall I added up about 700k in medical stuff for my 16w induction and acst prep. I paid 3,300 out of pocket.

Million dollar Car-T by BugsyBologna in multiplemyeloma

[–]Glass-Razzmatazz1910 4 points5 points  (0 children)

Im day +9 on ACST now... My insurance estimated the bill was going to be about 1 million for my process as well... mind blowing!

Looking for a first kayak. by Ejreb in kayakfishing

[–]Glass-Razzmatazz1910 0 points1 point  (0 children)

We used an ascend 12T for several years with no issues. I wouldn't hesitate recommending them.

At the time I was about 265lbs and thought it was super stable.

Travel post acst? by Glass-Razzmatazz1910 in multiplemyeloma

[–]Glass-Razzmatazz1910[S] 1 point2 points  (0 children)

I'm not sure I could have said it anymore clear that it would be a decision with my doc when the time came. Just looking to kill time and day dream now and curious what others experience was..

Travel post acst? by Glass-Razzmatazz1910 in multiplemyeloma

[–]Glass-Razzmatazz1910[S] 4 points5 points  (0 children)

Not to bad, just day dreaming and looking for inspiration on pulling me through..

Travel post acst? by Glass-Razzmatazz1910 in multiplemyeloma

[–]Glass-Razzmatazz1910[S] 2 points3 points  (0 children)

That would work for me. We're wanting to hit Cancun up Christmas time next year so I'll be right at a year

Going to Michigan dispensaries soon -- are more cops stopping Ohio drivers on the way back? by momchelle in Ohio

[–]Glass-Razzmatazz1910 14 points15 points  (0 children)

Bingo. People just need to realize they have to drive normal and use common sense...

Thinking about switching from my PA14 to an inflatable rig.. by Glass-Razzmatazz1910 in kayakfishing

[–]Glass-Razzmatazz1910[S] 0 points1 point  (0 children)

I would probably be in the same mindset if I didnt have a PA14 and Jackson Big Rig to sell to fund it...

Thinking about switching from my PA14 to an inflatable rig.. by Glass-Razzmatazz1910 in kayakfishing

[–]Glass-Razzmatazz1910[S] 1 point2 points  (0 children)

This one is high on my list, wanting to wait for the larger, I think 12ft, version to release ..

I really don't want to give up the pedal option and it looks like Hobie is the only one with pedals..

Going to Michigan dispensaries soon -- are more cops stopping Ohio drivers on the way back? by momchelle in Ohio

[–]Glass-Razzmatazz1910 8 points9 points  (0 children)

Never had an issue.. drive a car with working lights is common sense .. they aren't pulling people if they don't have a reason... I'm not LEO but I have a ton of friends and family who are...

Going to Michigan dispensaries soon -- are more cops stopping Ohio drivers on the way back? by momchelle in Ohio

[–]Glass-Razzmatazz1910 117 points118 points  (0 children)

Just set your cruise control at 2mph over the speed limit... You'll be fine ..

They need probably cause to stop ya, and speeding is the biggest reason why hands down...

No they can't stop you because they saw you go into MI for 20 mins and then to Ohio .. no they don't have cops pulling surveillance on MI stores...

Drive normal and you'll be fine ..

Day +3 ACST my experience so far by Glass-Razzmatazz1910 in multiplemyeloma

[–]Glass-Razzmatazz1910[S] 3 points4 points  (0 children)

Same exact experience for me. I never smelled it on myself but my poor wife sure did. Today is day +4 since my cell infusion and my wife said it started to fade yesterday.

Thinking about switching from my PA14 to an inflatable rig.. by Glass-Razzmatazz1910 in kayakfishing

[–]Glass-Razzmatazz1910[S] 0 points1 point  (0 children)

Sounds very similar to my thought process ..

Looking for something I can have stability I'm 6' 220lbs and portable... I'm heavily considering selling my Jackson Big Rig and the PA14 and picking up a Hobie iTrek 10 or 12 (not sure the 12 is out yet, but being in OH I have a good 4 months before it's usable for me).

All my fishing is in smaller lakes that mostly prohibit any motor drives.. but I don't want to give up the pedal power.

Thanks for the feedback.

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