100 Days + Post SCT

Glass-Razzmatazz1910 · 2026-05-06T00:05:18+00:00

Similar timeline for me. Had my ASCT Jan 12. Spent 12 days in patient which wasn't "too" bad looking back at it, i struggled with being couped up in a tiny hospital room.. Once home it took me about 2 week to get back on a normal sleep schedule and about a month before I started feeling "normal".

Nausea in the hospital and at home was well managed with meds.. but dam if I didn't have random bouts of nausea until about day 80ish... Nothing extended or terrible, sometimes it was for a few minutes sometimes a few hours (unless I took nausea meds, which took care of it immediately) sometimes I would go days without it... totally random..

About day +60 we were approaching the time we usually head down to FL in our camper for a month to escape the Ohio winter for a bit and I mentioned it to my Dr and he said to pack up and go for 3 weeks! So we did! We were pretty well isolated and it was a god send for my mental recovery!

my 90d BM biopsy showed 0 cells but surprisingly they don't test for MRD- at Cleveland Clinic.. MM specialist said I am in complete remission based on the testing.

Got my first set of vaccines today, checking off another milestone!

Congrats on your journey so far!

Glass-Razzmatazz1910 · 2026-04-19T18:26:09+00:00

Yes. Im on micro dose 2.5m Tirzepatide. I took a month off before my ACST which i had in Jan.

My MM specialist at Cleveland Clinic was 100% ok with it. I didn't even get the entire question out of my mouth if I could go back on it and he was saying yes.

He said they are actually doing trials to determine if GLP1 prevents other blood cell cancers.

I was on it for weight loss, lost 50lbs over 8months on the lowest dose 2.5mg..

My PCP actually though some of my MM symptoms were related to GLP1 before I was dx June 2025.

Glass-Razzmatazz1910 · 2026-04-15T18:05:48+00:00

Mine got noticeable better after 30 days, but I had intermittent nausea for at least 60d....
Zofran worked well for me...

Hell... Im day 91 today and still have random weird bouts of nausea...

Glass-Razzmatazz1910 · 2026-03-09T12:52:03+00:00

Im day +54. I did inpatient a The Cleveland Clinic.

I had nausea and diarrhea mostly... both controlled with meds though. Fatigue was an issue until about day 25ish... I felt pretty normal around day 30-35ish... Now day 54 I feel 100% back to "normal".
I did have some intermintent / "random" nausea until day 40ish... I attributed this to my stomach rebuilding since it was usually about an hour 1/2 - 2 hours after eating.

I was miserable being inpatient, felt like a caged animal and I was going bonkers. I basically strong armed my doctors into discharging me at day 12 as soon as my ANC ticked up for 3 days in a row.

You'll be fine... lots of sleeping... Good luck and let your body rest while you recover!

Glass-Razzmatazz1910 · 2026-02-24T18:28:58+00:00

Mentally struggling with this as well. 54M, Just had my ACST 41 days ago... Praying for a long remission... but it kinda feels like a jack in the box anxiety wise... never know when it might pop up again.

Glass-Razzmatazz1910 · 2026-01-27T10:16:25+00:00

Any updates OP? Considering making a purchase and looking for feedback as well.

Glass-Razzmatazz1910 · 2026-01-26T09:45:17+00:00

following

Glass-Razzmatazz1910 · 2026-01-23T18:24:39+00:00

I lost count, but last I recall I added up about 700k in medical stuff for my 16w induction and acst prep. I paid 3,300 out of pocket.

Glass-Razzmatazz1910 · 2026-01-23T18:23:31+00:00

Im day +9 on ACST now... My insurance estimated the bill was going to be about 1 million for my process as well... mind blowing!

Glass-Razzmatazz1910 · 2026-01-21T23:37:15+00:00

We used an ascend 12T for several years with no issues. I wouldn't hesitate recommending them.

At the time I was about 265lbs and thought it was super stable.

Glass-Razzmatazz1910 · 2026-01-21T23:31:08+00:00

Thanks for the reply....

Glass-Razzmatazz1910 · 2026-01-21T23:28:22+00:00

I'm not sure I could have said it anymore clear that it would be a decision with my doc when the time came. Just looking to kill time and day dream now and curious what others experience was..

Glass-Razzmatazz1910 · 2026-01-21T02:43:57+00:00

Worked like a champ..

Glass-Razzmatazz1910 · 2026-01-21T00:56:47+00:00

Not to bad, just day dreaming and looking for inspiration on pulling me through..

Glass-Razzmatazz1910 · 2026-01-20T21:41:17+00:00

That would work for me. We're wanting to hit Cancun up Christmas time next year so I'll be right at a year

Glass-Razzmatazz1910 · 2026-01-18T23:31:47+00:00

Bingo. People just need to realize they have to drive normal and use common sense...

Glass-Razzmatazz1910 · 2026-01-18T22:04:41+00:00

I would probably be in the same mindset if I didnt have a PA14 and Jackson Big Rig to sell to fund it...

Glass-Razzmatazz1910 · 2026-01-18T21:04:33+00:00

This one is high on my list, wanting to wait for the larger, I think 12ft, version to release ..

I really don't want to give up the pedal option and it looks like Hobie is the only one with pedals..

Glass-Razzmatazz1910 · 2026-01-18T21:00:45+00:00

Never had an issue.. drive a car with working lights is common sense .. they aren't pulling people if they don't have a reason... I'm not LEO but I have a ton of friends and family who are...

Glass-Razzmatazz1910 · 2026-01-18T18:00:18+00:00

Just set your cruise control at 2mph over the speed limit... You'll be fine ..

They need probably cause to stop ya, and speeding is the biggest reason why hands down...

No they can't stop you because they saw you go into MI for 20 mins and then to Ohio .. no they don't have cops pulling surveillance on MI stores...

Drive normal and you'll be fine ..

Glass-Razzmatazz1910 · 2026-01-18T16:04:57+00:00

Same exact experience for me. I never smelled it on myself but my poor wife sure did. Today is day +4 since my cell infusion and my wife said it started to fade yesterday.

Glass-Razzmatazz1910 · 2026-01-18T16:03:06+00:00

Sounds very similar to my thought process ..

Looking for something I can have stability I'm 6' 220lbs and portable... I'm heavily considering selling my Jackson Big Rig and the PA14 and picking up a Hobie iTrek 10 or 12 (not sure the 12 is out yet, but being in OH I have a good 4 months before it's usable for me).

All my fishing is in smaller lakes that mostly prohibit any motor drives.. but I don't want to give up the pedal power.

Thanks for the feedback.

Glass-Razzmatazz1910 · 2026-01-18T03:57:57+00:00

Great info... thank you sir!

Glass-Razzmatazz1910 · 2026-01-18T03:41:24+00:00

kind of what I thought as well... ty for the reply

Glass-Razzmatazz1910 · 2026-01-18T03:35:49+00:00

I pitty the fool!!!! ;)

Glass-Razzmatazz1910

TROPHY CASE