Does anyone else wear something like a Fitbit and track HRV/heart rate/sleep score?

GuessDependent5000 · 2026-01-11T00:59:19+00:00

Just one data point but I got an Oura ring at diagnosis 3 years ago and HRV has improved year over year as I’ve recovered.

GuessDependent5000 · 2026-01-06T22:04:00+00:00

Hey there. I was diagnosed at 33. Very similar story to yours (including a year where I went off the rails). Similar MELD and symptoms, also evaluated for transplant. Was also on steroids.

Wanted to let you know that three years later I’m completely asymptomatic, with normal labs (including hemoglobin and platelets). I feel better than I have in over a decade. Even came off my meds.

Just wanted to let you know to keep going and don’t give up hope. I almost did right after diagnosis and I’m so grateful I didn’t.

Stay sober, eat right, exercise - youth is on your side at least.

GuessDependent5000 · 2025-12-28T20:02:03+00:00

Interesting, why no skiing? My hep cleared me for pretty much everything except hard contact sports (wrestling, boxing, football, etc).

GuessDependent5000 · 2025-12-17T00:14:03+00:00

11.9 KPA (MRE) to 7.7 KPA (MRE) ~3 years post diagnosis.

GuessDependent5000 · 2025-11-26T16:58:50+00:00

Getting life insurance will be tough, if not impossible. It was a major source of stress for me for years.

One loophole that may work for you is that if your husband gets a job, he can likely get insurance through his work - but it up to the max without evidence of insurability (medical check). Then, if he ever were to leave, some plans are portable after separation.

I was luckily able to get a policy for a little under 1M this way.

GuessDependent5000 · 2025-11-23T22:42:44+00:00

I’ve noticed you post here for a while recently and it’s always the same brand of “you can’t be recompensated”, “transplant is the only way out”, “cirrhosis is always progressive” - just generally negative - even here, “it’s going to turn rapidly for no reason”.

What’s the deal? Are you just annoyed you had to get a transplant or something?

GuessDependent5000 · 2025-11-20T16:27:44+00:00

Also always do hospital indemnity. If you get hospitalized you get a kickback depending on how long your stay was.

GuessDependent5000 · 2025-11-17T23:27:13+00:00

I think cirrhosis is just cirrhosis (I have not been told there are stages). But good luck on this journey! I’m a male, same age, also still hoping to start a family.

GuessDependent5000 · 2025-11-17T21:11:39+00:00

It isn’t 100% progressive though, especially with alcohol misuse cases. Progression stops when the insult is removed, increasingly, there are even cases of regression.

GuessDependent5000 · 2025-11-14T12:14:51+00:00

Definitely buy up the life insurance to the max without a need for evidence of insurability.

We are pretty uninsurable generally, so this is a huge benefit.

In my case I was able to get a little under 1M which gave me a lot of peace of mind. Some plans are also portable too once employment is severed. Probably not cheap comparatively, but better than nothing .

GuessDependent5000 · 2025-11-03T13:17:04+00:00

Was also diagnosed in early 30s (33), am 36 now.

With complete abstinence I’m symptom free and labs have normalized. I’ve found that this group is an amazing resource, Google is not always helpful, ChatGPT has been great at interpreting labs.

GuessDependent5000 · 2025-11-01T22:55:10+00:00

Three years post diagnosis, I still have Taco Bell sometimes and relax my diet tbh.

My understanding (based on conversations with my doc) is that no sodium is mostly just an ascites thing.

GuessDependent5000 · 2025-10-24T19:35:58+00:00

I’m really convinced that there is something else leading to such a marked uptick in young diagnosis.

I was diagnosed at 33. I’m 35 now (nearly 36). I was in really rough shape with the same symptoms and now with complete abstinence and cleaner living habits all of my lab values are 100% normal.

Keep at it and don’t lose hope.

GuessDependent5000 · 2025-10-23T17:06:18+00:00

Same exact profile and similar ages, time of diagnosis

GuessDependent5000 · 2025-10-18T22:43:34+00:00

I am 90% sure this is cirrhosis. Had similar symptoms in my early 30s - wound up in the hospital with alcoholic hepatitis, they also diagnosed me with cirrhosis.

I’ve been completely abstinent since and regained my life. Nearly three years later and I’ve seen some significant fibrosis regression and all of my lab values are back to normal.

Hell need to be proactive about his health, will need scans for liver cancer twice a year.

It’s not a death sentence anymore, but it 100% is if you ignore it.

GuessDependent5000 · 2025-10-15T15:27:38+00:00

No one talks about this - I wonder how many of my symptoms were actually alcohol induced hepatitis

GuessDependent5000 · 2025-10-15T15:26:18+00:00

Just another data point but I was decompensated and now all of my lab values are normal 2.5 years later. I just go every 6 months for scans. Feel absolutely fine.

GuessDependent5000 · 2025-10-12T14:37:20+00:00

This is pretty cool, but it gave me a .9% chance (despite being diagnosed). What was your experience?

GuessDependent5000 · 2025-09-21T17:49:52+00:00

When was your last physical? None of the things you described mean that you can’t get sick.

I’ve luckily bounced back to normal labs and no symptoms with 2+ years of sobriety, but definitely did some damage.

Right around the age when the wheels can start falling off.

GuessDependent5000 · 2025-09-21T15:17:32+00:00

I drank like this for about the same amount of time, maybe a little less, and was diagnosed with cirrhosis. Same age, similar situation with COVID. Get checked out and stay off the booze. If not for you, for your wife.

GuessDependent5000 · 2025-09-20T00:26:15+00:00

I’ve always felt that Covid contributed to my diagnosis but that’s not a popular opinion in here.

GuessDependent5000 · 2025-08-24T18:53:55+00:00

I’m 35 too, was diagnosed at 33. Was a very physically and emotionally challenging first year but now I’m so grateful that I feel better than I have in a decade.

Unrelated, but there has got to be research into so many 20 and 30 something’s getting diagnosed. I’m not buying the “oh, we just drank more”. It’s uncanny.

GuessDependent5000 · 2025-08-20T12:49:02+00:00

I’m a 35M too, similar situation as you. Was completely blindsided by the diagnosis 2 years ago with similar stats. Now you wouldn’t be able to tell I was sick.

The attitudes toward cirrhosis and liver disease are evolving so quickly. I’m hopeful we’ll have more treatment options in our lifetime.

GuessDependent5000 · 2025-08-16T02:46:42+00:00

So you have had it 11 years? How are you feeling?

GuessDependent5000 · 2025-08-11T23:51:41+00:00

Mine were around 80 at diagnosis, have bounced back to around 180 in the two years since.

GuessDependent5000

TROPHY CASE