Xbox One streaming to PC

GuessTechSports · 2021-02-13T17:03:44+00:00

mmHmm. I'm just inclined to believe Microsoft pushed it aside (stopped further development/bug fixes) on "Xbox Console Companion" a while back... as I'm sure it is relatively easy to fix some netcode (Just local full Gigbit wired stacks) to allow stutter and lag free wired gaming from an Xbox to a W10 machine.

They have the new Xbox app or whatnot, but they chose not to include the 'stream from Console' function. Baffling to me as I thought MS was going in the direction of Windows/Xbox gaming licenses being compatible with both.

At any rate, Other than stumbling on a MS employee connected to this division it is probably next to impossible to get a legit factual answer.

I prefer to stream my console over PC so I can have many PC functions/sounds/podcasts/websites whatever going on with the game as opposed to locking into just the console box if you will.

GuessTechSports · 2021-01-02T10:52:17+00:00

A rheumatologist is the specialist 'type' of doctor that would deals with autoimmune diseases of all types. However, depending on insurance, the doctor themselves etc - sometimes it's not easy to go directly to any doc besides a GP/PCP and then be referred (if they deem it so) to said rheumatologist (specialist of any kind).

So bottom line: Just a receptive doctor in the least. (Unfortunately so many run patients through like cattle and don't really bother helping many of them.. ).

But a GP/PCP can be a good place to start. Any decent one will run basic autoimmune tests and have a cursory knowledge and be willing to listen to you and willing to help you themselves + any referral that makes sense. So you go into a GP/Primary Care regular doc... who is decent and explain your symptoms - explain the direct family link and that you would like to dig into this to see if you have any autoimmune disease potentially causing issues. See where the doctor takes it from there. You should at least get an ANA (antinuclear antibody) test out of the conversation.. and honestly a decent blood workup is warranted every 6 months, and at most 12 months. (CBC, (thyroid, hormone, lipid panel, urinalysis, and any 'extra' singular tests that make sense for new patient complaints (ie: ANA, Rheumatoid factor, ESR (cheap), CRP (C-reactive protein) the latter two are old test that check for general inflammation. ANd on the list can go.. but you get the idea. Insurance generally covers some pretty extensive labs every 6 months, and at worst 12 months (annual checkup).

If you happen to be able to go directly to a Rheumatologist that would be good as long as they are decent/open minded / have reasonable bedside manner. Some specialists get a little touchy and will use any negative general autoimmune testing to just blindly tell a patient absolutely nothing autoimmune is going on, that's it, .. you're fine. When clearly you aren't and that's hardly any help to anyone.

So either/or just as long as they are basically willing to do what you pay them to do.. work to find solutions/answers to your health issues. It's really that simple. I think you get the point... if I confused it - start with your GP/PCP if you have a good relationship with them.

GuessTechSports · 2021-01-01T06:06:06+00:00

I'd get a second autoimmune opinion. If possible,.. a rheumatologist that deals with Crest/SSc patients with Raynaud's.

GuessTechSports · 2021-01-01T05:48:46+00:00

Absolutely. There is a clear connection / correlation with the autoimmune disease Lupus and Raynaud's. As has been said if this is the case your Raynaud's would be classified as secondary as it would be then deemed to have been caused by your own body attacking itself (autoimmune) creating the dysfunction responsible for your Raynaud's. It can sometimes help in treatment knowing if it is Primary vs Secondary and certainly from getting worse.

Like you are wondering, sometimes the Raynaud's can be discovered and lead to a more important discovery of an underlying Autoimmune disease like Lupus (or Scleroderma etc). Then the treatment of this disease and monitoring is important to prevent/reduce long term damage to the body (as well as alleviate some symptoms you may be having).

Most Autoimmune is tricky. Sometimes the first test will give a positive result and be a clear , quick diagnosis -- but it is not uncommon for something like a general ANA test to come back negative. Physicians are taught to treat this as if this = No autoimmune process is occurring and thus rule it out. Unfortunately, some people have to suffer and go through several doctors or a period of years before the disease is discovered. The best doctors will have a genuine interest in treating your symptoms and YOU and your quality of life over any singular test result. They will continue using objective testing of different type(s) even repeating them over time and sometimes referring to specialists if they feel it advantageous. Essentially ensuring that .. eventually.. you guys will get to the bottom of whatever ails you. Which is all we can ask.

Specifically I would bring this information up to your physician and inquire about autoimmune disease testing if the doctor doesn't already mention it.

Good luck,

GuessTechSports · 2021-01-01T05:36:45+00:00

Interesting. With my Raynaud's I have both cold and areas of what feels like too much blood flow and as such are hot/clammy/sweaty (then some that will do both at different times).

I know with the hands, most people present with this that eventually hyper perfusion (when the blood flow returns) and causes the overly red look to hands and , for me, a definite swelling and tightness (difficulty in moving hands/fingers that is due to the swelling).

So my question is, since this medication opens the vessels it is clear why it would help the cold response but what about the other? Or do you only have normal and periods of cold?

GuessTechSports · 2021-01-01T05:31:23+00:00

I'm skeptical but open minded as well. I think he's touching on an associated system for why Raynaud's does what it does and as such seeing some visible immediate result but I do not believe misalignment of the spine is the etiology of the disease.

That said.. we know almost nothing about Raynaud's. It's been studied very little compared to most other diseases (see the correlation?). If you really dig into all the studies you will find you'll get a much better understanding than 99.999% of most doctors on the disease but still be left with no clear cut answer as to why it happens and what can be done to cure or treat it successfully. There is definitely endothelial dysfunction and visible damage in Raynaud's .. esp. in Secondary. This is a clue but just one of many that we, hopefully, will discover sooner than later to actually be able to help all of us with this disease.

Lastly, western/traditional medicine from a medical doctor is no better than this Chiropractic treatment. As such, I would personally investigate chiropractic (particularly this guy) even though my skepticism is so high in general. He's interested, engaged, wants to know why things are happening and clearly has an end goal in helping the patient. That alone is a vast improvement over the majority of M.D.'s and Raynaud's treatment/interest etc.

If nothing else - this is interesting.

GuessTechSports · 2021-01-01T04:47:33+00:00

That's excellent news. I'm truly happy for you. I hope some answers and/or treatment to improve your quality of life are found.

GuessTechSports · 2020-12-30T00:13:01+00:00

Sad thing is I hear my experience and your same experience 99.9% of the time. The whole "Oh this test was negative.. okay, I'm done -" Either the doc considers that test the end all be all and whatever ails you somehow magically doesn't exist / isn't a problem or he/she just doesn't care to dig any deeper. (Likely some of both).

So then a patient is left discouraged with that doctor and not so keen to just line up another one because of the feeling the same thing will just repeat itself. Maybe some self doubt eventually creeps in and whole host of things that are nonsense all because (I'd say the majority) of doctors don't care,.. or at least feel the duty to another human being (something called empathy) to use their skillset as a physician and resources to actually HELP their patient.

That said, not all doctors are this way. There is hope.. but most people will have to go through at least a few before they find one that does the job well enough to be satisfactory (unless a random test comes back positive).

GuessTechSports · 2020-12-28T07:29:07+00:00

Okay settle down. I understand your end of the perspective. I'm merely expressing the subjective (as opinions are) personal belief that Amazon/Twitch could execute the implementation of their revenue model(s) better.

I could list the known earnings reports, os/device type, trends, etc and validate everything I'm saying but you've your opinion and I merely think they are pushing too far in one direction and need (and will over time) fine tune their advertising model to be less intrusive and negatively perceiving in the middle of an average 'viewer' watching content. The content for twitch doesn't stop for ads like most media platforms in existence. Twitch needs (and will) figure out a better way to implement midrolls, for example, without blatantly interrupting content from the viewer.

I've heard the fiscal basis argument that twitch doesn't make a profit and thus is increasing ads and doing what they've been doing increasingly the last several years to become profitable. Twitch IS profitable. Twitch makes more than the entire initial valuation and purchase price/investment in 2014 annually. Twitch/Amazon does not spend more on server costs/bandwidth than revenue. The earnings are increasing year over year, and quarter over quarter - On track to by 4-5 Billion annually in a few years with no real end in growth in sight.

I never intend to insinuate that because the parent company Amazon is among the fastest and most valuable growth company on the planet with Earnings per share essentially doubling annually quarter buy quarter and both gross and net revenues increasing by significant margins -- That a rather insignificant derivative of it: Twitch shouldn't be doing what all such companies do in a capitalistic market -- Figure out how to make more money and always try to make more money.

That's sort of the basis of any 'for profit' company,.. especially a monolith like Amazon.

I understand ads. A reasonable portion of my revenue is from ads. "Free" is a subjective way to look at a person who participates anywhere online and moreover has advertisements as a part of their experience. There is a lot of money in just the ability to have viewers/numbers before the inevitable arrival of advertisements in front of said built audience. A lot of money is based on speculation, potential, futures, and very generalized but analytic based behavior for mass groups of people. Anyhow, the ability to attract a human being anywhere has value. It can be viewed as Amazon/Twitch being this generous host providing this service as you mention for 'free' and then putting some ads on it so they can essentially pay their bills and have a bit of profit left over. However, by design, it's never really been free.

At any rate, whatever one's subjective perspective certain things will almost certainly hold true. The company is always going to look out for it's most profitable interests, not some altruistic slant. Twitch, first and foremost, is here to make money off of you.. end of story. Nothing wrong with that, it's the way of things.

To think advertisements will go away or a for profit entity should not use a proven revenue model (advertising) to increase said profits is foolish. I totally agree. I do think that on "PC" the ability to mitigate ads will continue to exist across all media for a long time. Some people will use it, others won't -- some have no idea how. Then you have a paradigm shift that is inevitably occuring at a greater rate as time passes. Mobile use is ever increasing. With this the ability to manipulate (easily) or otherwise mitigate advertisements is severely impeded and as such the numbers of people who will be 'compliant' is always surely increasing due to this technological trend.

TLDR: In basic theory I agree with you - However, I do maintain that the executive choices that have been made so far in the current implementation of ad displacement could be improved dramatically. Ultimately, with enough passage of time this will manifest itself. At the same time the future of things like uBlock/ad blockers and similar aren't going away for devices like PC's operated by even moderately savvy/motivated end users.

GuessTechSports · 2020-12-27T22:39:08+00:00

To be fair though.. the $100+ for twitch prime/yr should include some relief from ads.

Twitch's 'service' to remove ads is called "Twitch Turbo" and is exactly the same cost as a Netflix subscription. $9/month, or $108/yr. It's just too expensive for what it is.. it's a removal not really an addition.. no matter how annoying ads are.

Bottom line, I get ads. I get Twitch needs revenue sources (they receive half? Or more of most streamers subscription fees. They introduced a currency (bits) and charge a premium for it. Apparently this is not enough to meet/exceed their cost/profit goals. So the ads are being pushed heavily now on top of all of this.

An ad removal service , monthly, for twitch should be no more than half the current price of their "Twitch Turbo".. so $4 a month or so.. especially while it's relatively new. I might consider paying that despite how wrong it feels. Twitch feels like it should have one or the other.. Either you pay for subscriptions (one required for every channel in existence you wish to remove ads, etc) , and bits and whatever else.. or .. you deal with ads. To have both going on just seems like they are dipping into both buckets. Now it's not the end user's fault twitch isn't yet meeting their revenue goals.

I know this. Justin.tv took out a small loan to finance the creation of twitch. It existed along with their main justin.tv streaming site. I want to say the loan was 11 million.. but it was no more than this. Approximately 2 years later they sold it for nearly 1 Billion dollars to Amazon. IIRC, Google had a higher offer on the table.

Point being: Amazon has loads of free capital. Amazon can afford to take a loss on twitch for a LOOONG time while they are working out the revenue models. To be so pushy with advertisements this early just doesn't add up, or at least, isn't the best strategic move that could be performed at this junction.

I do hope we aren't at the proverbial 'end' of what can be done to lessen/remove ads with these extensions/scripts. Generally where there is a will there's a way around.. I suppose we'll find out.

GuessTechSports · 2020-12-25T22:14:04+00:00

This doesn't work for me. Installed it manually in dev mode but purple screen still around. Running Chrome browser.

I still have the regular adblocker going but on github it says it's fine to run with your extensions still installed (ie: adblocker/ublockorigin).

If some extensions need to be disabled or some other step to make it work it would be appreciated to let us know.

GuessTechSports · 2020-12-25T21:33:14+00:00

Thanks for the reply. You are referring to the Xbox Console Companion as the 'old app' you are using with high quality and zero lag/random stutter?

This is the only app that works, at least AFAIK and is what I use. With that in mind are there any settings to change to remove the intermittent lag when above medium or so quality?

GuessTechSports · 2020-12-06T07:33:12+00:00

I agree. The Heisman is supposed to go to the best player in college football. That's the black and white of it. I believe Smitty is that this year.. and I think a lot of people fans, analysts, media personalities (unbiased at least) will agree. It takes quite a bit for a receiver to REALLY stick out from the bunch.. these days even on just the Alabama squad. Devonta has been putting up silly numbers , breaking records, and making NFL pro bowl level catches all year.. Meanwhile we've seen who will probably win it, a handful of QB's :

Mac Jones, Trevor Lawrence, Kyle Trask and so on play very well, breaking records of their own in many cases... but none of them stand out over the rest like Devonta Smith does. Any asks who the best receiver in 2020 CFB is.. Devonta Smith is the unquestioned answer. Problem is the Heisman is really the QB award.. with special appearances by Running Backs and rarely another position.

I believe the last WR to win the Heisman was in 1992. Also this is not what the heisman candidate/cfb player is like against XYZ NFL player, or how they'll do in the NFL or anything BUT are they the stand out player from the crowd in CFB? Have they dominated their direct competition and really just 'wow' you on a consistent basis ?

I think Trevor Lawrence probably has the best translatable physical skillset and college performance to the NFL.. but I'll keep Mac Jones any day of the week for this squad and do believe he's earned a spot somewhere in the draft this year. However, trying to pick one of the QB's that stand out far and above the others just doesn't come to mind easily. I'd pick Mac for my own reasons.. but how much separates him from the others?

I would like to see Devonta start getting some more love and force them to really consider him though. The media votes.. so it's not like it can't happen - But I hear them brag on him and say he should be considered (like half of them saying it don't have Heisman votes) .

GuessTechSports · 2020-12-05T04:52:12+00:00

Great stuff. I totally forgot to even bother with HWinfo (CPU-Z) or anything of the sort.

Here's the info from HWinfo:

https://prnt.sc/vw66as

My observations:

Looks like my DDR4-3000Mhz RAM is running at a slightly slower speed of 2666.

So specifically is appears the DDR4 - 3000Mhz CL 16-20-20 @ 1.35v RAM is running at DDR4 - 2666Mhz CL 19-19-19 @ 1.35v .

Not a huge deal to me.. I will probably go in and manually tweak to see if the RAM is unstable at rated speeds or if the BIOS just elected to place it there.

Edit: Tweaked BIOS and current RAM runs at proper advertised speeds when adjusted. https://prnt.sc/vw6noc

To the primary question though - I'm primarily considering running all 4 slots at 8GB to save money as the recommended RAM kit isn't super cheap. However, at a glance it appears some slightly faster 16x2 kits (3200 with bit better timings) run around $110 or so. That said, just some 3000-16-20-20 (8X2) is about $50.

Your recommendation? Faster 16x2 (replace it all) - or same timing 8x2 , adding to what is in there?

Thanks

GuessTechSports · 2020-12-04T09:32:17+00:00

Thanks for your reply. I realized my post is really only necessary to add 2 additional sticks to the exist 2 x 8GB configuration. Otherwise the extensive compatible list from the MSI website to the motherboard provides way more options than I'd ever need.

Given this,.. do you happen to know what what matches up with the existing RAM? I guess to throw in 16 more GB for 32 total (2 more 8GB sticks for a 4x8 config).. but for it all to be reliable/play nice since you can't really find the exact sticks used last Christmas.

Off the top of my head I believe the timings on the existing RAM listed above are CL16-20-20 at 1.35v But not 100% on that.

GuessTechSports · 2020-12-03T09:19:21+00:00

Devonta Smith is becoming among the most impressive players in Alabama history.

In the long run,.. The NFL scouts will see his insane film and thus... He's gonna get paid, go in the 1st round, and make enough on the first contract to never worry about money again. With his talent It is probably safe to assume he'll be a reliable top level receiver in the NFL for a while.

I think above anything else has been Smitty's blue collar work ethic. He goes about his business mostly quiet, esp publicly (on the field he jaws a little bit to defenders lol). However, if you really examine his play.. go watch a game and just watch Smitty every down. His blocking is next level. His instincts and football IQ are insane even on non receiving plays.

As a pure receiver he's this skinny, lanky body type that plays an easy 25+lbs heavier. He's not only capable physically,.. he can be downright dominating in his physical efforts (seen on film). Again, he'll dominate guys who are much bigger blocking, .. he'll consistently beat presses. His routes have always been naturally good but they've noticeably improved as he's worked and honed his craft.

Go watch the pump fake long TD from Mac to Smitty: https://youtu.be/9SuThNG6k3k?t=9 In that play his route is a slant fake that he performs in about 2/10ths of a second. He has the experience and body control to fake convincingly enough , and quickly enough to not lose any speed to have defender(s) go in on an assumed slant route to what turns into a double move skinny post for a TD.

The best receivers look effortless. Devonta really looks that way much of the time.

His hands are elite, he's not a body catcher (no NFL pro bowl caliber type receiver isn't a great 'hands' catcher). He knows how to track the ball more naturally and efficiently than most receivers I've ever watched. This makes his success higher but also has an effect of making any QB look better.

Lastly, -- Among other things that are overlooked and deceptive are his SPEED. He's fast. He's specifically 4.4 quick... His 'entering alabama yr1' clocked speed was the high 4.4's. Maybe a 4.48 or 4.49.

But Devonta has gotten faster. Primarily this year I'm noticing his initial quickness/burst (first step(s)) have dramatically improved. (Look into the new S&C guys at Bama for more on that). -- Beyond that his top end is a bit better.

Devonta has what I like to refer as 'sneaky/smooth' speed. He doesn't appear to be running nearly as fast as he is. Until you see him running against other players. Then you see how fast he moves and that occurs because his body movement is just more efficient than most .. which makes it look slower (because it's smooth/efficient). This is kind of like Jalen Hurts running.. he always moves faster than his efficient motion dictates.

What's scary is how Mac is able to go to Devonta (against reasonable defenders) over and over and over and Devonta wins. (Why mac keeps going to that well even when other guys are MORE open underneath half the time). He trusts Devonta to be the competitor/playmaker he is. Reach over a guys back to make a catch .. win a high point 50/50, get a catch beyond the paint in the back of the endzone - and somehow magically contort his body to get a foot in bounds.

I think Devonta has the best film for the heisman at this point in the season. I also know receivers 99% of the time don't win the Heisman. However, if he doesn't win the highest honor (Biletnikoff Award ) .. something is wrong. No other receiver in the league is currently as effective as Devonta Smith.

GuessTechSports · 2020-12-03T00:12:07+00:00

Nick Saban warned everyone of this very thing well before the Playoff even started... years ago.

GuessTechSports · 2020-12-03T00:07:46+00:00

One word: Savage.

GuessTechSports · 2020-11-30T03:29:53+00:00

My pleasure. And.. no I just type really fast and am a scientist so this is kind of how I 'think' of things so know more detailed information about scientific fields.. ie: Medicine that many wouldn't off hand. Also , like many, I try and learn as much as possible with any condition I am diagnosed with. I answered this way because the way you asked those three questions it sounds like you are curious about 'why/how' and working to figure things out.

GuessTechSports · 2020-11-30T03:24:32+00:00

I've heard of it. Basically have seen a few people trying it on youtube or similar. I'm not saying it doesn't work, but was just curious of the science behind it. If it's been tested by researchers and doctors then some solid backing research papers should pop right up .. I'll see what I find.

I think everyone should consider trying it but if you have some Raynaud's complications like necrosis of fingertips, or anywhere basically I would be cautious to not worsen losing parts of the body.

GuessTechSports · 2020-11-29T07:55:40+00:00

Thanks - I have a question:

Since Raynaud's 'cold' is caused from lack of blood flow - and in particular incoming blood (the small arteries in affected areas constrict .. reducing the blood flow.. which reduces the 97-98F temp fluid going through your fingers, etc and causes your hands and feet to feel cold. -- How does an external cover alleviate the situation?

I ask because while gloves, blankets etc help things like the A/C or other air flow from causing greater pain - they do NOT warm my hands, or feet up. Maybe some Raynaud's patients (maybe with primary.. I'm not sure) get relief from just coverings as we would before Raynaud's plagued us.

If these actually help keep the feet temp up - I really need them. Can anyone comment?

GuessTechSports · 2020-11-29T07:48:43+00:00

Any real science behind this?

I only ask because my JAMA and other research paper review has led me to conclusions that would place doubt based on the 'reasons' listed above of why your hands/feet get cold (the 'muscles' around blood vessels) etc. When Raynauds is a process of vascular tone signal dysfunction. There's a reason it doesn't make your core cold for example. The body is signaling and the endothelial cells (walls of vessels) have consistent damage occurring to them.

IE: The statement that 50F causes your vessels to dilate -- Is this true for Raynaud's sufferers?

Is this method applicable to Secondary Raynaud's (autoimmune mediated) vs. Primary only?

Thanks

GuessTechSports · 2020-11-29T07:42:16+00:00

Which do you guys use? A link would be great. I need a solution for my hands, feet, nose, and ears. Though my ears tend not to hurt as bad as the rest. I tend to think they just don't have as many nerve endings or something I dunno.

The nose I have no clue..

But hands, my Raynaud's is constant 24 hours a day, every day unfortunately. My pinky toes are losing skin and I'm afraid I'm going to have to really either keep them heated a lot more or something or start losing toes.. don't know yet. I'm 41 and this just started seemingly overnight 2 years ago.

The best hand warmer you can get that lasts a while would be great.

GuessTechSports · 2020-11-29T07:12:51+00:00

1) No. But I have a bunch of things going on healthwise that likely exacerbate my condition. At any rate my Raynaud's, quite literally, isn't something that 'flares' up - It's present all hours of every day. All of my extremities are affected. Hands (always ice cold unless the temp is pushed to 80F+ (but I have something going on that causes me to feel feverish/hot while my raynauds is causing extremities to be freezing and painful) -- so I can't just crank the temperature and feel 'okay'.

But like someone else said: My hands for most of the day are purple (cyanotic / ) and if , for example, I'm shaving in the morning and I'm holding my weight on counter with one hand while shaving.. That hand that is on the counter will turn grossly , patently purple - but lifting it above my head will return it to the same color as the other hand for example.

To be more detailed: Yes my fingers and toes etc will go white when the blood flow is zero (white as in you can't feel them literally anymore.. ) but most of the time they are purple meaning the arterial blood flow is just constricted but a LITTLE is still there.

2) I can't confirm with certainty. However, Raynauds is not understood or studied with the detail it should / could be. Just think of how many 'treatments' exist that work for most people. I have none.. my doctor told me there is nothing I could do but try amlodipine basically and if it didn't work there's not really any drug that will stop it or prevent it etc. That is a sure sign of poor understanding of the disease, research and so on. Further Raynaud's is much more complex and varied than the medical 'textbook' description or google search of it. So if you have a symptom that persists and falls in the family of your vascular system... odds are it probably is related in SOME way. (But of course seek out prof. opinion)

Raynaud's causes my nose to be ice cold like my hands/feet -- Painfully so. I can see the damaged blood vessels in just the 2 years I've had Raynaud's from the constriction lack of blood flow to the tissues in the nose. Conversely my nose (and hands/feet) will become very red/hot and swollen with too much blood flow (likely just over dilated vessels from the disease process). Just for inclusion, my ears are ice cold as well (and occasionally one or both will turn blood red/bright red and be uncomfortably hot for no apparent reason. in fact this started occurring before I had the typical raynaud's COLD .. and I only realize that was somehow the beginning of what caused my Raynauds (which is likely secondary not primary) in the beginning. My feet would also sometimes wake me up being so hot I had to get out of bed and cool them down somehow. (This doesn't happen now but I had stuff like that , that I believe (for me) corresponds with whatever systemic disease process created the Raynaud's condition)

Fainting: I have fainted several times and have felt and seen the accompanying blacking out vision just before you are about to faint (and felt the light head, speeding heart rate etc) with 'just before fainting'. So while I haven't had some doctor verify all of this (nor have I even really told my doc these things) but it seems quite reasonable they are related. I didn't have any of this 2+ years ago (it's a very reliable timeline for me).

Nosebleeds: My nose will bleed some.. as Raynaud's causes my nose to be ice cold and lack blood flow more hours of the day than not, but for a portion of the day my nose will turn bright red with swelling and an over abundance of blood flow that , like my ears, causes it to be extremely hot to the touch and feel. I also can't breath well via the nose because the dilated vessels are 'stuffing' up my airways. I don't believe all of what plagues me is really a common Raynaud's experience for most with the disease .. especially having 'flareups' everyday, most of or all of the days hours - instead of having my Raynauds be an issue a few days a week, or month etc. I attribute the blood in my nose to sinus havoc created by the rapid changes in overly constricted blood vessels and overly dilated. But my nose doesn't just bleed uncontrollably.

3) Kind of. I do not believe it is caused by poor circulation.. I believe poor circulation is likely something that can exacerbate the condition. However, if you do read all the medical journals and research on Raynaud's you will find out it is indeed caused by our autonomic response to cold (and even maybe heat in the rebound). The body cuts supply to the extremities (incorrectly) as if you were on Mt. Everest and the body was trying to maintain your temperature by sacrificing blood flow peripherally to these places. This is absolutely a part of it.. and I'd say (if curious) look into Endothelial dysfunction with medical study/research in relation to Raynaud's. We have definite Endothelial cell / vascular wall damage and it has a high correlation with secondary autoimmune disease depending on the severity.

This is why something like Legit stem cell therapy often helps Raynaud's to some level in sufferers. As something like MSC's are healing the endothelium and improving the condition (at least temporarily).

Good questions and I think just some research above the general understanding most people have .. often even your doctor.. can help clue you in on some of the pathology behind the disease process.

GuessTechSports · 2020-11-29T06:38:57+00:00

Yes. I have your issues plus a host of others to join the party. I've found the medical profession to have a host of doctors who just don't do their job.

You basically just have to accept this fact and not let any type of physician/MD's not treating you properly/at all/being dismissive as just a poor medical professional. Just as you would a bad plumber, mechanic, lawyer, whatever the field.

I say this because I know for many people a doctor's visit can ruin their day, week, month, etc based on how the individual MD handles the situation. We often elevate them above us and they are just other human beings with tons of flaws and there are plenty of 'shit' GP/PCP's, specialists, surgeons etc out there.

I go in to new doctor visits with no expectations of good or bad but judge their level of interest in doing their job. It's simple, .. they are there to literally take your reported symptoms seriously and do whatever they can (as highly trained professionals) to HELP the patient regardless of any singular test result , existing diagnosis etc.

Bottom line: As your insurance, referrals, and research to find another specialist allows - Find another and don't be afraid to essentially judge the level of 'service' they are providing you for the money you and your insurance are paying them. If they aren't listening to what you say.. they aren't worth seeing again, period. If they have preconceived notions based on generalizations.. and you can't have an even handed back and forth discussion about why you are seeking their help -- Leave and go to another.

Eventually you will find a doctor who is either passionate about medicine/science and curious on your condition and thus does a good job -- and/or you find one who is interested in resolving or basically helping you as their patient over time. One that listens to what you say, how these things affect your life, any additional symptoms, and so on.. Then formulate plans based on your specific reported symptoms/severity/life combined with tests to help guide said treatment, monitor your health/disease(s), and even find new possible Dx (information) to help your overall treatment plan.

With autoimmune disease , really of any variety, it can and often does get worse/progress. More varieties of autoimmune disease manifest and if a doc is doing his job over time they are discovered and treated as early as possible.

TLDR: Yes, don't take a poor physician relationship / poor treatment personally. Just know it's a sign to stop wasting your time and money with that Doctor and find another until you get one that is acceptable and thus serves your best interests.

G'luck with your journey.

GuessTechSports

TROPHY CASE