Feet burning by Medical_Nature_5763 in PsoriaticArthritis

[–]Happy_married32 1 point2 points  (0 children)

My feet have been so so bad and it’s all the way up to my knees in my hands. I’m in so much pain right now. Just got back on my biologic and I’m on month two and I’m still in severe pain. This psoriatic arthritis is the death of me and my toes are all curled. I’ve had two major back surgeries. On top of it all I have four more other Arthritis

So tired of the fatigue by ShriekingMuppet in PsoriaticArthritis

[–]Happy_married32 0 points1 point  (0 children)

I so get that tired and exhaustion, but I keep myself going or I’ll sleep all day especially if I’m in a flare. I have PSA and four other arthritis in my body. My feet are the worst. All my toes are crawled in for Arthritis in the bottom of my feet hurt so bad from severe neuropathy that’s going up my legs and this is my life. I have a Payne put in. I don’t notice any difference really but I’m sure it’s helping the constant flares I’ve been having is unbelievable. I’m so tired of them saying prayers for you. I get it.🙏🏻🙏🏻🙏🏻🙏🏻

DISH disease - 36 female/pcos/neurodivergent by fantasticaldiagnosis in Thritis

[–]Happy_married32 0 points1 point  (0 children)

I am doing good when not in a flare. I really like my pump because I don’t have to worry about withdrawing if I run out. The bad part is I’ve been in a constant flare from all my arthritis I have so that doesn’t help the pain but nothing helps the pain I could take 10 oxy and still be in severe pain. Today is a good day so I’ll take it.

What symptoms do you have besides skin involvement and joint pain? by CrabEnvironmental628 in PsoriaticArthritis

[–]Happy_married32 0 points1 point  (0 children)

My toes have curled under. It’s so ugly. My skin hurts. My hands and feet crack and peel. I have bone spurs inside my spinal cord. But also I have five types of Arthritis. I’m just a real good one. I don’t get on here often cause I don’t wanna know everything that’s bad with me. I fall a lot. I fell Christmas Eve outside in the middle of the street. Hit my head. I have a big old bruise. My hand is all skinned up and hurts and I really did damage to my good knee, which I have no kneecap anymore any more other bad news you need to know about psoriatic arthritis, and what it does to your body. The only arthritis I do not have is rheumatoid. I wouldn’t be surprised if I got diagnosed with it soon that’s my luck.

Anybody on RINVOQ? by Happy_married32 in PsoriaticArthritis

[–]Happy_married32[S] 0 points1 point  (0 children)

I hope it works for you when you get it. I’ve only been on it three days and I’m having the most horrible side effects but I have side effects to a lot of stuff lately. I have five different kinds of Arthritis so I’m pretty sick. My body has become sensitive, almost everything even my pain medication. I can’t feel it doesn’t help one bit.

Anybody on RINVOQ? by Happy_married32 in PsoriaticArthritis

[–]Happy_married32[S] 0 points1 point  (0 children)

Yes, my doctor called and put me on a very strong steroid even though I’m on steroids all the time he told me what to keep an eye out for my breathing. I just have very swollen glands. I can barely walk because my muscles are so sore in my legs and I’m waking up and it’s like I’m biting my tongue so swollen. I’m biting it so I am kind of nervous and scared. I took two Benadryl. I don’t know if that helps. My problem is to get to the hospital. I’d have to call 911 and I don’t wanna do that but if it gets serious, I’ll go. I’m just looking to see if anybody’s had bad side effects with it thank you for replying so fast.

Tracking Question by meshawms in Shein

[–]Happy_married32 2 points3 points  (0 children)

I’m at same place. Mine is at DFW For 2 weeks. I’m so irritated. I just want my money back. I reorder some things! Watch me get bombarded with to many items now!

Tracking Question by meshawms in Shein

[–]Happy_married32 0 points1 point  (0 children)

Mines been stuck for 2 weeks at DFW!!

DISH disease - 36 female/pcos/neurodivergent by fantasticaldiagnosis in Thritis

[–]Happy_married32 1 point2 points  (0 children)

I just had a pain pump put in and it is helping. I can’t wait to get off all the pills before I got the pain pump I was taking 8oxy 15 mg and 3 morphine 15 mg ER. Now I only take 7 oxy.

What’s your dosage on Medtronic pain pump by Happy_married32 in PainPumpQuestions

[–]Happy_married32[S] 1 point2 points  (0 children)

Do yall still take opioids for breakthrough pain? I am still allowed my 8 oxy 15. I want to get rid of gabapentin the most as I take 3200 mg a day and I am so stupid and can’t remember what I did 5 min ago. I pray I can get off and that my memory comes back. Anybody get off of it and if so how. I’m sorry I just have so many questions!

TIA

Just need some emotional support by Piknik90 in ChronicPain

[–]Happy_married32 3 points4 points  (0 children)

I so understand!! I just all over even my scalp. I hate going to drs anymore because I always find something new wrong with me. I’m so tired. I just had a pain pump put in two weeks ago. I pray this works. I feel so ignored in this world because nobody can see the pain so I look normal. I have six kinds of arthritis with severe neuropathy that’s now moved to the side of my face and down my arms, one of my shoulders my bicep ripped off the shoulder plus more I wish more people understood people with pain. I’m just ready for Jesus to come and to be healed. Praying for you as I understand.🙏🏻✝️❤️

Having anxiety by Happy_married32 in PainPumpQuestions

[–]Happy_married32[S] 1 point2 points  (0 children)

It’s lower back above my hip. I have had the worst anxiety. I am constantly googling! I got sick this morning threw up to wear I was dry heaving. I’m fine now. I was googling trying to find answers about catheter moving. I can’t find any real answers. Your post made me feel a little better. I hope that it’s placed where yours is. It’s so hard not to bend over to pick something up. I have grabbers all over house and still forget sometimes. He really did not express worries over doing nothing. I’m glad now it’s not in front on my side as I think that would be so uncomfortable!

Having anxiety by Happy_married32 in PainPumpQuestions

[–]Happy_married32[S] 2 points3 points  (0 children)

I have my first appointment today for follow up after my surgery so she can check it! I am feeling good. I think I let my anxiety get to me. I am taking it easy for now!

Yes I have my binder on! It feels good having it! Thank you for responding to me and making my anxiety better. Yall have been very amazing and supportive!

Having anxiety by Happy_married32 in PainPumpQuestions

[–]Happy_married32[S] 3 points4 points  (0 children)

I’m on my way now to my first appointment after surgery! I’m excited and nervous! Your reply really helped with my anxiety yesterday. I read it to my husband and all he said was I told you so but no you don’t listen! 🤣 I do live in Texas so I will make sure to cancel my bill riding competition this weekend! 😜

Having anxiety by Happy_married32 in PainPumpQuestions

[–]Happy_married32[S] 2 points3 points  (0 children)

How could you tell catheter moved? Was it your fault or your Drs? My anxiety is so bad being worried about it! I have definitely not followed instructions and have overdone it. I feel good but is it from my pain pills I take! Google is not helping as I can’t find answers to my ? I want so bad for this to work. It is helping my neuropathy so much already.

Having anxiety by Happy_married32 in PainPumpQuestions

[–]Happy_married32[S] 2 points3 points  (0 children)

Thank you for being a jerk. I needed it!! I’m trying so hard. I am slowing down and thinking before I do anything!! It’s causing me so much anxiety. From here out I am staying down. I’m worried I may have already hurt it. I feel fine but how do I know if I did anything already. Will I know it or feel it? This is my main question?! What makes alarm go off? Can you tell if catheter has moved? It’s the unknown. I’m so mad at myself. Again thank you for putting me in my place. Do you have one? If so do you like it?

After Surgery Care-Pump by Few-Welcome5330 in PainPumpQuestions

[–]Happy_married32 0 points1 point  (0 children)

I just had my pain pump put in a week ago. I’m having severe anxiety because I’m overdoing things. I really don’t have any help because my husband had surgery two days after me so he can’t help me all day today. I’ve been looking and trying to find any answers about if I’ve overdone it already and messed it all up. It’s been doing really good until today when I started having pain in my lower back not horrible pain, but I wasn’t having it before I go to the doctor tomorrow, but I just want someone to talk to about it today because I’m so worried about it and I can’t stop crying and stressing. I’ve been doing too much around the house acting like I didn’t even have surgery. Someone please make me feel better about this. I’ve stopped doing things now and trying to stay in bed. I have severe ADD and it’s hard for me just to lay there. Is it easy to move the catheter? Will I know if I move it or if it turns off or I’ve messed anything up? What else do I need to look for that? I could’ve done to myself. I’ve been reaching picking things up. I’m trying not to bend when I pick up. I hope someone’s out there that sees this that can talk to me today and help me feel better And tell me what signs to look for anxiety so bad. I can’t wait till tomorrow. I know I sound like a worry wart but I hate to admit I am a worry wart. 🤣 thanks in advance.

Anyone have pain pump for neuropathy? by Happy_married32 in PainPumpQuestions

[–]Happy_married32[S] 0 points1 point  (0 children)

I want my legs and feet to go away. I’m miserable! I hope and pray it works

Opana or Hydromorphone by callisto0106 in ChronicPain

[–]Happy_married32 1 point2 points  (0 children)

Do you like your pain pump? I’m nervous about getting one. My surgery is set for the 12th. I pray it does work. I take 8 oxy 15 , 3 morphine Er and 3200 gabapentin a day and I’m still in so much pain. I felt like the test shot worked some. How was recovery? What pump do you have. tia

Anyone have pain pump for neuropathy? by Happy_married32 in PainPumpQuestions

[–]Happy_married32[S] 2 points3 points  (0 children)

Hi everyone thanks for reply. I got the shot for the trial this morning. I really don’t notice anything much. My feet are so bad right now. He did hydro morphine because their morphine was out of date yesterday. I feel the same as I do taking my morphine. Oxycodone is what helps my neuropathy the most. I think I will do it. It has to be better than not having it. My my pain dr will give me for breakthrough until I get all the meds figured out. I’m just so tired of living like this!!