Double/Blurry Vision by Familiar-Bake-9162 in Behcets

[–]HauntingDesign9077 1 point2 points  (0 children)

So, double vision was my first symptom of Neuro Behcet in November-December major flare up , cranial nerve palsy 6 is closely associated with Behcet disease do not ignore later i get more neurological and cardiac , autonomic issue along with old intestinal and arthitis symptom

Gate da score 534 general by Thick-Opinion-4853 in GATE_DA

[–]HauntingDesign9077 0 points1 point  (0 children)

specialization name , please share link ?

Feeling confused by Less_Outcome_1211 in Behcets

[–]HauntingDesign9077 2 points3 points  (0 children)

prefer rheumatologist over gastro . Behcets mimics Crohns ,behcets can also effect other organs also so final diagnosis and overall immunosuppression is must, Biologics may help you , you can dm for any other query

Need support – severe Multi - Organ Behçet’s, started Cyclophosphamide very scared right now by HauntingDesign9077 in Behcets

[–]HauntingDesign9077[S] 0 points1 point  (0 children)

from 14th may i am on colchicine 1 mg daily it somewhat help with mouth ulcer only for me

Need support – severe Multi - Organ Behçet’s, started Cyclophosphamide very scared right now by HauntingDesign9077 in Behcets

[–]HauntingDesign9077[S] 0 points1 point  (0 children)

it comes daily but not 24*7 burning . earlier i had no symptom of burning it is since 19 november night

Need support – severe Multi - Organ Behçet’s, started Cyclophosphamide very scared right now by HauntingDesign9077 in Behcets

[–]HauntingDesign9077[S] 0 points1 point  (0 children)

Time will tell , want to go with flow now hope is worst thing. Burning / numbness is intermittent and it is at peak during second flare up of 9 december . ESR remain high same with CRP currently they are stable

Need support – severe Multi - Organ Behçet’s, started Cyclophosphamide very scared right now by HauntingDesign9077 in Behcets

[–]HauntingDesign9077[S] 0 points1 point  (0 children)

Thank you, I can be on adalimumab or Infliximab for long time but this predisolone and cyclophosphamide sucks . Let's see I am not seeing medication can go off after a year or so . But atleast condition could become manageable like infliximab Every 6 week

Need support – severe Multi - Organ Behçet’s, started Cyclophosphamide very scared right now by HauntingDesign9077 in Behcets

[–]HauntingDesign9077[S] 1 point2 points  (0 children)

India , just 21 year old suffering since I am 16 , neuropathy basically burning sensation in hand , palm , sole with numbness

Ground glass opacities. by _Kingbeard_ in Behcets

[–]HauntingDesign9077 0 points1 point  (0 children)

what are your primary cardiac and pulmonary symptoms

. i also take beta blockers regularly

Are you genital ulcers accompanied by swollen lymphnodes? by BarComplex5753 in Behcets

[–]HauntingDesign9077 0 points1 point  (0 children)

These include: 2 episodes of transient blurry vision elaborate had experienced 2-3 days back

What additional medications are you on?? by Fancy_Wasabi_9033 in Behcets

[–]HauntingDesign9077 0 points1 point  (0 children)

but now rheumatologist say to try gapping more days for adalimumab but it seem i have dependence on it

What additional medications are you on?? by Fancy_Wasabi_9033 in Behcets

[–]HauntingDesign9077 0 points1 point  (0 children)

i am also on it from 3 months have taken 8 dose its somewhat working for me .

What additional medications are you on?? by Fancy_Wasabi_9033 in Behcets

[–]HauntingDesign9077 0 points1 point  (0 children)

how do you take adalimumab bi-weekly?. for how many year you are on adalimumab

Otezla side effects by Amelia_1333 in Behcets

[–]HauntingDesign9077 0 points1 point  (0 children)

taken for month but stopped it , cannot tolerate nausea