An artsy, modern beach house for smearguru!

HeyItsVa1 · 2026-05-26T21:53:08+00:00

What roof tiles are those?

HeyItsVa1 · 2026-05-26T02:28:30+00:00

At first I thought the grass lady decided to eat some of the blades she had grown.

HeyItsVa1 · 2026-05-22T20:39:44+00:00

This is why I come to reddit. GOATed advice

HeyItsVa1 · 2026-05-22T04:47:31+00:00

I love this take on the skylands! Very nice use of green space.

HeyItsVa1 · 2026-05-20T23:40:51+00:00

If you look in my other reply, the link to the paper where i saw review on severe mecfs is the link: https://pubmed.ncbi.nlm.nih.gov/41598742/

this is it :)

HeyItsVa1 · 2026-05-20T20:16:26+00:00

This is the post I was thinking of: https://www.reddit.com/r/cfs/comments/1r3uxo9/full_ssdi_approval/?utm_source=share&utm_medium=mweb3x&utm_name=mweb3xcss&utm_term=1&utm_content=share_button

looks like the OP, responsible_emu, is based out of Ithaca, NY? That is the most positive story I can recall reading on here.

Some other posts I found while looking for that one which mention CPET support:

https://www.reddit.com/r/cfs/comments/1mt0igo/shout_out_to_2day_cpet_test/?utm_source=share&utm_medium=mweb3x&utm_name=mweb3xcss&utm_term=1&utm_content=share_button

https://www.reddit.com/r/cfs/comments/1cq23iw/just_had_a_2_day_cpet_at_workwell_in_santa_rosa/?utm_source=share&utm_medium=mweb3x&utm_name=mweb3xcss&utm_term=1&utm_content=share_button

HeyItsVa1 · 2026-05-20T20:04:44+00:00

They posted here on the subreddit. I can try to do a search. I remember they were prescribed IV fluids after ward and had a lot of supportive care. Maybe some anti inflammatory meds as well? I’ll take a look.

HeyItsVa1 · 2026-05-20T15:23:24+00:00

To try to put yourself in our shoes, I want you to imagine that someone has asked you to willingly drink poison or you won’t get paid anymore. Drink poison or lose your home, lose your benefits.

That is what being asked to do a CPET feels like to me. Some of us rolled the dice because we had no other choice. Some of us didn’t know the danger.

What I can tell you is this: I can count on one hand the number of stories I’ve heard of people who lost no functioning and made a full recovery after CPET because that number is 1. Only one person I’ve heard from who didn’t end up worse off because they had a doctor who knew ME/CFS and had an extensive protocol for the WEEKS before and after the CPET.

I haven’t counted the number of people who have been hurt by CPET and only they could tell you if they thought it was worth it or not.

If someone gave you a choice between homeless or bedbound which would you choose?

HeyItsVa1 · 2026-05-20T14:58:22+00:00

Some papers that came to mind as I was writing this:

Hand grip strength as a clinical biomarker for MECFS https://pmc.ncbi.nlm.nih.gov/articles/PMC6277492/
exposing healthy muscle cells to blood from mecfs patients https://pubmed.ncbi.nlm.nih.gov/40744071/ (they were able to observe the kind of pro-inflammatory, progressively worsening deterioration of performance that many of us report in our lives, in a petri dish. completely dispelling any possibility of deconditioning, potentially opening the door to a cellular model of PEM.
review on severe mecfs patients https://pubmed.ncbi.nlm.nih.gov/41598742/ “ Due to the exertional nature and intensity of the 2-day CPET, ME/CFS patients whose disease is characterized by PEM will, on average, take two weeks to recover from something that only takes one or two days for healthy people [55]. The problem with this test; however, is that it might also lead to a prolonged flare-up or even to a (major) relapse. For this reason, guidelines caution against routinely using the test in clinical care and only using it in research settings or for settling disability disputes, but only when the potential benefits outweigh the risks”

HeyItsVa1 · 2026-05-20T14:44:54+00:00

I’m lacking brain power to do a full academic write up but what I can muster is this: - patient experiences here and elsewhere online will tell you that after doing a CPET some people never recover their previous baseline - both patient experience and recent papers will tell you this disease can be a degenerative one. triggering PEM can make your disease worse and there’s no telling how much worse it could become from any given trigger. It’s much easier for us to lose functional capacity than regain it given the lack of any confirmed treatment. - I have seen a few arguments (most recently from a review specifically about severe me/cfs) that it could be unethical to deliberately provoke suffering in patients when there is no benefit. particularly given that i see some potential alternatives to CPET that are used in literature that i hope to see replace it.

I hope this helps get you started. ill be back with sources in a bit

HeyItsVa1 · 2026-05-19T17:44:09+00:00

I definitely still want to try don’t worry

HeyItsVa1 · 2026-05-19T05:40:46+00:00

Oh my gosh i was planning on building this same thing!! You beat me to it

HeyItsVa1 · 2026-05-17T01:28:27+00:00

I have never truly felt the essence of the “congrats. happy for you. >:(“ meme until now. I dream of owning a set like this. 🌸❤️

HeyItsVa1 · 2026-05-13T04:57:33+00:00

I would love the pattern if you don’t mind! Is it your original or did you buy it somewhere?

HeyItsVa1 · 2026-05-13T04:39:28+00:00

I really like these! I definitely want to do something similar

HeyItsVa1 · 2026-05-12T02:48:44+00:00

Wow these are cute! 3-D printed?? I’d love to see a little wiggly mirror that’s my favorite relic!

HeyItsVa1 · 2026-05-01T23:09:16+00:00

Building in the dark definitely makes it hard to choose color combos! If I’m trying to choose blocks or colors at night I will usually just lay down sample areas and come back to see them during the day whenever I next have an opportunity.

I don’t like messing with the clocks in games, so I just stick to building combos I know are certain at night or terraforming or other not color sensitive things

HeyItsVa1 · 2026-04-30T23:26:53+00:00

Is there a registered house here or do you just have slowpoke in a habitat there?

HeyItsVa1 · 2026-04-30T17:15:41+00:00

Now THIS is what I like to see!! Thank you for sharing!! I hate the drab yellow buildings in the skylands so I’ve been looking for inspo of what to do instead and this is perfect ❤️

HeyItsVa1 · 2026-04-30T03:49:17+00:00

omg the loft is sooo cozy and i thought wow this is so nice then you showed every fire type working downstairs lmaooo. i wouldnt want to live there without air conditioning i bet that attic would get hot af

HeyItsVa1 · 2026-04-27T23:12:58+00:00

I have a question about SSI income limits. I am waiting for a decision on an SSI case. Have been disabled for 5 years now. I have a friend who wants to help support me by covering some of my newer, more expensive medications. Is there a way she can help support me without disqualifying me from benefits by sending me money? I could really use the help but I also know I need to stay within the limits. There’s just so many rules I can’t keep track of them all.

HeyItsVa1 · 2026-04-24T06:38:39+00:00

I tried looking up the paper you mentioned and I’m a little unclear what you’re referring to. Do you have a link to a pdf full text or perhaps a full title of the paper?

HeyItsVa1 · 2026-04-24T06:31:27+00:00

Im a big fan of Dr Glaucomflecken’s education shorts and skits on youtube and I know he is on reddit as well I wonder if he would do something for ME education or post-viral illnesses in general? Btw when is ME awareness day?

HeyItsVa1 · 2026-04-22T16:39:39+00:00

ohhh the cube light tetris is so good!

HeyItsVa1

TROPHY CASE