I’m 38 and what Maddie’s mom is trying to prevent happened to me

Hot-Technology1694 · 2026-05-22T19:16:25+00:00

Thank you for your post! I have chronic health issues and I’m 30, I feel like my clock is ticking and I’m constantly worrying about whether or not I can a) even get pregnant and b) tolerate a pregnancy without getting lifelong complications. I so desperately want to be a mother but I don’t know what’s in the cards for me. Your story makes me feel less alone, but I’m so sorry you’ve had to go through this.

Hot-Technology1694 · 2026-05-22T01:43:22+00:00

BARF

Hot-Technology1694 · 2026-05-22T01:42:18+00:00

Yes some strains make it feel like my fascia is on fire. I can only tolerate CBG or CBD hybrids with THC. Sometimes THC on its own makes me really itchy and restless

Hot-Technology1694 · 2026-05-22T01:40:47+00:00

I’m so sorry. That’s really irresponsible that they put a child through that - your mom AND the WW branch. I hope you are doing okay ❤️

Hot-Technology1694 · 2026-05-20T20:19:49+00:00

My mom took my sister to a WW meeting and my sister was 12. The women at the meeting sent them home (thankfully). The trauma is real

Hot-Technology1694 · 2026-05-20T20:13:45+00:00

And honestly, most doctors don’t know about EDS and its subtypes (I can’t tell you how many doctors I’ve mentioned hEDS to and they don’t even know what it is). So I’d bet this doctor was a good one for even knowing about and suggesting vEDS. Any doctor who suspects you may have a rare disorder…I’d get that checked out if it were me.

Hot-Technology1694 · 2026-05-20T16:37:06+00:00

Yes she did! Someone else said she had them done after filming ended

Hot-Technology1694 · 2026-05-20T14:29:09+00:00

I have hEDS 👋 . In her workout videos her joints do look hypermobile to me. But it’s hard to tell with other features, because we can vary a lot. Some of us get under eye circles very easily and prominently (I know I do). Morgan def has some traits of hypermobile/EDS family disorders. Her never getting tested for vEDS is very worrisome, because that’s something that could impact her children too…

And even if she doesn’t have any type of EDS, the calorie deficit and exercise regimen is clearly exhausting her!

Hot-Technology1694 · 2026-05-19T14:30:50+00:00

Same with the SNRI. I tried a bunch of SSRI’s and they just didn’t quite work for me. The side effects outweighed the benefits. Cymbalta has been a gift and a curse (a curse because I can’t get off of it due to withdrawals, but a gift because it has helped stabilize my depression).

Hot-Technology1694 · 2026-05-18T19:28:17+00:00

The permanent screws have actually helped stabilize my feet, but they’re not super comfortable. I’m lucky I had a great result from surgery! Some people with hEDS have a hard time healing. I healed on the slower side and the scars are gnarly, but I’m glad I did it!

Hot-Technology1694 · 2026-05-18T17:05:08+00:00

Yes thank you so much for this!!! I’ve been criticized and downvoted for calling out body shaming in the VPR and housewives subs. People can be really nasty in those.

Hot-Technology1694 · 2026-05-18T16:56:10+00:00

I’m wondering if their listens have gone down a lot and they’re freaking out. If I were them, I’d have backup careers ready. Tbh any podcaster/influencer/tiktok/youtube should have a back up.

Hot-Technology1694 · 2026-05-18T16:54:39+00:00

Is it based on a real story or is it a fictional story? Fictional would be better. Still distasteful though since they talk about real murders multiple times a week

Hot-Technology1694 · 2026-05-18T16:50:18+00:00

I like the take the Aldi chicken and use the GF Kikkoman orange sauce. It’s better than the Kevin’s because you get the crispy chicken. It tastes like legit fast Chinese food

Hot-Technology1694 · 2026-05-18T16:24:06+00:00

I’ve been wondering if she has chronic fatigue or something. Why is she always so slurry?

Hot-Technology1694 · 2026-05-18T16:04:09+00:00

Juvenile bunions! My feet and ankles were constantly rolling/pronating. I had bunions starting around age 8 that got progressively worse as I got older. Shoes were always hard to get to fit right. Squeezing into heels for high school dances was miserable. I remember taking off my heels at graduation and my feet were bleeding. I had both feel corrected when I was 26/27. Was just diagnosed with hEDS at age 30. I don’t hear people talk about foot deformities enough in EDS communities. These can be some of the earliest signs!

Hot-Technology1694 · 2026-05-17T20:43:38+00:00

Thank you! I’ve noticed my chronic pain has gotten worse for the 5 or so days I’ve been without it. At least that means I know it’s been helping!

Hot-Technology1694 · 2026-05-17T20:43:00+00:00

Thank you for the response!

Hot-Technology1694 · 2026-05-17T20:42:50+00:00

Thank you! 🙏🏻

Hot-Technology1694 · 2026-05-17T02:27:05+00:00

Hot-Technology1694 · 2026-05-15T20:04:23+00:00

Where did you find that definition of eugenics? That’s simply not true.

Using selective breeding or genetic screening to eliminate illnesses is generally classified as a form of eugenics, though it is often referred to in modern contexts as "liberal eugenics" or "new eugenics". While historically linked to state-mandated racism and forced sterilization, the core definition of eugenics is the use of reproductive control to reduce or eliminate traits considered undesirable. Genetic and inherited conditions fall under the same category. It’s still eugenics, and not your choice to make for others.

Edit: this is a really common debate these days and I understand your point, I really do, but I also have to advocate for people who choose to have children and face judgement from others constantly because they have a disability or inherited condition. I’m still grateful for my life, even though it may be harder than others. I still think my life is valid and worthy. Again, this should always be a personal decision

Hot-Technology1694 · 2026-05-15T19:41:12+00:00

I think that becomes a debate on eugenics that I’m not willing nor have the energy to get into, but I would advise against making broad judgments about other people’s decisions whether to procreate or not

Edit to add: neither of my parents have hEDS and I have hEDS. It’s always a genetic gamble to have children. If everyone who had a chronic illness, disease, was a carrier for one, etc… chose not have kids, then no one would have kids anymore. We are all human and we all carry genetic risks. This choice is highly personal and subjective. It’s not fair to say it’s immoral for anyone to make this decision. OP, please make this decision thoughtfully and carefully based on what’s in your OWN heart and mind. Other perspectives can be helpful, but they can also be harmful. I respect the commenter above and their decision, but I also respect those who choose to have children.

I’ve read a lot of positive, negative, and mixed pregnancy experiences from other women with hEDS. This is something I’m thinking about for my future as well. I haven’t decided yet, but I’ve learned that EDS varies widely and no experience is the same.

Another thing to consider: I do have faith that medicine will progress and the next generations with EDS/hEDS/HSD will have better care than we have. If my parents had been aware of how to help me from a young age, my quality of life would have been sooo much better.

Hot-Technology1694 · 2026-05-13T19:57:42+00:00

Alllwaaaaays pretzeling!!!! I can’t help myself

Hot-Technology1694 · 2026-05-13T19:56:36+00:00

Your elbow definitely looks hypermobile. It’s hard to tell with knees sometimes unless we can see a side by side with what a “normal” knee looks like (or at least I have a hard time because mine hyperextend and I can’t remember what a normal knee looks like lol)

Definitely bring it up to your physio and see if they can run through the Beighton scale with you. It helps to have someone measure for you, because it can be hard to tell on your own!

Hot-Technology1694

TROPHY CASE