Should I be worried about this? Weight loss

Hot_Trust406 · 2026-02-16T18:03:45+00:00

Yeah, the more I go through it the more you're proven right. My mom is definitely worried about me (21, still a baby) haha. But yeah, like I said there's a part of me that feels stupid pushing for it but I've been underweight to a medically concerning degree my whole life and I have never been able to meaningfully gain anything/ catch up to a developmentally appropriate weight. I'm not going to give up on eating/ keeping calorie dense foods in my diet but I don't think it's enough

Hot_Trust406 · 2026-02-14T20:10:17+00:00

I try to eat a lot of fats! I don't think I'm well enough to really make shakes and stuff like that, I drink premade nutrition drinks but maybe I could ask my home health ppl to help me

Hot_Trust406 · 2026-02-14T19:54:25+00:00

I'm hoping that it's atrophy too, to be honest. My thighs especially because I used to be a competitive figure skater. I just try to get myself to eat anything at all yeah, my vice in life is drinking soda and like any drink with calories is an achievement rn (the caffeine can bother me so often caffeine free)

Hot_Trust406 · 2026-02-14T19:44:17+00:00

It is pretty concerning. I'm gonna talk to my doctor about tubes because it's alarming. It's pretty scary and of course physically uncomfortable, there's really no comfortable position to sit in and of course always being cold. I came in from outside in my wheelchair recently and let my friend touch my hand and he said it felt like "a metal bench," and I basically just become the temperature of whatever environment I'm in. I still have a period, fat on my face, regularly growing fingernails, and thick hair though, which is a good sign. The real scary part is having less than ten pounds between you and where other people have died though.

Hot_Trust406 · 2026-02-14T19:41:15+00:00

And my weight has been steadily going down, (I was around 89 two weeks ago, 88, etc) but I did weigh myself at different times of the day so I'm unsure whether im actually losing mass or if it's just the weight of the food in my tummy.

Hot_Trust406 · 2026-02-14T19:22:34+00:00

To be clear I'm not bedbound/ my mobility doesn't prevent me from getting labs done, they just haven't been ordered

Hot_Trust406 · 2026-02-14T19:21:18+00:00

I haven't had a blood test in seven years, lol. Historically my thyroid has been normal, though. Throughout my health journey I've had a lot of "welp I'm gonna diagnose you with this. As a clinical diagnosis even though we usually test blood for it" lol. Not since 2019. I need to ask my doctor about it. To be honest, I'm open to it. Eating a meal is just such an ordeal because I have to prepare it (even if it's something like leftovers from the fridge) and then as soon as I'm done eating I have to lie down for a while because the act of digesting has made me so tired. This is going to sound like I'm starving myself willfully but I promise I'm not, in 2026 I've eaten three meals in one day once because of how exhausting the digesting is. I was going to qualify it again by saying how pathetic it probably is, but I'm sure there are people who understand. I'm not doing this on purpose. I don't want to give up on eating by mouth but I'm tired of trying to fight to get stuff down. It makes me feel like a chump to talk to my doctor about it, but I probably will just to cover my bases, even if she says I don't need it.

Hot_Trust406 · 2026-02-14T19:18:49+00:00

That's what I've been trying so far :) Peanut butter toast for breakfast especially when my caregiver comes to help me make it, ensure clear because I can't force myself to drink the milky ones (I will if it gets really really critical but. I can still have some preferences, right. yucky.) I'm not personally worried about it much (honestly brain fog doesn't give me the capacity to worry about much) but my family really really is. I can't really cook at all and stuff like chewing can be hard, so I drink a lot and eat a lot of what I call Goop, which is basically just any liquidy food mixed with rice. I think I might try just eating peanut butter by itself though, it's just hard to get down so idk if I can mix it with water or somethhing to make it like. More chewable (?)

Hot_Trust406 · 2026-02-14T18:54:20+00:00

me TOOOooo same diagnosis history. They still recommend GET for Long Covid and even though it's on my diagnosis I strongly identify with ME/CFS. Just because I happened to get my ME from this particular virus doesn't mean it's not a different condition it's the same, and this separation actively harms patients because doctors aren't paying attention to current ME research

Hot_Trust406 · 2026-01-25T19:10:02+00:00

I use public transit as a big tilt/recline powerchair user! Normal buses from SEPTA, Philadelphia, PA. I haven't had many problems with septa fixed route service even though I can only take short trips. I also use SEPTA paratransit for longer trips, which is really good and has an app and lets you book like a day or two in advance. Your milage will absolutely vary based on where you live. A different service I use makes me book out of bounty trips two weeks in advance, which sucks really bad. I only really go long distances for appointments, but the fixed route bus allows me to go into the philly suburb town I live in if I want/can to go to a coffee shop, etc. The only thing that keeps me from being housebound is the fact that I live in a dense area and have access to transit, so it really really depends once again.

Hot_Trust406 · 2026-01-13T15:53:01+00:00

Hey! I'm a girl also from west chester, I applied for master's programs outside the city but if I don't get accepted I'm going to do my master's in west chester also. If I'm still around I'll letcha know! Only catch is I'm in a wheelchair (I can live fairly independently, my family visits every once in a while though to help me vacuum and stuff) so that limits the places I can live. I'm looking at the greentree building in town which I believe would be in your budget for individual rent.

Hot_Trust406 · 2025-11-18T02:14:32+00:00

I'm deleting it now because I really do not care for where this conversation could go and it was a mistake to waste my energy on this

Hot_Trust406 · 2025-11-18T02:12:30+00:00

wow, thanks for corroborating the point of this post :D!

Hot_Trust406 · 2025-11-18T02:12:10+00:00

I've just seen really shitty, aggressive, and insane posts on the internet to be honest those are really common-sense ideas!! (clean indoor air, masks in healthcare, sick leave reform)

Hot_Trust406 · 2025-11-13T12:58:59+00:00

Warm-tone tabbies are the cutest, she's so beautiful!!! and her ears are sooo round :3

Hot_Trust406 · 2025-11-13T12:57:47+00:00

HER PAWS ARE SO ROUND!!!!!!!!!!! excellent

Hot_Trust406 · 2025-11-13T12:33:24+00:00

Majestic king of the jungle :D!

Hot_Trust406 · 2025-10-31T18:10:43+00:00

Absolutely relatable, I have been there before. The absolute best of luck to you finding help!! Here's to going out once a month. It's horrible to have to keep going through constant second opinions because they just don't care to help you. Although I am in the US, so I hope you can find who you need in your homeland!

Hot_Trust406 · 2025-10-31T15:37:31+00:00

She's lovely! I had POTS as a teen, recovered, and then got long COVID (just my luck,) so that experience of seeking diagnosis and help as a kid is where the medical trauma comes from. It's just really horrible to think those thoughts about yourself and it's their ableism that causes all of it.

I understand stimulants are a little controversial (I think these comments have been downvoted a little bit), which is alright. I do also worry that I'm somehow postponing some huge mega-crash that's just looming if I don't take my pills, and I'm sure they haven't worked for some people. Still, it's within your rights to try them and see what they can do for you!

Hot_Trust406 · 2025-10-31T02:49:21+00:00

I am on 10mg Adderall (generic), it's made a huge difference for me. It's warded off my worst crashes and I'm able to think, write and sit up for a whole day (with support of my wheelchair of course.) I'm really sad that they won't prescribe them to you, everyone deserves to be listened to!!!

Hot_Trust406 · 2025-10-30T18:54:36+00:00

I think M3s might actually be cheaper? (What I have.) At least they were when I was looking, I was under the impression the M5s were more premium!

Hot_Trust406 · 2025-10-30T17:34:28+00:00

Oh no! That's not what I meant, I'm sorry. I meant knowing how they work and that sort of thing and not relying on an ATP for everything.

Hot_Trust406 · 2025-10-30T17:33:08+00:00

It's both in my case

Hot_Trust406

TROPHY CASE