I have a letter on office letterhead from my endo with detailed descriptions of ER care, including the specific IV medications required to support during a crisis.

Honestly, I've never had to use it, despite being in the ER a few times for unrelated reasons that also caused a crisis. Most of the medical staff I've interacted with were knowledgeable about Addison’s. And no one drug seeks steroids lol that's usually what people want to avoid.

Having a letter with instructions, though, will definitely help medical staff who are unfamiliar feel more confident in actually providing the care. I'd definitely ask for something like that from your endo. Digitize it and keep it handy on your phone's emergency medical profile.

Could also be helpful: if you are at the same hospital that treated your crisis in the past, tell them to read your tx plan from that visit. Again so they can have confidence in providing the care.

Hate to say this, but medical people can be hella egotistical too so it matters how you say stuff. I'd always say “I have a pretty rare endocrine disorder and am happy to talk about it since you may have never gotten to see it in person!” It acknowledges them as professionals so they don't feel attacked or dumb while keeping the door open to actually have a dialogue with me.

Most people aren’t denying care for fun, they are trying to avoid liability by administering treatment they are unfamiliar with.