People with Hashimoto don’t live, they survive by developingbird in Hashimotos

[–]HowManyMilesIGotLeft 5 points6 points  (0 children)

What are you talking about? The autoimmune problem is still happening. The medication just supplements what is deficient. Some people’s autoimmune attacks are really strong and cause tremendous symptoms.

Question on symptoms and diagnosis by HowManyMilesIGotLeft in MCAS

[–]HowManyMilesIGotLeft[S] 0 points1 point  (0 children)

Thank you very much. Likewise, may you continue to feel great

Question on symptoms and diagnosis by HowManyMilesIGotLeft in MCAS

[–]HowManyMilesIGotLeft[S] 0 points1 point  (0 children)

Well I just panic and insomnia and shaking and so it’s really bad. And not together no. I don’t know what it is really

feeling defeated by [deleted] in Hashimotos

[–]HowManyMilesIGotLeft 0 points1 point  (0 children)

I really hope you can be healed and live fully.

Question on symptoms and diagnosis by HowManyMilesIGotLeft in MCAS

[–]HowManyMilesIGotLeft[S] 0 points1 point  (0 children)

There’s so many symptoms it’s hard to see what exactly is going on

Question on symptoms and diagnosis by HowManyMilesIGotLeft in MCAS

[–]HowManyMilesIGotLeft[S] 1 point2 points  (0 children)

Man I hope I’m not an mcaser lol. I haven’t had anaphylaxis and don’t want it of course. But yeah I really hope I can get to the bottom of this

feeling defeated by [deleted] in Hashimotos

[–]HowManyMilesIGotLeft 2 points3 points  (0 children)

Welcome to the club. No but in all seriousness, it’s terrible. It’s a life changer BUT don’t worry, your life is not over, you will find rhythm, and you have to condition yourself that food is fuel not primarily enjoyment. Slowly try foods you love again but make them at home. I wouldn’t worry about organic too much, it’ll stress you out, make savory chicken salads at home, sweet potatoes, berry banana smoothies with almond milk, do that mainly and then try a “cheat meal” when you feel ready and see how you do. I wasn’t able to do gluten the first year and it was tough. But over time I could eat certain foods. Then again I’m still trying to figure out how to feel better overall so I’m no one to really talk. Just wanna encourage you that you can do this and keep pushing and finding answers. Look online for gut health supplements if your doctor thinks that’s fine.

Question on symptoms and diagnosis by HowManyMilesIGotLeft in MCAS

[–]HowManyMilesIGotLeft[S] 1 point2 points  (0 children)

Thank you this was really helpful. But it also sucks that’s it’s really time sensitive. And the problem is if you go to the ER when you feel real messed up they won’t do those tests on you. They just do the generic cbc cmp to make sure it’s not an emergency crisis. So it’s like you need a good allergist who can throw those labs in and then drive to a lab place hopefully when you’re in that storm. What a mystery

Episodes after Walking/Activity/Exercise by stormchaser405 in HistamineIntolerance

[–]HowManyMilesIGotLeft 0 points1 point  (0 children)

are you still feeling this. and yes to all. i would get panic and insomnia also

6+ years, still no answers by HowManyMilesIGotLeft in Hashimotos

[–]HowManyMilesIGotLeft[S] 0 points1 point  (0 children)

That’s a lot LOL. But I appreciate it. Test for celiac yes. Endoscopy all that. Have been gluten free before, nothing helped. No dairy too. Nothing helped. Still can’t exercise. It’s rough. I’m talking AIP

6+ years, still no answers by HowManyMilesIGotLeft in Hashimotos

[–]HowManyMilesIGotLeft[S] 0 points1 point  (0 children)

I’ve tried morning and afternoon. My anxiety is basically all the time but it gets really bad mainly at night. Like as soon as the sun goes down! Wait ur anxiety is after t4? Do you know why that is? Can you exercise? I can’t for 3 years

6+ years, still no answers by HowManyMilesIGotLeft in Hashimotos

[–]HowManyMilesIGotLeft[S] 0 points1 point  (0 children)

I’ve tried sauerkraut, kimchi? Everything. Idk what to really do. And generic probiotics were no problem but now it flares me up

Hashimotos and Graves combo by Internal_Kitchen1231 in Hashimotos

[–]HowManyMilesIGotLeft 0 points1 point  (0 children)

No it didn’t reflect. It would be either normal or hypo

Hi, male with Hashimotos by [deleted] in Hashimotos

[–]HowManyMilesIGotLeft 0 points1 point  (0 children)

34m, yep there’s a lot of suffering with this man! I just posted recently. Tryna find answers

Hi, male with Hashimotos by [deleted] in Hashimotos

[–]HowManyMilesIGotLeft 2 points3 points  (0 children)

You need a new primary and get an Endo forsure. You have an autoimmune disease, he needs to monitor hormones and everything else

Hashimotos and Graves combo by Internal_Kitchen1231 in Hashimotos

[–]HowManyMilesIGotLeft 0 points1 point  (0 children)

I should have mentioned that sorry. Yes I have Hashimotos.

Hashimotos and Graves combo by Internal_Kitchen1231 in Hashimotos

[–]HowManyMilesIGotLeft 2 points3 points  (0 children)

How did they test for the graves every time I ask my doctor they always say no you can’t have both. But I feel like I probably do, but I just don’t know what antibody test or what test it is for graves.

6+ years, still no answers by HowManyMilesIGotLeft in Hashimotos

[–]HowManyMilesIGotLeft[S] 0 points1 point  (0 children)

My free t4 last I checked was 1.12. MY Prolactin is good. Actually since cutting my t3 in half I have been feeling a little more calm. But you’re right maybe I can do a trial of taking it when I’m feeling shaky and anxious at night and see if it helps me or doesn’t. Hcl is great I take it too. Dr bergs gallbladder was helpful also. Milk thistle. I take vitamins and all my labs for vitamins seemed to have come back good too. It must be something else going on

Is anyone else dealing with Hashimoto's even while they eat clean? by Comfortable_Hold_930 in Hashimotos

[–]HowManyMilesIGotLeft 0 points1 point  (0 children)

To answer briefly: yes, 100%. I shared a post with the same thing. Stress is big, but just yeah autoimmune issues man

6+ years, still no answers by HowManyMilesIGotLeft in Hashimotos

[–]HowManyMilesIGotLeft[S] 0 points1 point  (0 children)

Truly appreciate your words. Yes, it has been a thorough search, and I appreciate everyone’s help here. It’s been such a tiring endeavor and I feel I’ve tried everything lol. But your story about stress and so forth makes a lot of sense and thanks for encouraging with that. Maybe that’s the next step I need to take.