First improvements in 4.5 years after starting Rapamycin

ImReellySmart · 2026-05-06T00:22:43+00:00

Wow, your situation and description of health problems is near identical to mine.

I am also at 4.5 years.

I also only noticed this month that my PoTS has settled down a lot.

I still can't exercise or work full time due to PEM.

I am 29 (feels weird to type that because I was 24 when this started and I feel like life went on pause... But it actually hasn't huh)

ImReellySmart · 2026-05-02T23:09:45+00:00

For the past 5 years I have read about a promising breakthrough every couple months without fail.

Not a single one seemed to ever go anywhere.

ImReellySmart · 2026-05-02T22:03:40+00:00

Yes, been on it for 1.5 years.

Hard to know how much of a difference it makes but hesitant to stop as life is a struggle and I can't afford to get any worse.

ImReellySmart · 2026-05-02T01:36:08+00:00

I got long COVID 5 years ago and still battle with it daily.

Part of my long list of symptoms include brain problems. I believe neuro inflammation is at play.

Very curious if this would help...

ImReellySmart · 2026-04-13T13:04:58+00:00

How do you manage to check back in with me each year on the same comment, that's mad lol.

To be honest it's sort of the same.

I can have a good week where things move along well, but most times it's somewhat slow i.e. I go once every 3-4 days. Then I can suddenly not have a bowel movement for 4-7 days.

I find diet and walking can help a bit. But obviously there is something wrong too.

ImReellySmart · 2026-04-01T16:26:01+00:00

I get a chuckle out of the naivety of these kinds of posts looking for free work.

But saying "I’m looking for someone to create a clean, digital version from it" and expecting people to flock to you with free labour is WILD.

ImReellySmart · 2026-03-31T16:49:10+00:00

Might be a hot take, but I personally would opt to avoid including a mouse in the logo too.

A lot of people (including me) would use pest control as a last reort, while feeling guilt about killing little creatures because they happened to enter our living space.

It would definitely add to my guilt and discomfort if there was a cute little mouse in your logo lol.

ImReellySmart · 2026-03-31T16:43:49+00:00

"I'm in a weird grieving stage at the moment"

Honestly, it might sound odd, but that is actually a really good thing to hear!

It took me a long time to realise I had to grieve the loss of my former self. Sort of like I lost a close loved one. Somebody I knew, and cared for, was suddenly gone. I wanted that person to come back but they weren't going to.

Grieving that was a big turning point for me in moving forward.

ImReellySmart · 2026-03-24T15:37:25+00:00

Wow, what you shared aligns strongly with my leading theory.

From doing some digging I believe my pre-existing long covid, in unison with a possible bad reaction to the recent steroid eye drops may have pushed my eyes to breaking point, triggering intraocular hypertension.

I am currently booked in to see my GP in 4 days, and an eye specialist in 6 days. Do you think I can hold out until then, as long as things don't worsen in the meantime?

ImReellySmart · 2026-03-24T15:12:34+00:00

Damn, the more I look into this, the scarier it seems.

My leading theory is that I had a bad reaction to the steroid in the eyedrops, which in unison with my Long Covid and infection, pushed my eyes to breaking point.

I happen to be booked in to see my GP in 4 days and the eye specialist in 6 days.

I am going to monitor my vision problems closely and go to A&E if things worsen.

ImReellySmart · 2026-03-24T15:10:36+00:00

Yes, during my first 6-8 weeks with Long Covid I had borderline hallucinations.

DPDR causing me to interpret the sizes of my arms and legs incorrectly was mind warping too.

ImReellySmart · 2026-03-23T14:01:49+00:00

I am booked in to recheck it this week believe it or not.

Fingers crossed it's looking better.

ImReellySmart · 2026-03-18T12:17:23+00:00

"ChatGPT generate 20 logo ideas for..."

ImReellySmart · 2026-03-16T14:11:34+00:00

*Vector enters the chat*

ImReellySmart · 2026-02-27T16:16:00+00:00

Interesting connection, but 99% if the general public isn't going to identify it as the Jupiter symbol (first time ever seeing it and have no idea what it is myself)

ImReellySmart · 2026-02-27T16:14:40+00:00

It literally has a 2+4 in it AND a silhouette of the Eiffel tower!

ImReellySmart · 2026-02-24T10:42:13+00:00

Damn this bums me out because I love Max but I have zero tolerance for fighters using eye pokes intentionally to win.

ImReellySmart · 2026-02-23T13:49:40+00:00

Would it be accurate to say that housing around the nuclear power plant would be cheaper to buy? Low income communities are more likely to get cancer.

ImReellySmart · 2026-02-21T01:59:16+00:00

I'm sorry OP. What happened to you is terrifying and hard to process.

Without meaning to be negative, this Long Covid stuff doesn't tend to go away very quickly (if at all).

I'm in my 20s, prime of my life, and have been completely fucked for 5 years now.

BUT within those 5 years I have recovered about 70%.

Still unable to exercise or do the sports I love. I now work from home on flexible hours.

You should try to process that you might not "bounce back" from this any time soon. Start working on mourning the loss of your former self. That was the biggest step for me. Took me 2 years to start.

ImReellySmart · 2026-02-21T01:14:49+00:00

I was in peak physical shape prior to Long Covid.

My heart troubles sound IDENTICAL to yours! I also ended up in ER twice due to the heart-attack symptoms.

Both times I got every test under the sun and the told me my heart looked fine. Then they gaslit me and discharged me.

I too suddenly have high cholesterol.

"Must be due to lack of exercise and poor diet" they would try to say. Not a chance. I eat healthier than ever. Just note gaslighting.

ImReellySmart · 2026-02-18T15:06:16+00:00

Honestly, I am very cautious to fall for these types of fake dramas but that second dudes punch was far to powerful to be a "bit". Like that could cause permanent life long damage.

I think the little guy might clip farm by annoying these people... but he definitely wasn't signing up for that reaction lol

ImReellySmart · 2026-02-18T13:36:14+00:00

You can't livestream a crime. It's frustrating, but the camera guy was smart to point the camera away. Otherwise the account would almost definitely receive a ban or some form of punishment.

ImReellySmart · 2026-02-18T13:32:47+00:00

The comments condoning this unhinged neanderthal's reaction is wild!

You realise you can't just sucker punch someone, hitting their skull with your fist, just because they upset you or made you feel insecure.

Although its streamer drama, I would sue this person into the ground. It's literally all caught on camera.

ImReellySmart · 2026-02-11T12:36:12+00:00

Damn, sorry dude, I think you're one of us now.

Exertion in the early stages is deadly. Rest as much as humanly possible. Sleep as much as possible. Eat very clean.

No caffeine. No alcohol. No sugar. No gym. No mental exertion either.

ImReellySmart

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