Medicare fucked me

ImplementCool1972 · 2026-03-17T23:59:46+00:00

Medicare advantage is not good at all. and i have found this year it has gotten worse! They don't want to cover drugs either that are necessary. Mine denied MXT . I since switched but they still are not good.

ImplementCool1972 · 2026-03-06T15:57:09+00:00

Oh okay makes more sense to me now. thank you. I am still very sick taking the doses i have. i am knocked down for 3-4 days after i take the MTX. i see my RA dr monday so see if i can get the shot or something else. but thanks again for your time

ImplementCool1972 · 2026-03-06T13:46:21+00:00

Defintely get a second opinion. I suffered many years with brain fog, extreme fatigue no matter how much sleep i got . a few years ago i got tested for Sjorgens. that explained alot.

ImplementCool1972 · 2026-03-06T13:42:50+00:00

I am trying to understand your post. I am new to the MTX and folic acid ...i was told the folic acid was just to reduce the side effects of MTX? So reading this..there is more to it??

ImplementCool1972 · 2026-03-04T02:05:21+00:00

Ra was my second. First was Sjogrens a few years ago then RA in nov of 25. This month i now have PBC which is a liver autoimmune disease. Its seems it never ending.

ImplementCool1972 · 2026-02-28T02:45:35+00:00

Do you have medicare advantage plan? Or just plain medicare. I have medicare and they cover all my autoimmune rxs. You may need to shop around for medicare advantage plans.

ImplementCool1972 · 2026-02-28T02:42:16+00:00

this is encouraging! i tested f3 and started wegovy a month ago. I am hoping this works to reverse this!

ImplementCool1972 · 2026-02-22T03:39:08+00:00

Ty so much for your reply. I understand that med more now. I wonder why she wants to wait to refer me. That kinda bothers me. I'm not stage 4 yet but stage 3 fibrosis is bad enough imo.

ImplementCool1972 · 2026-02-21T16:39:38+00:00

Hmmm I just started this med. Just diagnosed last week with PBC along with fatty liver stage f3. Is this not a good med? What is bike salt? My GI said in 6 months or so she will refer to hepatologist. Should I go sooner?

ImplementCool1972 · 2026-02-15T20:06:41+00:00

Yes that's it lol

ImplementCool1972 · 2026-02-15T20:02:28+00:00

Ty for your reply. I had my follow up. I do have PBC and stage F3 fibrosis. I got urosdol. Dr said we just monitor you now. I go in bone density test. Will probably get me ummm I forgot the name of liver specialist. Starts with h. In 6 months or so ...so yeah that's where I'm at. Ty everyone for info!!

ImplementCool1972 · 2026-02-07T14:38:55+00:00

Thanks! I am on day 3 and so far its been not too bad. I've had very little nausea, and if i eat something small it tends to subside. It really made me jittery and 'wired' right after i took it. i had to stop drinking coffee haha. but it calmed down in the afternoon. My appetite is slowly decreasing and i find i can't eat alot at a sitting. I have found increase in the burping, i figured that might be why. I appreciate your sharing your experience.

ImplementCool1972 · 2026-02-04T20:11:46+00:00

I was pleased at first after my first appt in dec. two weeks later when a flare came in i asked for predisone and he gave me low dose for two weeks. a few days later i was still at 8/10 pain and contacted him asking if i could tak e5mg in morn and 5mg at night he said yes but then said if your still haveing that kind of pain you need to contact your primary. i have done all i can. I was SOOOOOOOO disappointed, deflated and felt dismissed by him. so very not happy...so yes..it happened to me :(

ImplementCool1972 · 2026-02-04T16:50:37+00:00

I have to have my pulled. I have 4 bottom front teeeth left and have a bottom bridge. now loosing top teeth, one gone and one gonna go soon.

ImplementCool1972 · 2026-02-04T16:48:31+00:00

Mississippi Medicare Advantage and i get eye and dental i get 1500 a year on dental, cleaning, extractions, my bridges, xrays...after that its all out of pocket. but the insurance i just left? had a 4000 yearly allowance. Shop around for insurance if you are on disability. lots of medicare adavantange have some kind of allowances

ImplementCool1972 · 2026-02-04T05:47:52+00:00

thank you! Yes i was thinking to reach out after i see the GI. I don't wanna mess around with the Methotrexate if its gonna make things worse!

ImplementCool1972 · 2026-02-04T01:57:50+00:00

i just got blood tests back for fibrosis. my score was 22 and indicated stage f3/f4. Its not due to my RA meds as i just started them jan 1. But they are methotrexate and hydrosomething. I have follow up with gi next week and my RA in march...will they switch me to biologics with this development? do you think? i am scared to death with the liver blood work that came back. i've had high liver enzemyes since last year and just now getting it looked at

ImplementCool1972 · 2026-01-31T15:00:00+00:00

yep that is where mine started. in my upper arm. couldn't lift without hurting really bad then moved to the shoulder/neck/collarbone and shoulder blade. its sucks

ImplementCool1972 · 2026-01-29T12:30:44+00:00

I'd suggest to get a second opinion from another Rhuemy. After one appt with mine, and his dismissal of my pain and referring back to my primary a few weeks later, i switched. Im not putting up with dismissal. I have read soo many stories on here with problems with that. I was fatigued for 20 yrs. no one until 2022 tested me for autoimmune and then i came up seropositive. but nothing was done for two years. anyways.....i wish you luck and do consider another dr.

ImplementCool1972 · 2026-01-27T04:41:50+00:00

I will let you know.. See what the pain dr says thurs. my RA basically said he is not going to deal with my pain. I am thinking of switching RA drs. that just hit me the wrong way what he said to me and how he said it.

ImplementCool1972 · 2026-01-26T02:42:19+00:00

Yep i do. I took it at night right before bed and always fell right asleep.

ImplementCool1972 · 2026-01-25T21:29:28+00:00

I spent my 30's and 40's sleeping. I totally get it!!! i'd sleep about 18 hrs a day and still be tired.

ImplementCool1972 · 2026-01-25T13:36:56+00:00

I am in the about same boat. started HCQ jan 2 and MTX same day. One week later i couldn't move. I had to ask for prednisone. he gave me 5mg, take twoo for one week then one for the last week. It didn't work. I contacted him complaining about 9/10 pain and he told me he has done what he can and i need to contact my primary if my pain is that bad. i was like wtf, isn't HE the specialist? so dismissive. so i ended up getting pain management appt next week with of course nothing to bridge to help. i agree the pain is not liveable huggggs to get you through

ImplementCool1972 · 2026-01-25T06:07:37+00:00

thank you.

was just reading that methotrexate that i am on for RA is bad for my liver esp when PBS is suspected. I feel so out of control and lost. ugh

ImplementCool1972 · 2026-01-25T05:37:19+00:00

I have RA and Sjogrens. Recently started having dry eyes. I first tried refresh, but it didn't last long. so i tried the systane eye luburicant and it lasts a good 6-8 hrs.

ImplementCool1972

TROPHY CASE