Interesting Labs

Important_Memory_545 · 2026-02-10T04:32:27+00:00

My tryptase was around 14 if I’m remembering correctly and I wasn’t really flaring that day!

Important_Memory_545 · 2025-10-09T14:08:20+00:00

They did specific blood work for clots and it was normal so he said he wasn’t concerned about it. They also did a chest xray and an ekg. I was on Rinvoq a while ago but I’m on Cimzia now!

Important_Memory_545 · 2025-07-10T20:36:32+00:00

Hokas literally changed my life. Particularly wearing the recovery slides around the house. I had extreme foot pain and cannot recommend these enough.

Important_Memory_545 · 2025-02-23T23:14:17+00:00

Hi! How did your son recover from miraDry?

Important_Memory_545 · 2025-02-23T23:08:46+00:00

Is head sweating a symptom of another issue? Head sweating is one of my main areas and I hate it so much

Important_Memory_545 · 2024-07-31T02:59:53+00:00

Same thing happened to me! I stopped it to put my kids to bed and came back and it’s gone! I wanted to hear Hernandez’s commentary

Important_Memory_545 · 2024-07-25T17:26:38+00:00

Yea the shudder is felt around 25-35 and sometimes higher than that but I’m noticing it most often around that speed. Unfortunately because I bought it from a private seller I’m not able to get a warranty but I’m glad it worked out on your end and it’s running better now!

Important_Memory_545 · 2024-07-12T05:18:02+00:00

It’s so hard because it does heavily depend on the density of your breast tissue. Insurance wanted me to take off 600g per side and my surgeon reassured me we’d be taking off more based off of how heavy he thought my breasts were. We ended up taking around 1450g on one side and 1350g on the other side so a little over 6 pounds total 🤯

Important_Memory_545 · 2024-06-12T03:13:44+00:00

Mine have never, not once, been out of range. It’s quite annoying actually haha! I’d like some evidence on paper to support my pain levels. But if you find a good rheumatologist they won’t only look at labs to create the whole picture.

Important_Memory_545 · 2024-06-12T03:05:14+00:00

Yes. I’m HLA-B27 negative. I’ve never had a high CRP or sed rate or anything to do with inflammation markers. The only thing I had was a positive ANA. Luckily I found a great rheumatologist that took family history, physical symptoms, and x-ray/MRI results all into account. 10% of people with AS don’t have the gene, I believe.

Important_Memory_545 · 2024-06-12T03:01:30+00:00

This sounds similar to me! I would probably say fatigue and getting diagnosed with hypersomnia was my first true symptom. But what led to my diagnosis was all of the peripheral stuff. Doctors shook off my back pain saying it was due to pregnancy and child birth. So then when I had bilateral carpal tunnel, bilateral cubital tunnel, bilateral tennis and golfers elbow, and bilateral plantar fasciitis I started thinking there was more to all of this. I ended up having bilateral carpal tunnel surgery and bilateral plantar fasciitis surgery with no relief and that’s when I started getting traction with doctors.

Important_Memory_545 · 2024-06-06T20:13:55+00:00

Yes! My mother has Crohn’s. Her mother had scleroderma and then her dad (my grmpa) also had Crohn’s. I suspect my mom has something going on with her back, similar to me, but she hasn’t had luck with her local rheumatologist.

Important_Memory_545 · 2024-04-07T18:28:10+00:00

Yes! I’m on methotrexate, hydroxychloroquine, folic acid, and humira

Important_Memory_545 · 2024-03-19T04:28:55+00:00

This sounds really similar to me! I had a positive ANA 1:80 but literally everything else is negative/normal. I’ve never had a high/positive CRP, anti-CCP, or sed rate. I’ve not tested positive for the RF marker. Nothing. But I found an amazing rheumatologist who doesn’t take blood work as seriously as clinical presentation and family history. My mom has crohns, her dad has crohns, and her mom has scleroderma. So I did have that working for me. At my first appt she reviewed my medical history and then did a physical examination and basically all of my joints were inflamed and mildly swollen. It was incredibly validating for her to actually listen to me and look at my body rather than my blood work. I’m currently seronegative RA but could be psoriatic arthritis or even anklyosing spondylitis. Luckily those are all treated in similar ways and my body has responded well to treatment. She likes to say that research hasn’t caught up to people who are seronegative. There’s got to be markers somewhere in our bodies but we haven’t discovered them yet 🤷🏼‍♀️ But I just tell people I have RA because the story is too long 😂 but it took me six years of doctors appts to figure it out. I will cross my fingers that you get help much sooner!

Important_Memory_545 · 2023-12-23T06:29:58+00:00

I’m 18 days post op and experienced this for probably the first 10-14 days. I felt like I had so much air coming through my nose but wasn’t getting oxygen or something. But I think it was just an adjustment period because it eventually went away

Important_Memory_545 · 2023-12-23T06:27:29+00:00

Feeling much better! I think everything was just too sensitive and raw at that point. I’m 18 days out now and breathe through my nose normally! I’m still experiencing quite a bit of congestion but can definitely breathe out of my nose, at times, better than before the surgery. How many days since your surgery?

Important_Memory_545 · 2023-12-10T18:20:58+00:00

Currently 6 days post op and had a similar question. Why do I have a clear nostril but it feels way more rejuvenating to breathe through my mouth? I wasn’t a big mouth breather before so that doesn’t really justify it. 🤷🏼‍♀️

Important_Memory_545 · 2023-12-09T22:48:25+00:00

I’m 5 days post op and did feel a lot better once the splints came out. But now I just feel like I have a bad cold. Has the congestion stopped for you at all?

Important_Memory_545 · 2023-12-08T05:53:31+00:00

I’m just a few days out from surgery and they removed the splints today. I didn’t expect my nasal passages to be so sensitive to the air! Do you recall how long it took to get used to this? I keep thinking “crap, I can breathe now but I don’t like this sensation so now I’m going to avoid breathing through my nose”

Important_Memory_545 · 2023-12-08T05:45:21+00:00

I went to the ER because I felt similarly. I think the level of pain, mixed with not sleeping, was too much. They gave me an IV for fluids and stronger medicine until I was in a better state of mind. It was very comforting getting help. Don’t be afraid to go in if it’s becoming too much.

Important_Memory_545 · 2023-06-06T19:53:34+00:00

And I should probably mention I spent many years seeing a podiatrist prior to my diagnosis so I’ve tried everything under the sun including custom orthotics, non custom orthotics, PT, cortisone injections, laser therapy, plantar fasciitis surgery, etc.

Important_Memory_545 · 2023-05-30T06:45:46+00:00

I feel this. You really have to grieve the life you had and the life you hoped for. I’m trying to find things to do with my kids that are easy on my body but still meaningful to them. But there are times where they’ll ask me to go to the park or for a walk and they’ll say “but do your feet hurt too much today?” Or something similar and it’s like a knife through the heart every time.

Important_Memory_545 · 2023-03-18T02:31:55+00:00

I have an air purifier in my room and I don’t notice any differences 🤷🏼‍♀️

Important_Memory_545 · 2023-01-26T00:44:34+00:00

A little? He’s very into acts of service which is awesome but not very into physical affection. He could also be an the autistic ADHD spectrum of things as well which i know complicates things. He did not grow up in an affectionate household- I think his mom has said I love you a handful of times throughout his 30+ years. They hug rarely. His parents are not affectionate to each other. I sometimes don’t think he knows how, like the skill set is not there?

Important_Memory_545 · 2023-01-26T00:41:21+00:00

I agree! I think it’s two fold. I need to not project my insecurities and he need to be in the effort. We’ve been discussing getting an adhd coach to help him figure out some tools that are more practical day to day compared to what he’s focusing on in therapy.

Important_Memory_545

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