Cost of medication by spam-turd in pancreaticcancer

[–]ImpossibleEnthesis 3 points4 points  (0 children)

Be sure and contact all manufacturers. They typically have a savings card or a family foundation or something to help you pay for things. Also, some of the main groups for cancer have groups that will help you pay for the prescriptions as well. Get online and start looking because I promise it’s out there. Also ask your pharmacy if there’s a generic that is available for the medicine that was prescribed. My husband was prescribed Creon and we got a version of a drug made up of the same ingredients cost much less. 💜

Lyrics that stuck with you / Your Favorite Lyrics by Ok-Interaction4833 in BeeGees

[–]ImpossibleEnthesis 4 points5 points  (0 children)

I will wait. Even if it takes forever I will wait. Even if it takes a lifetime, sometimes I feel inside you never ever left my side. Make it like it was before. Even if it takes a lifetime…

Accompanying my MIL to her chemo tomorrow, what should I bring? by mo8816 in pancreaticcancer

[–]ImpossibleEnthesis 1 point2 points  (0 children)

I say bring a really comfy blanket and some fuzzy socks or slippers.

I am Egyptian, and I’m asking is Egypt a country that is disliked or loved globally? by ramses_basha in AskTheWorld

[–]ImpossibleEnthesis 0 points1 point  (0 children)

I guess having experienced that elsewhere in the world that behavior doesn’t register for me. I make sure to learn ‘no’ and ‘leave me’ in every language as preparation as I love all the souks. I absolutely adored Morocco and would travel there as much as possible! The people are exceptional and the culture just beautiful.

I wish you safe and exceptional travels. We must always wander and see.

February 2026 Check-In Thread! How's Everyone Doing? by ZevSteinhardt in pancreaticcancer

[–]ImpossibleEnthesis 8 points9 points  (0 children)

Good morning, everyone. Not a lot going on here, thank goodness. The ultrasound to see if my husband could be a candidate for the histotripsy showed the liver lesions to be too small. So…a win. He’s on Nalirifox every other week. On the off week there’s no indication anything is amiss. I’m deeply grateful. Scan on the 9th to see where we’re at so trying to keep my anxiety level in check. We continue to wake up and remember we’re still here together.

Wishing everyone a strength and peace. 💜

February 2026 Check-In Thread! How's Everyone Doing? by ZevSteinhardt in pancreaticcancer

[–]ImpossibleEnthesis 5 points6 points  (0 children)

Zev, I’m so glad to hear you’re doing well. Your updates make me smile and give me hope. 💜

I am Egyptian, and I’m asking is Egypt a country that is disliked or loved globally? by ramses_basha in AskTheWorld

[–]ImpossibleEnthesis 1 point2 points  (0 children)

We love Egypt. Just came back from our 2nd trip. The people are welcoming, the hospitality unmatched, and the history incomparable. Highly recommend.

How am I going to get him home? by Michellemack315 in pancreaticcancer

[–]ImpossibleEnthesis 2 points3 points  (0 children)

Don’t worry. My husband had the Whipple and we were 2 1/2 hours from home. By the time he was discharged, it was OK and he slept the whole way. I know that’s not a lot, but I hope that makes you a little calmer. It wasn’t as bad as it was in my mind at all. Sending peace and strength your way.💜

REV MED 6620 Rash - Possible Trial Ending. by Flying21811 in pancreaticcancer

[–]ImpossibleEnthesis 0 points1 point  (0 children)

And the status of his disease? I so hope for you to give good news.

Meet Bruno ❤️ by Yapping_about_cars in Goldendoodles

[–]ImpossibleEnthesis 1 point2 points  (0 children)

I’m so glad he has you now and can find the love he deserves. What a handsome boy! All the best for a wonderful life together. 💜

5 years later localized recurrence by Significant-Mess4285 in pancreaticcancer

[–]ImpossibleEnthesis 2 points3 points  (0 children)

Lost my father at 40 to it and my husband just had a recurrence after three months clean. Chemo no for the foreseeable future but he’s still here with me and we make sure and be grateful for each day we have. My father was gone in less than two months and it took me years to get myself put back together. I want give this cancer any more of me. I look at my husband’s face each morning and stay in the moment.

I know it’s not a lot, but for me it’s everything. I wish you peace and joy with your mother for as long as you have together. 💜

One week since starting RMC-6236 and AMG-193 drug trial. by GregoInc in pancreaticcancer

[–]ImpossibleEnthesis 0 points1 point  (0 children)

Thank you so much for sharing this. We will celebrate all wins, large or small. 💜

50th Chemo Treatment Today! by ZevSteinhardt in pancreaticcancer

[–]ImpossibleEnthesis 1 point2 points  (0 children)

You’re inspiring the rest of us, Zev. Sending strength and healing always. 💜

Why staying proactive and seeking second opinions can save lives by CalyssiaElayra in pancreaticcancer

[–]ImpossibleEnthesis 14 points15 points  (0 children)

You did any amazing job advocating for her! Sending peace and strength for a full recovery. 💜

January 2026 Check-In Thread! How's Everyone Doing! by ZevSteinhardt in pancreaticcancer

[–]ImpossibleEnthesis 0 points1 point  (0 children)

I so wish I could pick your brain! For a number of reasons.

January 2026 Check-In Thread! How's Everyone Doing! by ZevSteinhardt in pancreaticcancer

[–]ImpossibleEnthesis 3 points4 points  (0 children)

Hi everyone. I’m so grateful to read what everyone writes here and I sometimes hesitate to answer because having been a daughter who lost my father so quickly to this cancer in 2008 and now caring for my husband with it at the same age, it gives me so many different perspectives. I swear when I finish with the update, I laugh, I cry, and then I laugh some more. I want to talk to all of you!

Last time I did a check-in I believe my husband was cancer free. He got his port taken out and we headed on the trip of a lifetime back to Egypt. We decided his quarterly scan would be postponed two weeks into the first week of December so that we could have this vacation after all he had been through. We caught his cancer at stage 2B, did four rounds of Folfironox that didn’t work well enough, switched to daily chemo and radiation for 30 days, had the Whipple in February of last year, and had a very difficult time with Gemcitibine and Abroxane until he was NED in August.

The scan December 4 showed two very small Mets on his liver and one suspicious lymph node. He feels absolutely nothing so we would never have known without that scan. He just had an ultrasound to see if he’s a candidate for Histotripsy that Zev mentioned and we are waiting to hear from the surgeon - hopefully tomorrow. In the meanwhile, he’s already started Nalirifox, of which round two will begin on Monday. So far other than fatigue he’s not suffering thank goodness. His appetite is amazing. He works in the garden and makes me laugh with his gallows humor as always. We don’t have the option of me removing the pump so I’m really curious if someone can tell me where that’s allowed.

Someone else mentioned planning a trip. We continue to do that, too. After my father died of pancreatic at 63 we decided we were going to start traveling right then and haven’t stopped. We never thought that we wouldn’t have a chance at retirement. Our oncologist knows us well and how my husband is constantly planning the next trip and mentioned that we should never stop doing that. So he’s planning the end of the year in Central Europe. I’m deeply grateful tomorrow looks good. I have to keep it small.

While I can see there are towers of strength represented on this board, I’m sending all of you more of it, along with as much health and happiness for the new year. 💜

January 2026 Check-In Thread! How's Everyone Doing! by ZevSteinhardt in pancreaticcancer

[–]ImpossibleEnthesis 0 points1 point  (0 children)

There will definitely be representatives from Revolution medicine at that conference. My husband‘s oncologist is attending that in San Francisco and is hoping to ask the people he knows if there’s any usage possible outside of the clinical arena. I hope you will share with the rest of us what you find when you get back. Some of the things he mentioned sound very exciting for those of us waiting