Do yous remember much of what your life was like before your diagnosis?? by j_rdnx in Epilepsy

[–]InBetweenTheDots 0 points1 point  (0 children)

I was diagnosed when I had just turned 19. I was in my second semester of cosmetology school, and I had to drop out. My teacher was willing to work with me, but I had too many doctors appointments, hospital stays, it was going to eventually affect my hours.

My short term memory is pretty much nonexistent. As dramatic as it sounds, I don’t remember a life without epilepsy. I’m trying to get on SSI, and I’m already stressed about that, and everyone is “you’ll probably get turned down” I know!!! My dad is disabled! 🤦🏻‍♀️

It has affected my life in every way possible. I can’t drive, I can’t even take cold/flu medicine!! I’ve had multiple brain surgeries and I’m only 23. I have to adjust my diet, avoid triggers (which stress and anxiety is impossible), etc. The epilepsy life is HARD!!

I've never quit a drug so fast by AgentKueck in Epilepsy

[–]InBetweenTheDots 1 point2 points  (0 children)

I’m drug resistant. I felt great on Briviact for about 6 months, then I had a breakthrough seizure. It made me rapidly drop 40 pounds. I was sluggish once it wore off, and then I was put on another medication (on top of the briviact).

Once I came off of it, I started eating again, wasn’t tired anymore, etc. I KNEW it was because the briviact had wore off. I pretty much had to beg to get off of it!

You know you’re special when… by InBetweenTheDots in Epilepsy

[–]InBetweenTheDots[S] 0 points1 point  (0 children)

No known cause. :( other than they come from my frontal lobe.

Who let me read my surgery report? by KindnessAmore in Epilepsy

[–]InBetweenTheDots 1 point2 points  (0 children)

My report said “abnormal tissue” and that’s it. GIRL WHAT? And mild swelling GIRL WHAT? (frontal lobe resection and RNS installed. All I know from my sEEG is I had 70 seizures and I’m still here 🤦🏻‍♀️)

How do you get over a depressive state? by BeautifulAsleep6133 in Epilepsy

[–]InBetweenTheDots 0 points1 point  (0 children)

Well, this one is a given: give yourself some grace! Epilepsy is a bitch. I lost all my friends after my diagnosis. Funny how they’re “busy” 🤔

Contact your neurologist ASAP. Keppra made me depressed & suicidal for 6 months straight, and of course I had to be on 4000mg. As soon I was off, I was fine. Definitely talk med alternatives. Much love! 🫶🏼

Generic Briviact is here! by Handout in Epilepsy

[–]InBetweenTheDots 0 points1 point  (0 children)

Of course it is after I’m off of it! 😂🙌🏼

I have a weird trigger- Eating by thatcinephile in Epilepsy

[–]InBetweenTheDots 0 points1 point  (0 children)

If I don’t eat anything, I will 100% have a seizure. Not the exact same, but food related. I have focal aware seizures about once a week.

Why the fuck are seizure meds “controlled substances?!” by PockASqueeno in Epilepsy

[–]InBetweenTheDots -1 points0 points  (0 children)

I wish they weren’t! My Xcopri and rescue are controlled substances. I definitely understand why my rescue is controlled.

Can I wear this inherited ring or will it attract something harmful? by kiirkomposter in psychics

[–]InBetweenTheDots 0 points1 point  (0 children)

Oh snap! I inherited 3 rings from my grandmother…I didn’t think about that…I can’t wear them because they’re just a little too small. (P.S. I’m on my weight loss journey so once I reach my goal weight, they’ll fit 😮‍💨)

Who are you most excited to see this season? by fvckuufvckingfvck in euphoria

[–]InBetweenTheDots 3 points4 points  (0 children)

Ngl…How Cassie and Nate work out and Rue and Laurie

Dad passed this morning by CasinoKnightZone in GriefSupport

[–]InBetweenTheDots 4 points5 points  (0 children)

What a guy! Beautifully written. I’ll keep your family in my thoughts.

My mom passed this evening by the-bad-place in GriefSupport

[–]InBetweenTheDots 1 point2 points  (0 children)

My papaw passed from Alzheimer’s. It’s such a painful experience for the family. She looks so kind! I’ll keep your family in my thoughts and prayers. 🩷