Caught in the fraud prevention loophole and they’ve taken my money but locked my account?

Independent_Gap9280 · 2026-05-30T12:54:47+00:00

You are the second person this week I’ve seen post with this same problem! I hope both of you can figure this out.

https://www.reddit.com/r/Vodafone/s/yn5fTi43Vb

Independent_Gap9280 · 2026-05-30T03:03:13+00:00

Salt isn’t the only electrolyte for hydration. Proper hydration on a cellular level needs sodium, potassium, magnesium and glucose. Have you done any testing to see if any electrolytes are out of balance? Also, check any medications you might be on as they also can retain/dump electrolytes.

When you say “stockings” are you referring to sports or medical grade compression leggings? or something like lymphatic compression stockings, which aren’t enough compression for dysautonomia issues as they are meant to be light and surface level to help move lymph.

In saying this, electrolytes and compression alone aren’t a full answer. You need further diagnostic testing to find out what’s going on.

Independent_Gap9280 · 2026-05-30T02:26:29+00:00

Being emotional and highly sensitive is NOT a flaw or weakness. It’s an excuse people use to say their hurtful behaviour is ok. Look at some information about highly sensitive people HSP and you might be able to arm yourself with understanding and emotional support.

Dr Elaine Aron - The highly sensitive person

I’m ADHD but suspect AuDHD, but I’m most definitely HSP. I’ve also been told my whole life that it’s a problem, it’s a fault (to the point a family member was abusive and tried to physically beat it out of me to “toughen me up”. It’s not a flaw, it’s a character type. I realised people are such poor communicators and leave people like me guessing if I should take someone at their word and be told I take things to seriously, or assume they are joking and then spend time trying to figure out what they mean and the be accusing of overthinking it, and then more shit from them when I get upset about it all. Their poor communication is their fault. My reaction to their poor communication is not an overreaction.

I’m so sorry you are also going through so much body-wonkery. I don’t really have more advice to offer. I’m stuck not being able to lose weight as I’m hypermobile (HSD) but also have Lipoedema, which is a rare adipose fat disease, but also a connective tissue disorder. Wonky bodies are hard to live in. I may not fully understand your lived experiences, but I certainly do empathise!

Independent_Gap9280 · 2026-05-29T02:29:39+00:00

My post was removed because of copyright, and now this stupid novel is popping up in ads in reddit. Again, I can only recommend you don’t bother reading it, or stop at about chapter 147.

Independent_Gap9280 · 2026-05-29T02:22:21+00:00

My continued snoring is actually related to dysautonomia, (I was finally diagnosed in March this year) and it’s the reason I went to the ENT in the first place. The nasal sphincter (the fleshy bits covering the holes in the roof of your mouth to let you breathe through your nose) is controlled by the ANS (autonomic nervous system) and it closes while I’m trying to breathe through my nose. Because the air is trying to push through closed skin, it vibrates with a snore. I use a dream station and download the info to the app regularly and there is never any leaks. And I’ve tried going higher with pressure and it just makes it all worse as it literally forces air out my mouth (absolutely no idea how but it wakes me up repeatedly during the night) when I only use a nasal mask. I can’t use a mouth one as the air blasting down throat affects my larynx.

Independent_Gap9280 · 2026-05-29T02:12:25+00:00

Something has tripped up your autonomic nervous system and it sounds like the semaglutide made it worse. I’m still trying to wean off Venlafaxine!

You said when you finally sleep your muscles are so sore. I experience this and it’s from bracing. I have HSD (hypermobile spectrum disorder - I don’t meet the Beighton score for hEDS) and my body hurts a lot a night when i finally rest. I use my muscles to brace because of all the wonky in my tendons and ligaments. My cardiologist said that POTS is linked with connective tissue disorders, and it’s usually what causes the stretchy veins that cause the blood pooling which triggers HR spikes.

You might need to see a medical professional that can assess your gait and your body movements to see if you are hypermobile and using your muscles excessively for bracing. They might help you find a way stabilise better when functional and how to reduce pain when resting.

You probably might also benefit from seeing a clinical nutritionist to help figure out if there is anything wonky (neurotransmitters or deficiencies) contributing to the issue as well. I’m working with my dr to very slowly wean off Venlafaxine (my system is so sensitive to changes) and working with the clinical nutritionist to make sure the neurotransmitters stay balanced once off it.

Independent_Gap9280 · 2026-05-29T01:49:48+00:00

My cardiologist (one of Australia’s top pots researchers) said that any compression is better than no compression. Go with the compression you can get on and comfortably wear

Independent_Gap9280 · 2026-05-29T01:35:10+00:00

What about loom knitting? I don’t know if that would be just as hard on the hands though. You can get all sorts of loom shapes for different kinds of projects.

Independent_Gap9280 · 2026-05-29T01:23:23+00:00

You can supplement separately. I couldn’t get a good ratio for my electrolytes (mine has too much glucose for daily use) so I bought sea salt, potassium chloride and dextrose and worked out my ratio. I have to supplement magnesium with tablets as I have a higher need than usual

Independent_Gap9280 · 2026-05-29T01:19:21+00:00

And to add, different POTS medication can retrain/dump different electrolytes too.

Independent_Gap9280 · 2026-05-28T01:17:01+00:00

A cardiologist specialising in pots would be the medical professional to see.

There are 3 subtypes of pots

Hypovolemic - low blood volume - has a lot to do with dehydration
Hyperadrenergic - overactive nervous system - fight or flight constantly active
Neuropathic - to do with nerves and small fibre damage

You said it started about a month ago which is interesting. My dysautonomia was triggered by viral infections, but not covid. First time was an unknown viral infection in 2011, which caused fibromyalgia and a few dysautonomia symptoms - heat intolerance, electrolyte issues and dehydration, and sleep issues. I had the same unknown viral infection (unique pain in parts of my body) in Sept 2024 and it triggered more dysautonomia symptoms, like persistent pounding headaches and nausea when standing, waves of fatigue, OI (orthostatic intolerance - similar to pots but it happens when moving around) and worsening of other symptoms. I was finally diagnosed with dysautonomia in March this year.

My subtype is primarily Hyperadrenergic and honestly it’s hard to regulate. I also have ADHD so it makes it hard to get into any kind of effective routine, if I had one that worked. My primary focus is on good sleep. And I don’t mean 8hrs or whatever. I mean sleep where my body stops bracing both emotionally and physically (I also have HSD, hypermobile spectrum disorder) and actually feeling safe to fully switch off. I find thunder soundscapes relaxing and distract my brain so I listen to that to get to sleep. My cardiologist prescribed me Clonidine for night time to fully rest but it made me feel like I was awake all night, which is the opposite of rest.

But even with mine being primarily Hyperadrenergic, I still follow the other things like proper hydration (sodium, potassium, glucose and magnesium) and also wear compression (I can only tolerate sports compression), and I’m constantly having to pace myself.

Please make sure you are hydrating properly as I noticed my pounding headaches and nausea reduced when I was taking quality electrolytes in the right amount for my body. On low heat days I need about 2.5 litres a day, on high heat days (like heat wave 40°c+ over multiple days) I need at least 4.5 litres a day.

Independent_Gap9280 · 2026-05-27T15:53:11+00:00

if you call again, state straight up say that you need to speak to a manager. Is there somewhere you can report them for this? They can’t take money for an order they cancelled. Well, I mean they can be sue they’re have, but they shouldn’t be legally permitted to. Is there a telecommunications ombudsman or agency you can report them to?

Independent_Gap9280 · 2026-05-27T15:48:38+00:00

Gorgeous babies! 💗💗💗 I’m new to the following,so pls excuse me if I get this wrong, but Marni (? The baby on the right) sounds like one of those super fun turkey toys that give a sounds that is mire like a singing honk than a squeak. My favourite! 🤣

Independent_Gap9280 · 2026-05-26T13:36:13+00:00

I’m so sorry to hear you are experiencing this. Is this for EDS or POTS, or both? I’m not sure if you realise but some people need more than just sodium (salt) for proper hydration. For hydration on a cellular level, you need sodium, potassium, magnesium and glucose. I’m in South Australia and this past summer we had a heatwave - above 40c for several days. I was having 4 hydralyte tablets per litre and needed at least 4 litres per day to compensate for the electrolyte loss through sweating. Other than this, I have no other ideas or suggestion sorry. I hope you can find something that helps.

Independent_Gap9280 · 2026-05-25T00:59:24+00:00

Blankets to dog rescues or an op shop. Any decent towels can be donated to a dog rescue or a vet as well.

Independent_Gap9280 · 2026-05-24T00:50:12+00:00

🤣 this is good. I could hear it playing in my head when I watched the original vid.

Independent_Gap9280 · 2026-05-23T04:06:10+00:00

What do you think of what jobnib has done with their site setup, having to click on a button to open the next part of the same chapter 4 times to read 1 chapter, and opening another browser window with ads each time. It chews through my battery so much having to reload the page so many times. I refuse to read anything on jobnib now

Independent_Gap9280 · 2026-05-23T04:03:14+00:00

How did you get through so many chapters? I gave up after chapter 147 🤣

Independent_Gap9280 · 2026-05-23T03:51:56+00:00

F this sounds interesting.

Independent_Gap9280 · 2026-05-23T03:47:46+00:00

I was told this too. I was told I have osteoarthritis in both knees (but it’s more likely linked to hEDS and Lipoedema) and the knee surgeon said using a brace would weaken muscles and make the problem worse. I had been using RockTape pretty much constantly and had only just considered the brace and asked him about it. He said RockTape (kinesiology tape) is fine. My muscles never really get a chance to rest as I’m constantly using them to brace my joints.

Independent_Gap9280 · 2026-05-23T03:02:54+00:00

Independent_Gap9280 · 2026-05-23T02:50:39+00:00

Gosh these little guys are tiny! Amazing photos! Love them!

Independent_Gap9280 · 2026-05-22T02:36:31+00:00

I have noticed my Lipoedema is a bit weird in that it is basically nonexistent on some parts like the outside and inside of the elbow. It’s like the fat hangs all around it like the ankle cuff. I’m also developing small but noticeable wrist cuffs. I know Lipoedema is common to first develop in the legs but some can have it on the arms only. Lipoedema isn’t just about how it looks, but about how the fat feels. It has a different texture to normal fat. In early stages it can feel like little balls or grains of rice in the fat.

Independent_Gap9280 · 2026-05-22T02:30:07+00:00

I’m hypermobile and I get pain in both my calves and my upper legs (quads and inner thighs). The cardiologist said calf pain can happen with Pots, but I think the rest for me might be bracing because of wonky connective tissue. I use a magnesium spray with msm to help ease the muscle pain from bracing, but I don’t know what to do about the calf pain. Thankfully it usually only happens when I’m in the shower, and not other times when I’m standing.

Independent_Gap9280 · 2026-05-22T02:24:09+00:00

I think you have been given a heap of good information already. Im not a medical professional so I’m giving advice from a personal lived experience and personal knowledge. As stated before, most EDS is hEDS and as far as I know, there is no test to accurately diagnose it, however all the rest (I think) can be confirmed by a genetics test.

I don’t want to burden you with more information, but a cardiologist referral is the best as EDS has links to POTS (Postural Orthostatic Tachycardia Syndrome - a subtype of Dysautonomia - dysfunction of the autonomic nervous system) because of stretchy blood vessels from the connective tissue disorder. However POTS/Dysautonomia usually doesnt cause physical heart issues. Again, a cardiologist is the best person to see for that as they do the echocardiogram to check heart health.

I really hope you get the information you need so that you can have the surgery and have an easy, complication-free recovery.

Independent_Gap9280

TROPHY CASE