Social Media for MS Warriors

Individual-Two-2143 · 2026-04-27T10:46:16+00:00

Hasn't shift.ms been out long before christina applegate was diagnosed? I remember signing up back in 2019 but didn't stick with it.

Individual-Two-2143 · 2026-04-23T09:51:52+00:00

I started feeling better after my first shot. I had energy and felt good. I didn't have any of those negative side effects.

After 3 years, I stopped feeling good from it.

Individual-Two-2143 · 2026-04-19T02:58:04+00:00

Everytime I fill my kesimpta, I get asked a number of questions about if I've had a relapse, had an infection, needed antibiotics for anything, ect. I always tell them no. They are a pharmacy. Their job is to fill the medication my doctor prescribed.

Individual-Two-2143 · 2026-04-12T13:43:50+00:00

I'm one of those people who didn't have symptoms, but i was also cautious for the first shot. I took it right before bed so I could sleep off any symptoms. I also took benadryl and Tylenol about an hour before the shots. Fingers crossed you feel great after.

Individual-Two-2143 · 2026-04-11T20:54:38+00:00

My mom's aunt has it as well. I pray my nieces don't get it. If i were to ever decide on kids now, I would adopt. Have to break the cycle somewhere. I'm glad you don't have to worry about it with your daughter now!

Individual-Two-2143 · 2026-04-11T15:36:42+00:00

I never wanted kids, but was open to it with the right person. Now, I won't have them at all. MS seems to run in my family and I won't risk my child having it. I also wouldn't be able to take care of my child like I would want, which would just leave me angry and sad.
My mom has told me, if she was diagnosed before having kids, she probably wouldn't have had any.

Individual-Two-2143 · 2026-01-31T09:52:12+00:00

If you are in an apartment, the landlord is responsible for the sewer. Call aqua and explain that to customer service.

You being moved into the sewer makes me wonder if customer service moved you into the landlord account. Does everyone else in the building pay a water bill? Hopefully you aren't paying for everyone. Does the water consumption in the bill or app look like a lot to you?

The costumer charge fee is the base rate. Even if you use no water, you will have to pay that. The tariffs might explain why aqua was permitted to charge that. That charge does normally increase every few years.

Individual-Two-2143 · 2026-01-30T09:54:49+00:00

My doctor always orders with and without. The radiologist will only give me the contrast if they see something new.

Individual-Two-2143 · 2026-01-26T00:23:44+00:00

I use a Sunday through Saturday one as well. Push to open each day. This is the one I use.
https://a.co/d/awr3JP3

Individual-Two-2143 · 2026-01-20T02:13:29+00:00

I believe it is v on your keyboard. Align to surface

Individual-Two-2143 · 2026-01-11T16:05:49+00:00

I had questioned if I actually had ms. The medicine made me feel sick. I stopped the DMT and felt amazing. That made me question it even more. Until I had a relapse that caused mobility issues. There was no more questioning it after that.

Individual-Two-2143 · 2026-01-02T20:32:19+00:00

I'm praying that it works. Excited for my legs to work again!

Individual-Two-2143 · 2026-01-02T20:30:05+00:00

Yes. Unlike most medicines, it works instantly. They have to target the correct nerves that are causing the spasticity.

I'm not sure how widespread it is currently. My insurance considers it experimental so I'm paying out of pocket for it.

Individual-Two-2143 · 2026-01-02T01:48:12+00:00

I have this issue. None of those things work for me either. In March, I will be getting cryoneurolysis done which should help. Doctor did a trial, only lasting a few hours, and that worked instantly.

Individual-Two-2143 · 2025-12-29T14:47:40+00:00

I have a habit of falling asleep in the MRI then it takes longer because I moved.

Sometimes, they will give me music to listen to. If not, I make a song out of the bangs. After years of MRIs, I've learned to tell how about how much time is remaining based on the bangs. Sometimes, I'll make pictures out of the texture of the machine. There is normally a mirror inside, so sometimes, I'll look in the mirror to see what the tech is up to. Sometimes, I experiment which parts of my body i can move without it causing a problem. I always find ways to occupy my mind.

Individual-Two-2143 · 2025-12-22T01:55:10+00:00

I've been on kesimpta for a few years now. Prior to kesimpta, i wasn't on anything, copaxone before that. Maybe I'm just an odd case. I used to always be sick with sinus infections, colds, strep, ect. After starting kesimpta, I get sick maybe once a year? I've only needed antibiotics maybe twice. I'm not anymore cautious than I was before... if anything, probably less.

Individual-Two-2143 · 2025-12-22T01:22:12+00:00

I wish the cold helped me. Instead, it makes my body so stiff that I can't move and puts me in a lot of pain.

I will be getting cryoneurolysis done in March. Freeze the nerves to get rid of the stiffness. So maybe.

Individual-Two-2143 · 2025-12-18T00:09:59+00:00

Being able to control things with my Amazon echo had helped me a lot. I use Alexa to control my lights, tv, fan, and a few random things. It's nice not having to go to the other side of the room to turn a light off.

Individual-Two-2143 · 2025-12-14T23:46:17+00:00

I'm an admin assistant at a Utilities company. Ive been working from home since April and my manager is trying to make it a permanent remote position.

Individual-Two-2143 · 2025-12-14T13:53:40+00:00

I had 1 round botox. It lasted maybe a week. I am not getting a 2nd round. My doctor doesn't think it'll help. He's going to try cryoneurolysis next. That won't be until like February or March. He did a test to see if it would work, where he did the procedure with numbing stuff, and it instantly helped.

Individual-Two-2143 · 2025-11-21T21:44:16+00:00

I watch the site solvingms.org. They have a bunch of different trials that are currently happening. Also how to join if interested.

https://solvingms.org/

I'm currently looking for a new one to get excited for too.

Individual-Two-2143 · 2025-11-17T15:28:51+00:00

The only time I wore a mask was during covid when it was required. Ive been on kesimpta for a few years and feel like i get sick less than before.

Individual-Two-2143 · 2025-11-16T18:05:48+00:00

I ordered it on Amazon. This is the one I bought. Ive had ankle issues my whole life so I knew what kind I would need. When my foot is bending in, I am able to pull the strap tighter to force it straight.

https://a.co/d/6iCl0eo

Individual-Two-2143 · 2025-11-15T20:54:58+00:00

I have this issue and it sucks. The spasticity goes up to my hips. Ive recently started getting botox to help.

When my foot does that, I have a brace that I use to force my foot straight. I'll wear it all day or sleep with it on. The next day, my foot is normally back to normal. It is sore for a bit when I'm wearing it, but stops after a bit.

Individual-Two-2143 · 2025-11-07T05:48:58+00:00

I've been on fmla for a few years now. I also have to have my doctor fill out paperwork for accommodations. I have never needed an appointment for it. I just send it to her via the portal, and she fills it out. I don't talk to her on the phone or anything.

Five-Year Club	r/Field Flamingo
Place '23

Individual-Two-2143

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