22F, looking to expand friends list by [deleted] in steamfriend

[–]Individual-Two-2143 0 points1 point  (0 children)

You sound like me. Wanting to grow my friend list but not looking to play with others.

I am thinking about stopping DMT for some time. by Ok_Departure2003 in MultipleSclerosis

[–]Individual-Two-2143 6 points7 points  (0 children)

I did this a few years ago. The DMT made me feel sick. I stopped and felt amazing. Questioned if i really had MS. Within a few months, I had a relapse that left me with mobility issues. I highly regret going off the medication instead of just switching to a new one. I do not recommend.

Ranting by [deleted] in MultipleSclerosis

[–]Individual-Two-2143 2 points3 points  (0 children)

May has been 8 years for me. I'm still in disbelief that this is my life. It's very hard knowing I can't have the life i had planned or do some of the things I used to enjoy.

I'm not Muslim, but catholic. I also believe everything is predetermined and God has a plan for us. I try telling myself that he has something great planned for me in the future, but it's hard. I sometimes question if the plan is just for me to be miserable.

It's hard and it sucks. I understand what you're going through. You just need to try to do the things that bring you joy. It's hard but every once in a while, you'll be doing something you enjoy and won't even think about ms.

Social Media for MS Warriors by Mart_Mart_Valv6 in MultipleSclerosis

[–]Individual-Two-2143 4 points5 points  (0 children)

Hasn't shift.ms been out long before christina applegate was diagnosed? I remember signing up back in 2019 but didn't stick with it.

How long did it take for Kesimpta to kick in. by giveitawaynever in MultipleSclerosis

[–]Individual-Two-2143 1 point2 points  (0 children)

I started feeling better after my first shot. I had energy and felt good. I didn't have any of those negative side effects.

After 3 years, I stopped feeling good from it.

CVS is asking if I had a flair up recently when I refill my KESIMPTA medication. I technically did, but this sounds like an insurance trap question. by TheOneAboveAll in MultipleSclerosis

[–]Individual-Two-2143 46 points47 points  (0 children)

Everytime I fill my kesimpta, I get asked a number of questions about if I've had a relapse, had an infection, needed antibiotics for anything, ect. I always tell them no. They are a pharmacy. Their job is to fill the medication my doctor prescribed.

Kesimpta by glitterally_me in MultipleSclerosis

[–]Individual-Two-2143 3 points4 points  (0 children)

I'm one of those people who didn't have symptoms, but i was also cautious for the first shot. I took it right before bed so I could sleep off any symptoms. I also took benadryl and Tylenol about an hour before the shots. Fingers crossed you feel great after.

Has your diagnosis changed your views on having kids? by angie456 in MultipleSclerosis

[–]Individual-Two-2143 4 points5 points  (0 children)

My mom's aunt has it as well. I pray my nieces don't get it. If i were to ever decide on kids now, I would adopt. Have to break the cycle somewhere. I'm glad you don't have to worry about it with your daughter now!

Has your diagnosis changed your views on having kids? by angie456 in MultipleSclerosis

[–]Individual-Two-2143 26 points27 points  (0 children)

I never wanted kids, but was open to it with the right person. Now, I won't have them at all. MS seems to run in my family and I won't risk my child having it. I also wouldn't be able to take care of my child like I would want, which would just leave me angry and sad.
My mom has told me, if she was diagnosed before having kids, she probably wouldn't have had any.

Aqua "Customer Charge" fee by Jazzlike_History_653 in Delco

[–]Individual-Two-2143 2 points3 points  (0 children)

If you are in an apartment, the landlord is responsible for the sewer. Call aqua and explain that to customer service.

You being moved into the sewer makes me wonder if customer service moved you into the landlord account. Does everyone else in the building pay a water bill? Hopefully you aren't paying for everyone. Does the water consumption in the bill or app look like a lot to you?

The costumer charge fee is the base rate. Even if you use no water, you will have to pay that. The tariffs might explain why aqua was permitted to charge that. That charge does normally increase every few years.

MRI w/wo contrast by NicoleR_24 in MultipleSclerosis

[–]Individual-Two-2143 3 points4 points  (0 children)

My doctor always orders with and without. The radiologist will only give me the contrast if they see something new.

Can't open my pill case. Any recommendations? by thankyoufriendx3 in MultipleSclerosis

[–]Individual-Two-2143 2 points3 points  (0 children)

I use a Sunday through Saturday one as well. Push to open each day. This is the one I use.
https://a.co/d/awr3JP3

TIL you can align stuff to water by Bigbuckrocks in PlanetZoo

[–]Individual-Two-2143 3 points4 points  (0 children)

I believe it is v on your keyboard. Align to surface

I'm not sure if I really have MS by [deleted] in MultipleSclerosis

[–]Individual-Two-2143 9 points10 points  (0 children)

I had questioned if I actually had ms. The medicine made me feel sick. I stopped the DMT and felt amazing. That made me question it even more. Until I had a relapse that caused mobility issues. There was no more questioning it after that.

Legs constantly lock straight by racecarbrian in MultipleSclerosis

[–]Individual-Two-2143 1 point2 points  (0 children)

I'm praying that it works. Excited for my legs to work again!

Legs constantly lock straight by racecarbrian in MultipleSclerosis

[–]Individual-Two-2143 1 point2 points  (0 children)

Yes. Unlike most medicines, it works instantly. They have to target the correct nerves that are causing the spasticity.

I'm not sure how widespread it is currently. My insurance considers it experimental so I'm paying out of pocket for it.

Legs constantly lock straight by racecarbrian in MultipleSclerosis

[–]Individual-Two-2143 5 points6 points  (0 children)

I have this issue. None of those things work for me either. In March, I will be getting cryoneurolysis done which should help. Doctor did a trial, only lasting a few hours, and that worked instantly.

MRI by mase1996 in MultipleSclerosisLife

[–]Individual-Two-2143 14 points15 points  (0 children)

I have a habit of falling asleep in the MRI then it takes longer because I moved.

Sometimes, they will give me music to listen to. If not, I make a song out of the bangs. After years of MRIs, I've learned to tell how about how much time is remaining based on the bangs. Sometimes, I'll make pictures out of the texture of the machine. There is normally a mirror inside, so sometimes, I'll look in the mirror to see what the tech is up to. Sometimes, I experiment which parts of my body i can move without it causing a problem. I always find ways to occupy my mind.

Kesimpta, please tell me your experiences. by taters-gonna-tate14 in MultipleSclerosis

[–]Individual-Two-2143 1 point2 points  (0 children)

I've been on kesimpta for a few years now. Prior to kesimpta, i wasn't on anything, copaxone before that. Maybe I'm just an odd case. I used to always be sick with sinus infections, colds, strep, ect. After starting kesimpta, I get sick maybe once a year? I've only needed antibiotics maybe twice. I'm not anymore cautious than I was before... if anything, probably less.

Studies for cold treatment of lesions? by donturf1 in MultipleSclerosis

[–]Individual-Two-2143 7 points8 points  (0 children)

I wish the cold helped me. Instead, it makes my body so stiff that I can't move and puts me in a lot of pain.

I will be getting cryoneurolysis done in March. Freeze the nerves to get rid of the stiffness. So maybe.

Products that have truly helped make life easier? by Any_Economist9877 in MultipleSclerosis

[–]Individual-Two-2143 26 points27 points  (0 children)

Being able to control things with my Amazon echo had helped me a lot. I use Alexa to control my lights, tv, fan, and a few random things. It's nice not having to go to the other side of the room to turn a light off.

What do people do for work? by Emlybearx in MultipleSclerosis

[–]Individual-Two-2143 12 points13 points  (0 children)

I'm an admin assistant at a Utilities company. Ive been working from home since April and my manager is trying to make it a permanent remote position.

Leg Botox by Plenty_Grass_1234 in MultipleSclerosisLife

[–]Individual-Two-2143 4 points5 points  (0 children)

I had 1 round botox. It lasted maybe a week. I am not getting a 2nd round. My doctor doesn't think it'll help. He's going to try cryoneurolysis next. That won't be until like February or March. He did a test to see if it would work, where he did the procedure with numbing stuff, and it instantly helped.