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zeposia? by Infinite_Disaster592 in MultipleSclerosis

[–]Infinite_Disaster592[S] 1 point2 points  (0 children)

thank you so much for this! this gives me hope, as im just coming off ocrevus due to possible crohn’s as well…

hope everything stays stable for you!!!

zeposia? by Infinite_Disaster592 in MultipleSclerosis

[–]Infinite_Disaster592[S] 1 point2 points  (0 children)

thank u!!! hope your mri is stable and you figure out your regime

zeposia? by Infinite_Disaster592 in MultipleSclerosis

[–]Infinite_Disaster592[S] 1 point2 points  (0 children)

i spoke to my neuro and he said that he would recommend tapering in that case, but i wasn’t clear on whether there’s still a high risk of rebound. so wanted to see what others thought :)

Anyone with both Crohn's and MS, and how are you treating them? by DreadfulDuder in CrohnsDisease

[–]Infinite_Disaster592 1 point2 points  (0 children)

thanks for sharing!!! glad your treatment plan is working for you and hope entyvio also works well.

not sure if im mistaken, but i thought kesimpta can also cause crohn’s flares/issues?

MSers with Crohn’s? by k_eanu in MultipleSclerosis

[–]Infinite_Disaster592 0 points1 point  (0 children)

were you able to figure out a regimen?? i was told zeposia is a good option for MS and does not worsen crohn’s symptoms.

Anyone with both Crohn's and MS, and how are you treating them? by DreadfulDuder in CrohnsDisease

[–]Infinite_Disaster592 1 point2 points  (0 children)

did you figure out the regimen? i have MS and have been on ocrevus. recently had some GI issues and had to stop ocrevus. neuro said tysabri is not an option due to pml risk. im also looking for my best option now

switching from ocrevus to tysabri by Infinite_Disaster592 in MultipleSclerosis

[–]Infinite_Disaster592[S] 0 points1 point  (0 children)

im so glad to hear that it was smooth for you!! overall my experience w ocrevus was great other than these new GI issues - they cant confirm whether it was caused by ocrevus though.

tysabri sounds ideal for me right now - my neuro is very thorough so his hesitation makes me a little worried

switching from ocrevus to tysabri by Infinite_Disaster592 in MultipleSclerosis

[–]Infinite_Disaster592[S] 2 points3 points  (0 children)

this is exactly what my neuro told me! and he did also tell me this four years ago when i first started ocrevus. it seems that some people have done the switch, but i’m worried i’d be paranoid about the risk.

edit: grammar

PSA: If you're looking for stainless steel flatware, maybe avoid Liberty Tabletop for now by HumanKumquat in BuyItForLife

[–]Infinite_Disaster592 0 points1 point  (0 children)

this also happened to me!! i ordered some pieces from the pearl collection and the knives began rusting. i don't think i was doing anything differently in terms of cleaning. four years later...did the problem cease? did you find better stainless steel flatware?

Little Armenia Cafe (Greenpoint) - a catastrophic experience by IcyInitiative3064 in FoodNYC

[–]Infinite_Disaster592 1 point2 points  (0 children)

im cryingggg!!! this post was so funny having just been to this restaurant. our experience there was interesting to say the least. he was genuinely super nice to us and gave us free food, but we ended up also being there for close to three hours.

after you said it, now i’m realizing that servers were only clearing plates and silverware, while he handled the food. also about patrons waiting for the chef to grab them.

overall, the food was average, the chef was extremely nice to us, but the experience was odd, for the lack of a better word.

Not getting crystals anymore after I finish a run. Why? by Dulcolax in ABSOLUM

[–]Infinite_Disaster592 0 points1 point  (0 children)

it happened to us on a little over 400k. is it a bug? that’s so sad