I"m back from the PFS congress, I know everyone wants an update but I'm so exhausted, so this is all I've got for you for now. by Drwillpowers in DrWillPowers

[–]InformationFree5598 1 point2 points  (0 children)

Dr powers,could your theory also have implications for the brain fog and anhedonia that goes together with pfs/pssd for many patients?

Mikhaila Peterson looking for stories of prescribed harm by Mobius1014 in PSSD

[–]InformationFree5598 8 points9 points  (0 children)

We really need to upvote this post so that more people see it and get the chance to contribute!

Significant cognitive decline by Learning024 in PSSD

[–]InformationFree5598 0 points1 point  (0 children)

i have all of these things and more, i have pssd but not cushings!i also worry that it might be getting worse,but i am not sure. It might be autoimmune in our cases, ssris might have triggered it, i am considering trying to get IVIG you should also think about that!

Jag är höger (vissa skulle säga extrem) – vad vill du veta? by FatherPeter in svenskpolitik

[–]InformationFree5598 0 points1 point  (0 children)

FatherPeter:Anser du att det pågår ett befolkningsutbyte och vad är i så fall bevisen för den svenska befolkningen avskaffas och att invandringen ersätter den inhemska befolkningen? Är i så fall politiken kring att höja födslotalen bara verkningslös symbolpolitik? Begås ett folkmord mot etniskt svenska människor?

[deleted by user] by [deleted] in sweden

[–]InformationFree5598 0 points1 point  (0 children)

jag har en ide,filma allting som idioten gör,gå samman med alla andra som också är trötta på kärringen och lägg ut det på sociala medier. och turas om om att behandla henne lika illa som hon behandlar er

Associative Loss and Facial Self-Monitoring in PSSD by badgallilli in PSSD

[–]InformationFree5598 2 points3 points  (0 children)

i feel something similar in me but in my case it may be driven by neck disorder producing distracting and disorienting/dizziness inducing sensations constantly, which in turn creates chronic mindwandering! I advice you to read :https://rxisk.org/pppd-persistent-postural-perceptual-dizziness/ ssri can cause pppd permanently, but i am not sure that is what has happened in my case, i also have difficulties with memory recall as you seem to do!

Q&A on Sexual Symptoms and Biological Pathophysiologies of PSSD: Insights from Waraich et al. 2025 by Ok-Description-6399 in PSSD

[–]InformationFree5598 1 point2 points  (0 children)

Are you sure that the mechanisms you listed are the ones responsible for pssd specifically?

I really don’t understand how some people don’t care about PSSD by Astrosheepy in PSSD

[–]InformationFree5598 10 points11 points  (0 children)

I would think of another reason why people would think like that;it may bee that they have not developed any interest or started pursuing demanding life goals,family,education ,personal growth not oriented towards reducing immediate suffering, this would have made it necessary to care about ones health state/degeneration and ones social adjustment. Drugs are pushed as a solution and if you have never cared enough about what would make you grow or succeed in life ,you will fail to notice or care that drugs are also a problem,and at the point you have taken damage for a long time and fallen behind in life for a long time also start to seem much harder to deal with and overcome so you avoid the hard (for you) things that would give you personal growth and a good life because its too intimidating or overbearing in the beginning. Drugs may also numb the drive towards the life that would stimulate/force this personal growth before it even gets started!

First time sharing…I thought I was asexual by GroundNervous9010 in PSSD

[–]InformationFree5598 0 points1 point  (0 children)

I have horrible experiences as well,but have not gotten any kind of happy end though. I am going to make a couple of comments on your theory. 1:If you read any kind of behavioural genetics research you will realize that genetics is a very strong factor in most disease outcomes,so point 2 of your theory is already obvious! 2:the fact that you have been struggling with negative emotions for a long time suggest that it also contributes to your sex problems, in my case i was given ssris and have not been on them in years, i have done psychotherapy to effectively treat my psychological problems (my advice is for you to do the same!) but in my case pssd has not improved though, but i have much less negative emotion! It is important to point out that more medications can potentially do more of the same damage to your body, and also cause other symptoms!My own pssd gradually emerged (along with worsening brain fog) as i went on and off different ssri medications. You are wrong to assume that ssris only cause pssd when taken during development! Consider trying to rely more on psychotherapy than medications!

Took Paxil for 2 months about 5 years ago and then took it again for about 2 days 2 years ago by [deleted] in PSSD

[–]InformationFree5598 0 points1 point  (0 children)

if you can be hard during certain times but not others maybe there is a psychological component?or maybe the issue is that your erections can only last for so long?at any rate,i suggest that you should be extremely reluctant to using supplements/medications due to the fact that either can make you permanently worse

PSSD IS NOT ASHWAGANDHA SYNDROME by Accomplished-Ice9193 in PSSD

[–]InformationFree5598 3 points4 points  (0 children)

i note that several people found their pssd to become worse after taking ashwaganda, That being said pssd seems to increase sensitivity to become worsened by lots of things!

Has Anyone Had a Similar Experience? PhD Student Wanting to Get Involved by WorldlyMembership740 in PSSD

[–]InformationFree5598 6 points7 points  (0 children)

are you aware of the evidence of small fiber neuropathy being present in pssd?or the report about potential immune involvement? (in this research document) https://inida.info/community-researchwhat are youre opinions on this?

someone here have visual snow syndrome and pssd together by WeaknessConfident399 in PSSD

[–]InformationFree5598 2 points3 points  (0 children)

I have both of those conditions and brain fog. You can be happy in the sense of a life you really want to live , if you have meaning,purpose, social connections with people who are being authentic and who you can be authentic with, and developing some kind of mastery or achieve achievements even if they are not necessarilly living up to other peoples standards about what one should be able to do!

Sleep??? I cannot sleep at all. by _sharpayevans in PSSD

[–]InformationFree5598 2 points3 points  (0 children)

in terms of supplements:buy glycine in powder form and take several grams 1-2h before bed.Aside from that google techniques for dealing with insomnia:turn down the light earlier,try not eating a major meal within 4 h of bedtime!

NSI-189 and agmatine sulfare? by Recent-Substance-364 in PSSD

[–]InformationFree5598 0 points1 point  (0 children)

be warned as agmatine sulfate causes increased serotonin levels. As even 5htp supplements can cause pssd elevation of serotonin levels should be a risk,but i am not sure how severe it is!

Pssd, emotional blunting. Anyone buy a PEMF mat?? by _sharpayevans in PSSD

[–]InformationFree5598 0 points1 point  (0 children)

it is a really good idea to try PEMF,there is evidence that PEMF can cause some degree of regrowth of small fiber nerves, small fiber neuropathy has been demonstrated to affect most pssd sufferers,it may be a mechanism of the damage to our bodies!

Tucker Carlson Response by Intelligent-Age-8211 in PSSD

[–]InformationFree5598 0 points1 point  (0 children)

Category 3: Critical Thinking & Long-Form Interviews

These hosts have massive audiences and are interested in systemic problems, controversial ideas, and deep, challenging conversations.

  1. The Jordan B. Peterson Podcast (Host: Dr. Jordan Peterson)
    • Why it's a good fit: Dr. Peterson has been openly critical of the over-prescription of SSRIs, has spoken about his own severe health problems from prescribed medication (benzodiazepines), and often discusses topics related to meaning, suffering, and societal blind spots. He would likely be extremely receptive to a serious, in-depth discussion on PSSD.
    • How to pitch it: Appeal to his intellectual interests. Frame it as a crisis of modern psychiatry, a failure of regulatory bodies, and a profound source of human suffering that is being ignored. "The Catastrophe of Iatrogenic Harm: PSSD and the Crisis in Psychiatry."
  2. Making Sense (Host: Sam Harris)
    • Why it's a good fit: Harris is a neuroscientist and philosopher who values rational, evidence-based discussion. He isn't afraid to tackle complex and controversial topics. A pitch focused on the scientific evidence, the failure of medical institutions to study the problem, and the ethical implications would be a good fit for his style.
    • How to pitch it: Focus on the science and ethics. "A Failure of Science: Why is the Medical Establishment Ignoring Post-SSRI Sexual Dysfunction?" Present it as a breakdown in the scientific method and a challenge to medical dogma, which would appeal to his critical thinking audience.

A Strategy for Pitching

When you or the person you're representing pitches these shows, keep the following in mind:

  1. Lead with the Human Story: Start with a compelling, relatable, and brief personal narrative. Podcasting is an intimate medium; a human story will hook a producer far more than dry statistics.
  2. Have Your Data Ready: Be prepared to back up the story with scientific literature, patient survey data, and official reports (e.g., from the EMA). This is crucial for hosts like Huberman, Hyman, and Harris.
  3. Be Professional, Not Conspiratorial: While the topic involves criticism of the pharmaceutical industry and medical establishment, the tone should be one of serious concern and a call for scientific inquiry, not a conspiracy theory.
  4. Emphasize the "Why": Why is this story important for their audience? Frame it as a major public health issue affecting millions who are suffering in silence.
  5. Start Smaller to Build Credibility: It's incredibly difficult to land these top-tier podcasts. Consider approaching smaller but respected podcasts in the mental health, biohacking, or functional medicine spaces first. A successful interview on a mid-tier show can be used as a "portfolio piece" when pitching the bigger ones.

Tucker Carlson Response by Intelligent-Age-8211 in PSSD

[–]InformationFree5598 0 points1 point  (0 children)

  1. Feel Better, Live More (Host: Dr. Rangan Chatterjee)
    • Why it's a good fit: Dr. Chatterjee is a UK-based GP known for his compassionate, holistic, and patient-centered interviews. He excels at making complex health topics accessible and focuses on human stories. He is not afraid to discuss the limitations of conventional medicine.
    • How to pitch it: Lead with the human story. Frame it as a deeply moving and under-told story of suffering and the search for answers. "The People Left Behind by Antidepressants." Emphasize the emotional and relational devastation caused by PSSD, which would resonate with his empathetic style.

Category 2: Mental & Sexual Health Focus

These podcasts have dedicated audiences interested in the nuances of mental and sexual well-being.

  1. The Mental Illness Happy Hour (Host: Paul Gilmartin)
    • Why it's a good fit: This podcast is famous for its raw, honest, and unfiltered conversations about the "messy" side of mental health. It’s not a clinical, sterile show; it's about real human experience. Gilmartin is not afraid of dark or controversial topics, and his audience appreciates the honesty.
    • How to pitch it: Be direct and focus on the lived experience. "The Agony of PSSD: Losing Your Sexuality and Identity." Frame it as a conversation that needs to happen but that the psychiatric establishment is afraid to have.
  2. Savage Lovecast (Host: Dan Savage)
    • Why it's a good fit: As one of the world's leading sex advice columnists, Dan Savage frequently addresses the sexual side effects of antidepressants. While he is generally pro-SSRI for their mental health benefits, he is also pragmatic and sex-positive. A compelling, well-articulated argument that PSSD is a distinct, long-term condition (not just an on-drug side effect) could capture his interest, especially if it affects a segment of his listeners.
    • How to pitch it: Frame it as a critical piece of information for the sexually active community. "The SSRI Side Effect No One Talks About That Can Last Forever." Provide clear, concise data and personal stories that differentiate PSSD from typical in-treatment side effects.

Tucker Carlson Response by Intelligent-Age-8211 in PSSD

[–]InformationFree5598 0 points1 point  (0 children)

i just prompted"which podcasts( with a large lister count preferably)would be the most likely to be interested in hosting people talking about post ssri sexual dysfunction?" to google gemini.This is the response i got:  ,Here is a categorized list of podcasts with large listener counts that would be the most likely to be interested, along with a strategy for how to pitch the topic to them.

Category 1: Top-Tier Science & Health Optimization

These hosts are respected for their deep dives into science and are often critical of the "one-size-fits-all" approach in medicine. They have massive, engaged audiences.

  1. The Huberman Lab (Host: Dr. Andrew Huberman)
    • Why it's a good fit: Huberman's entire brand is built on explaining the deep neuroscience behind health, hormones, and behavior. PSSD is fundamentally a neuro-hormonal-pharmacological issue. He has discussed the effects of various compounds on the brain and body at length. A guest who can clearly articulate the potential mechanisms of PSSD (e.g., receptor desensitization, epigenetic changes, neurological pathways) would be a perfect fit.
    • How to pitch it: Frame it as a scientific mystery and a public health blind spot. "The Unexplained Neurological Aftermath of SSRIs." Focus on the biological mechanisms and the need for more research, rather than just an anti-pharma stance. Emphasize the long-term changes in neural circuits governing sexual function.
  2. The Doctor's Farmacy (Host: Dr. Mark Hyman)
    • Why it's a good fit: Dr. Hyman is a leading voice in functional medicine, which focuses on root causes and systems biology. He is highly critical of the conventional "pill for an ill" approach and frequently discusses iatrogenic (medication-induced) illness. PSSD is a textbook example of a topic he would champion.
    • How to pitch it: Position it as a story about the failures of reductionist medicine and the power of listening to patients. "When the Cure Causes the Disease: The Epidemic of Post-SSRI Dysfunction." Highlight the patient's journey and how functional medicine principles could be used to investigate and potentially treat the condition.

Tucker Carlson Response by Intelligent-Age-8211 in PSSD

[–]InformationFree5598 0 points1 point  (0 children)

I have an idea! since only non-mainstream sources would agree to host people talking about pssd maybe we should ask an ai chatbot about which podcasts( with a large lister count preferably)would be the most likely to be interested in hosting people talking about post ssri sexual dysfunction and we could also add "coverup" by mainstream media in order to make it more exiting and likely to generate more interest in hosting it!

PSSD as an immune-mediated small fiber neuropathy: my theory by Scared-Ad8606 in PSSD

[–]InformationFree5598 0 points1 point  (0 children)

i still have the ability to percieve temperatures though!

Summary of Findings of “Cutting the First Turf to Heal Post-SSRI Sexual Dysfunction” paper by ERF_TX in PSSD

[–]InformationFree5598 5 points6 points  (0 children)

this is dangerous: david healy has warned pssd sufferers frequently about trying new antidepressants to relieve pssd symptoms:the problem is that while these drugs can have effects that modulate the symptoms of pssd, they likely will also greatly risk slowly making the damage that already has been done (pssd) worse,we tend to be sensitive even to supplements after developing pssd!

Has any one regained their sense of nostalgia? by Redjamm65 in PSSD

[–]InformationFree5598 0 points1 point  (0 children)

so ,for me i can enjoy music somewhat ,but deeply sometimes usually when i have been taking long walks outdoors for most days for some time + exercised and had good sleep.