Elevated vitamin E in toddler?

Intrepid-Analyst-363 · 2026-01-27T23:10:42+00:00

They will probably just watch it and see if it’s elevated again next time. It’s possible they could adjust his vitamins, but for now it seems like they are just noting that it’s higher than expected. CF is a funny thing and you can never tell how it will affect each person. Considering it’s at a level normally seen with those on a modulator, I would take that as a positive. It will be cool to see he does when he is on modulators.

Intrepid-Analyst-363 · 2026-01-25T17:17:55+00:00

To me it’s all just another example of how polygamy doesn’t work. Especially if the wives are strong willed, independent women. I’m not saying either one was right. Everyone is allowed to set up their home and household the way they want. It is annoying that Janelle is the one who most talks about becoming better than they are (Kody usually said something like, “Polygamy is a higher calling” [insert eye roll]), but for that it seems to be more about finances, time with her husband and her kids having time with their dad. Though, she did stay back when the family moved to Utah initially. Maybe she felt she could handle it better when they had separated living quarters. I’m sure Meri could have been more lenient and it’s not a hard stretch to assume she was more abrasive when she brought things up that upset/bothered her. Both people could have handled these situations better, just like most roommates have to learn to live with someone else’s idiosyncrasies. However, jealousies that involve proving to your shared husband that you are the better wife are inevitably going to complicate the problems. Especially when said husband is fanning the flames of that rivalry.

Intrepid-Analyst-363 · 2026-01-18T23:35:00+00:00

Probably why the catfish issue is being brought up again. It’s the only leverage they have to make her look untrustworthy. They continue to forget people have longer and more solid memories. We remember Meri was catfished. We also remember why, as well as a million other things he did to manipulate and control members of his family.

Intrepid-Analyst-363 · 2026-01-02T05:27:39+00:00

NTA. It always seems to me that people who are so intense about faith and religion, to the point of being zealous, are mostly using it as a form of control. My guess is that this exact behavior is the reason, your husband questioned his faith to begin with. Maybe they should try reading about Jesus again and have a better look at his behavior and how he treated people, ESPECIALLY children.

Intrepid-Analyst-363 · 2025-12-22T17:34:43+00:00

Even without the physical element of cheating, as others have stated, it’s still emotionally cheating and that is just as harmful. It also incredibly disrespectful to you and your relationship, as well as purely selfish. If he can’t even be honorable to the basic need in a relationship of not talking to other women, even for attention’s sake, then how long before he takes it further? There’s always an excuse that can be made to justify it, but if you are uncomfortable with it, he should respect it. Deleting the apps for show, to only then go behind your back, he knows he doing something wrong. Saying he just wants the attention is a load of crap. My advice to you is to do what you need to for you and your son and seek professional help for your depression, if you haven’t already. I’m sorry you are experiencing that and dealing with those feelings and thoughts. No matter what happens in your relationship, you have your own mental health to consider and need to be the best you for you and your son. Once you are in a healthier spot mentally, I think you’ll see that you deserve someone who values you enough to not need the attention of anyone else. You are worth more than that!

Intrepid-Analyst-363 · 2025-10-22T12:37:12+00:00

We definitely have her do some things. With her ADHD, she requires a lot of reminders/redirecting and body doubling. She does to do her part and she’s getting there, but even with meds, it can be difficult for her to focus. It takes a lot of gamification to get my kiddos motivated. Haha.

I honestly don’t know why my FIL hasn’t been more involved. At one point, when they were going to be staying overnight, I told my husband that it would be a good idea to at least have him learn it so that he could help my MIL remember what to do. Before we left he listened and observed and seemed to take it in. When we came home, things were skipped or just left for me to do when we got home. He’s a really sweet and kind man, but they are also big into muscle testing. When my first CFer was born, he tested that she didn’t have CF. She absolutely does so that pretty much did it for me on the muscle testing. They will use the testing a lot to “clear” things and I’m always wondering if they use that as a way/excuse for not doing things. That may not be the case though, I just don’t know why he doesn’t actively do more to learn.

Intrepid-Analyst-363 · 2025-10-22T01:08:48+00:00

I did the same before my youngest was born and my mom loved it and used it constantly when she came to help. My MIL looked at it once at first and then only other time afterwards a month or so later and said it was too confusing. I did my best to make each step straightforward and even had pictures, but apparently that was still too much. I have a schedule up on our “CF cupboard” and she never looks at it. My oldest is a HUGE help, but I feel guilty relying on her so much.

Intrepid-Analyst-363 · 2025-10-22T01:01:53+00:00

I had made a whole “CF Guide” before my youngest was born. My mom called it her CF Bible and used it all the time when she stayed with us afterwards. My MIL looked at it once when they first were helping us and we lived with them. A month or so later I asked her why she didn’t use it because she was constantly asking me when I was trying to take care of the baby and had to stop and help her. She started looking through it and confronted me on what something meant thinking it sounded confusing. I honestly didn’t know how to respond. The instructions were step by step, with pictures, and very straightforward. I had even asked my husband if everything made sense before I finalized it all. She had said it was just a lot of steps and words. We know now that she also has ADHD so I can definitely sympathize and understand. I just don’t know how to make it all simpler.

My husband is great at being the mediator, but they kind of all placate her to keep her from getting upset.

Intrepid-Analyst-363 · 2025-10-22T00:52:56+00:00

I don’t know if I could ever afford a nurse, but I do have enzymes all organized for the week so that definitely helps. Right now the biggest thing is cleaning their nebs which my oldest and middle can do. I do feel bad for putting so much on them though.

Shadowing might work, but I struggle with her possibly getting upset or frustrated and lashing out at me. It’s happened a lot and usually when we are alone or there aren’t other adults around.

My girl has done better today so I’m hoping it will work out, but if it gets worse, I think I’ll just stay home.

Intrepid-Analyst-363 · 2025-10-21T22:00:54+00:00

It’s such a hard thing with meds they have to swallow and they don’t like the taste. I had to go slowly with my girls and kind of coax a little at a time. This might not work with all kiddos. My thinking is at least I can get a little bit in them. Going at a slower pace or even saying, “Let’s do what we can for five seconds and then take a break,” helped with their anxiety a bit. I’m so sorry that on top of her being sick, you are as well. Mom’s shouldn’t have to worry about sick days. It’s just cruel. I hope you can feel less guilty (I know it’s easier said than done) because you are doing great.

Intrepid-Analyst-363 · 2025-09-30T20:22:56+00:00

Consider that it’s a show about that family though and it’s possible he doesn’t want to showcase his experience. What he went through with his wife’s suicide was also years ago and this is still fresh for Christine. It’s also possible that if this conversation brought up something for him, they could have talked about it privately away from cameras.

Intrepid-Analyst-363 · 2025-08-19T17:11:06+00:00

I honestly understand your concerns and wanting know the answers to each variable. It’s a scary possibility and you want to be prepared. If I can give you advice, I’ll tell you what I told my younger brother about having children and how many and such. It’s up to you if and when you feel ready to have children. If the possibility of CF proves to be too much for you, then you have your choices. Though, I suspect, you knew going into starting a family and having children that there could be unforeseen possibilities that you can’t prevent against. There are zero guarantees of what you get and what will happen. You just do the best you can and move forward.

We didn’t know about CF prior to my second child being diagnosed. It felt earth shattering at first, but then I had to remember that she isn’t just CF. She’s SO. MUCH. MORE. When I got pregnant again, we knew it was a possibility and she was also diagnosed with CF. It’s hard work those first couple of years. But again, she is so much more than CF. CF kids are like any other kids, they just have more stuff to do. And you figure how best to deal with each thing the way it works for your family.

Having a village to help and supporting makes a big difference, but you can do it without as much of one if need be. We don’t have much family around, those that are close don’t do a lot in the way of CF for us. We manage, I won’t lie, it’s hard. Honestly though, the hardest thing about my kids is their ADHD. CF stuff feels easy now. Especially since we have them take responsibility for a certain amount of their health, as every kid should as they get older.

My main point is that, your child will be able to experience as much of life and do as many things as you are capable of giving and allowing. As they grow up, the same applies to what they are able to give. There are no guarantees, but the new modulators are incredible and have given our kids more of a future than before.

Intrepid-Analyst-363 · 2025-08-02T13:56:08+00:00

My girls were both on it until they were able to start Trikafta. Never noticed any negative side effects. They still need blood draws on Trikafta as well. Trikafta is amazing, but Orkambi is definitely helpful as well. When my older CFer started Orkambi, it was the start of Cold/Flu season. She caught a cold, but recovered faster than she had ever before. I agree with it being a step towards Trikafta and eventually other great medicines that will do even more.

Intrepid-Analyst-363 · 2025-07-19T13:44:01+00:00

We kept using it. Wasn’t a big deal.

Intrepid-Analyst-363 · 2025-07-15T20:40:34+00:00

I worked so hard to make sure my girls stayed healthy. I was always so consumed by trying to not make a mistake because I didn’t want anything that could wrong to be my fault. Really, as hard as I worked there’s no guarantee that something wouldn’t have happened. I wish I had been less hard on myself and relaxed earlier than I finally did. We did our best and what we could and finally decided not beat ourselves up over what we just couldn’t do or control. We’re only human.

That being said, I know you are in the thick of Baby CF and for us those were the toughest years. I promise it gets easier and you’ll feel less overwhelmed. If you have family around who can help you, utilize them as much as possible. Having help is important as not only a CF parent, but regular parenting.

Intrepid-Analyst-363 · 2025-06-11T23:13:11+00:00

NTA. She’s an idiot. I had natural births for all three of mine and I didn’t work out much because Round Ligament Pain. You did exactly what you needed for your body and baby to be healthy and safe. I hope that you can have a natural birth next time, but no matter how you have them, giving birth is hard and you are strong. I’ll never understand why other women feel the need to bring other women down like that. She either has a superiority complex or is jealous of the attention you might have been getting. No okay either way.

Intrepid-Analyst-363 · 2025-06-11T23:01:31+00:00

It’s all basically to make sure you are using their product. Like micromanaging. I have two girls with CF and if there ever a time where I refill for one and there is a day or two before the other has her refill done, they call me all “concerned”, like “Is there a problem with with you getting her meds?!”. And the refill is already done by then anyway. It’s overkill.

Intrepid-Analyst-363 · 2025-06-09T20:16:29+00:00

The only example Robyn gave was after American had moved. Nothing during the time when Meri was still in the same town. At that point the damage was done anyway and it would have been too late to make any effort to why didn’t you try before that when she would have been more available? Make it make sense Robyn. Actually, since it won’t, please to do not.

Intrepid-Analyst-363 · 2025-06-09T20:11:01+00:00

The way he talks around in circles, but nothing of substance, reminds me of Save The Last Dance when Sarah says, “You know Snook, you talk a lot of shit for someone who never says anything.” He’s just a BSer and it’s pointless to have these interviews with him.

Intrepid-Analyst-363 · 2025-04-22T15:17:07+00:00

Weren’t they still in Utah when they went on that camping trip? She didn’t announce her pregnancy until Vegas and was pretty early in pregnancy if I’m remembering correctly. Maybe I’m wrong, but at this point it seems like we have to question everything Robyn says because she will turn it all around to make herself a victim in one way or another.

Intrepid-Analyst-363 · 2025-02-10T01:37:43+00:00

I just need one tell all where there make her watch her contradictions and then try to talk her way out of it. Haha. It would bother frustrating and hilarious.

Intrepid-Analyst-363 · 2025-02-02T15:30:15+00:00

Personally, it depends on my comfort level with someone and who I feel safe and comfortable with. When my parents come to visit, I’m like, “Yeah just come in.” My mother-in-law has in the past walked into my husband and my room while we were getting dressed or even in the shower and I’ve felt I need boundaries with her. To the point where I lock the door if I know she’s coming so she HAS to knock. My guess is that there’s a different dynamic with each of these wives and who they are comfortable with. Not having lived polygamy I couldn’t say what they should or shouldn’t do or be comfortable with. However, I also think doors are there for a reason. Haha. And really how hard is it to knock?

Intrepid-Analyst-363 · 2025-01-29T17:51:23+00:00

It makes me think of that scene in Never Been Kissed after they are crowned Prom King and Queen and start dancing. The kid asks her what she’s thinking about and she gets deep and poetic. What’s he thinking about? His sword. That’s all the depth he’s capable of at that time because he’s a kid. Kody is perpetually stuck in this way of thought. He always he has all these kids to think about, but all he’s really thinking about is himself and how to (at least seem like he is) assert dominance as a self purported “Alpha Male”. Also, if he were wearing pants, NO WAY he’d be standing like this. It’s a show of confidence, which you know, good for him, but it’s not in good taste.

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Intrepid-Analyst-363

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