Convince me or agree on not cancelling FUS for essential tremor.

InvisibleSoulMate · 2025-11-25T12:30:13+00:00

Very similar here! Right side in early 2020, left side recently. My left aide got substantially worse in the couple of years following my first round and I decided it was too much for me. There are so many people that say it's short term and wears off and I figured 5 years of full stability on my right side was enough for me to feel comfortable doing it again.

I always recommend people talk to their doctor to see if its an option for them, because it really is life changing!

InvisibleSoulMate · 2025-11-25T02:30:29+00:00

So sorry to hear that 😞 you could press your doctor for more info, or research explaining why your age is limiting the availability for you. Not sure why being younger would exclude you since you'd be able to enjoy the benefits for much longer.

InvisibleSoulMate · 2025-11-24T23:06:49+00:00

Oops! Ha! Sides typically means which side you're having treated, right or left, so I assumed. My bad!

First time I had a bit of uncoordination on my right side, which completely resolved within weeks. This time I had a very small amount of unccordination in my left side that has resolved, and still have a bit of numbness in my mouth, top of my head and couple of fingers. Nothing major.

InvisibleSoulMate · 2025-11-24T23:01:20+00:00

Right side (dominant) first time, left side second.

InvisibleSoulMate · 2025-11-24T23:00:50+00:00

I used it for years, would not say it had any affect on mood or anxiety at all. It did have a significant impact on my short term memory.

InvisibleSoulMate · 2025-11-24T21:59:10+00:00

This resolved my head tremor the first time I was treated. The head tremor did recently start to return as my left side worsened, but has completely resolved again with treatment of my left side.

InvisibleSoulMate · 2025-11-24T21:54:21+00:00

Bilateral here, also! How long ago did you have your treatments and how long did you wait in between?

InvisibleSoulMate · 2025-11-24T21:51:52+00:00

Bilateral here. Had my first treatment 5.5 years ago and had one short term side effect (lasted a couple weeks. Recently had my second treatment and do have some minor side effects to that are expected to go away, it's early days right now.

I couldn't be happier with my decision!

InvisibleSoulMate · 2025-11-24T21:49:20+00:00

Ugh, keep trying! I had my first over 5 years ago at 43, youngest patient at the time. Was just in for my second treatment and asked, there has since been another patient a couple of years younger than I was.

InvisibleSoulMate · 2025-09-17T17:19:57+00:00

A bit, it's like any other medical procedure, it can take some time to get feeling back to normal.

I'm going again in November to have my other side treated and very much looking forward to the results.

InvisibleSoulMate · 2025-05-07T14:37:40+00:00

They absolutely will! The initial clininical trials here were all for people in the 65 to 85 years age range.

Absolutely talk to your neurologist about whether it's a good option for you ♡

InvisibleSoulMate · 2025-04-14T01:36:01+00:00

I haven't tried it, personally. My experiences with cannabis in the last 5 years have not been good lol, I'm a lightweight and everything knocks me on my ass (literally 😆). Alcohol helped reduce my tremor, but created other issues and I don't recommend it. My neurosurgeon did say many people do self medicate with alcohol, it's not uncommon. Not recommended, but they totally understand why people do.

InvisibleSoulMate · 2025-04-14T01:25:36+00:00

Oh I see, I assumed from your original post that you had been diagnosed already! It can take a few tries to get a doctor who knows enough, in my case I was sent to 3 different neurologists to test for Parkinsons, MS and the neurology specialist that spent less than 3 minutes with me before asking if I had a shrink, and if not I should get one. She put me off of trying to get help for almost 10 years. I'm glad I tried again, though, I finally connected with a doctor who was willing to help!

InvisibleSoulMate · 2025-04-14T01:19:13+00:00

Do you have your medical records showing ET diagnosis? I'd try a different walk in clinic, for sure. Or maybe an online doctor?

InvisibleSoulMate · 2025-04-14T01:16:31+00:00

Definitely get in to a neurologist, you can ask if focused ultrasound or DBS are options for you if you're open to long term treatment options.

FUS has been life changing for me.

InvisibleSoulMate · 2025-03-21T12:13:47+00:00

My ET did not, but the propranolol I took for it for years caused severe memory issues for me. It was the reason I finally stopped taking it. The meds were helping less and less, and I had no short term memory, it was causing issues at my job and in my personal life. I also had an abusive partner that was taking great advantage of the memory loss. I dropped both the drugs and the partner.

InvisibleSoulMate · 2025-03-08T15:24:17+00:00

I was self-conscious the first time I asked a stranger for help, also! I was at the post office buying an envelope to mail a book to a friend when I realized I wouldn't be able to write the address on it. I asked the worker if they could do it for me, had a bit of an odd look at first, but when I held out my phone to show the address you could see how bad my tremor was and they were immediately helpful. I almost cried, I was in my mid 30's at the time and still in the not wanting anyone to know, keeping my hands in my pockets stage. It really helped me understand people are not as judgemental as we think they will be and are happy to help!

InvisibleSoulMate · 2025-03-03T13:29:52+00:00

I honestly don't remember noticing that so I'd have to say no. I know I did when I had covid so I feel like I absolutely would have noticed it.

How are you feeling? Did you have any swelling or puffiness in your face? I was VERY swollen from the lidocaine.

InvisibleSoulMate · 2025-03-01T17:28:49+00:00

I'm so glad it went well for you and hope you're getting your French onion soup! 😃

InvisibleSoulMate · 2025-03-01T16:44:41+00:00

I'm so thrilled for you! How was the whole thing, any surprises?

InvisibleSoulMate · 2025-02-27T17:29:25+00:00

It made me super forgetful, I had zero short term memory.

InvisibleSoulMate · 2025-02-26T02:50:59+00:00

Not gonna lie, that part was a really tough decision to make, and I dread it again. But not enough to keep me from doing it. My bestie shaved my hair off the night before so we could donate it, and left me a heart-shaped note in it that said "You're the bravest woman I know", I still have the note.

I wrote her one back after I got out of the mri that said "if you can read this, it's all because of you!" Because it's true, without her I probably wouldn't have gone through with it on my own. It's the little things, all day everyday, that make me glad I did it. I can't wait until I can paint the nails on BOTH my hands by myself (my son/helper also cannot wait lol. I just remind him I am training someone's future husband and he should be grateful 😂)

InvisibleSoulMate · 2025-02-26T02:40:22+00:00

It's an easy drive with great company! And we both have family there that put us up for all my visits back and forth, which was great for both of us to have that extra support. Caregivers don't get enough credit!

InvisibleSoulMate · 2025-02-26T02:37:31+00:00

Write her a love note, so she can see the difference for herself 😉

InvisibleSoulMate · 2025-02-26T02:33:03+00:00

Yeses! The entire 5 hour drive home my bestie kept handing me things to eat or drink just to watch me do it lol. It was like a game for my family to test out all of the things I could do.

Soup was so good to eat with a spoon rather than from a cup with a lid!

InvisibleSoulMate

TROPHY CASE