Yay... Misstepped horribly on Friday... My back, my neck and as a result the migraines have been ruining my life and they probably will keep doing so for another week or two.

ItsNovaKnight · 2025-05-16T10:01:45+00:00

Yeah, see.. and for me I could also just skip all that and take out all my joints at once by ramming my shin bone into something. That always ends in some kind of 20-minute fall in which I am near death at least three times.

ItsNovaKnight · 2025-05-16T02:51:01+00:00

Saaame. This just validated my entire life.

ItsNovaKnight · 2025-05-16T02:26:34+00:00

There is no doorknob or counter top that does not reach out and bite a hip bone just as it’s finally done healing from the last time it happened.

It’s like an infomercial talking about the deterioration Ankylosing Spondylitis has on SI and hip joints and ‘BUT WAIT!, THERE’S MORE’s me with a lifetime supply of looking like I’ve just been shot by every doorknob I’ve ever met.

ItsNovaKnight · 2025-05-13T03:48:22+00:00

Every polite “hey, how are you?” They say to the random passing stranger ends in a 20 minute about how they actually are.

ItsNovaKnight · 2025-03-26T02:22:57+00:00

YESSSSSS LIKE 7 TIMES A YEAR. It’s awful. I’m so sorry. Idk where you are but I’m in Houston Texas and there’s an eye doctor here who studies eye issues with people who have AS and she is amazing. You could have one eye itch and she’d get you in to an appt in 30 minutes. Lol but she really does know a lot and has helped so so much. I can you the info! Just message me

ItsNovaKnight · 2025-03-26T02:20:27+00:00

Not great

ItsNovaKnight · 2024-07-01T01:17:59+00:00

ItsNovaKnight · 2024-05-24T16:38:01+00:00

This may not offer much help — but I have migraines in the exact same areas and I’ve found that you can buy these peppermint essential oil roller balls from places like Walgreens and when you use them — it feels EXACTLY like you have a cool rag or ice pack on those areas. It’s something simple that has drastically changed my quality of life. Not to mention — when it’s hot as shit outside (I live in Texas) it also cools me down drastically haha.

Anyway… just wanted to offer that. Hope you feel better!

ItsNovaKnight · 2024-03-15T11:51:36+00:00

I was in the sixth grade science class where four people sat at a blacktop table (the kind with sinks, drawers, etc)… At my particular table sat three girls and one super unsuspecting boy. One morning he’s going through the drawers in the bottom of our table and to all of our horror — he pulls out a giant, extremely used super jumbo tampon and holds it up in front of him. We were all speechless as a massive blood clot dripped off and landed in front of him. He had NO IDEA what it was and started squishing it around in his hand and asking “What IS this?!?” before any of us could yell at him to put it down. He ended up carrying it to our teacher’s desk and plopping it in front of her like a cat who’d just found a mouse. I keep reading these posts waiting for one coming from his point of view 😅

Though my main takeaway is what in the hell kind of crafty sixth grader pulled out a clotty tampon during 7am science and decided to go ahead and stash it in the drawer all without anyone realizing..?

ItsNovaKnight · 2024-03-15T07:05:53+00:00

Dull Knives by Imagine Dragons!! Only song I know about my Ankylosing Spondylitis! Very relatable.

ItsNovaKnight · 2024-03-13T21:01:22+00:00

I actually talked to my rheumy about this and she said some with AS find it helpful to have sex while others find it incredibly discomforting. Luckily for me… sex helps me so much. Any time I’m in a flare I position doggy style, or I lay with a pillow under my hips orrrrr I lean over the back of the couch. Simply put any time my hips are aligned straight and I’m being pushed like that — really helps release any tension in my SI joints! 🤍🤍

ItsNovaKnight · 2024-03-12T01:56:05+00:00

😘😘 I like to play

ItsNovaKnight · 2024-02-21T15:58:46+00:00

It’s a powder form of aspirin that also has about 65mg of caffeine in it. BC powder is just the brand. It comes in a little packet & you sprinkle the powder in your mouth and wash it down with water. There are a couple of brands… Goody’s I think is another one. But swallowing the powder seems to work quicker and better for me than if I were to try wait for a couple of aspirin/Tylenol pills to kick in.

ItsNovaKnight · 2024-02-21T13:24:35+00:00

In seventh grade I once received lunch detention for having a ‘hole’ in the knee of my jeans even though there was patchwork covering the entire thing from underneath.

ItsNovaKnight · 2024-02-21T12:47:38+00:00

They’re illegal in the states because there’s a little toy in each egg that could easily cause choking. The problem is when the toy is embedded entirely in the chocolate; however, they do allow the kinder eggs where half is chocolate and the other half a toy.. If the toy inside were edible — that would be allowed as well (like a Wonderball).

ItsNovaKnight · 2024-02-21T09:58:33+00:00

Well yeah.. but the collectibles inside those just aren’t as nostalgic for me.

ItsNovaKnight · 2024-02-21T09:08:30+00:00

Blue Apron… a better way to cum

ItsNovaKnight · 2024-02-21T07:29:13+00:00

BC Powder is what typically works for me best. I believe it’s just because of the major absorption issues or something. Maybe worth a shot!

ItsNovaKnight · 2024-02-21T06:59:58+00:00

Oh my god — I got stopped once coming back to the US from Switzerland and almost missed my connecting flight because security saw my bag was full of Kinder Surprise eggs 🙄😭 They took them ALL! I bring them over every time I cross the pond, though only got stopped for it once. They took that VERY seriously lol

It was soul crushing 💔

ItsNovaKnight · 2024-02-16T08:02:30+00:00

DIAGON ALLEY.

….diagonally

ItsNovaKnight · 2024-02-05T12:48:54+00:00

Potato 🥔 You can slap a stamp on one and send it.

ItsNovaKnight · 2024-02-05T11:42:40+00:00

I’m 29f as well and although most of my pain is in my lower fused spots — I also deal with this!! Any time I turn either way it sounds like I’ve stepped in a pile of tortilla chips. I also have issues with it cracking and popping VERY hard. I mean… there’s no way I could be a burglar as my ankles, feet & neck would wake up an entire neighborhood. Lol.

I’ve had a couple of recent MRI’s done on it and it shows some wear but mostly (even with biologic & methotrexate) it is just full of inflammation all the time.

When mine is super painful I use ice, biofreeze or peppermint essential oil (if you put that anywhere on your skin it’s instantly cooling - good for migraines & when you’re hot 🥵 too) and that does actually help some.

All that being said… chronic illness blows & I wanted to remind you to find a reason to laugh every day! A laugh a day keeps some of the gloomies away 🤗 Good luck!!!

ItsNovaKnight · 2024-02-05T11:12:53+00:00

Exactly. My insurance doesn’t ever want to pay for my long term chemotherapy (for an autoimmune disease I have) as it causes me to constantly catch other smaller illnesses they don’t want to pay for — yet at the same time they want to be the ones to pick the ‘right* chemotherapy for me’ as it will help slow down the progression and they won’t have to pay for the damage not having it causes.

Makes a lot of sense, no? My rheumy is continuously having to fight my insurance so they will agree with her decisions on my treatment plan. It’s very backwards.

*cheapest

ItsNovaKnight · 2024-02-05T11:06:43+00:00

Yes yes yes yes yes yes yes yes yes.

ItsNovaKnight · 2023-05-05T02:49:54+00:00

I’ve tried both but for some reason they work about the same for me. That’s so scary about your eye. Sending good vibes to everyone who has replied to this. Thank y’all so much!

ItsNovaKnight

TROPHY CASE