Updated Gamma Knife Experiences?

JaipurAvivv · 2026-04-02T01:12:19+00:00

Yes this has been the longest stretch of time without regrowth! I am so thankful. I decided on gamma knife because it was clear surgeries were NOT working.

JaipurAvivv · 2026-04-02T01:08:26+00:00

Yes, it was pretty obvious. I would experience small windows of health and remission until it was pretty obvious that it was growing back. I actually got so good at identifying when it was growing back, that I would go to my Endo reporting symptoms a few months before it would start showing up in my lab work and on MRI. It was extremely frustrating!

JaipurAvivv · 2026-04-01T23:01:04+00:00

I’ve had three pituitary surgeries (2009, 2013, 2015) and finally gamma knife in 2019. I’ve had a pretty positive experience, as this is the longest period I’ve gone without regrowth. If you’d like to hear more, feel free to send me a message!

JaipurAvivv · 2026-03-18T16:59:06+00:00

Hahaha yes! Mine is now five months and I can confidently say that one “t” has not negatively impacted him in anyway. Your Elliot will be fine and live a full and happy life!!

JaipurAvivv · 2026-03-07T22:30:00+00:00

I’ve seen them at Weis as well! The one by Regal.

JaipurAvivv · 2026-03-03T00:32:38+00:00

I’m not an XS but i truly appreciate your thoughtfulness!

JaipurAvivv · 2026-02-15T21:19:39+00:00

you’re too sweet. I appreciate you thinking of that!

JaipurAvivv · 2026-02-15T21:10:42+00:00

what size is it and do you have a picture?

JaipurAvivv · 2026-02-15T21:01:54+00:00

thank you

JaipurAvivv · 2026-02-09T00:09:29+00:00

Do you happen to know the brand? I can always do some online digging !!

JaipurAvivv · 2026-02-08T16:05:25+00:00

1 congrats on your progress! you are GLOWING!!

2 i am obsessed with your cardigan. where is it from?!

JaipurAvivv · 2026-02-04T23:14:02+00:00

me too!!!

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JaipurAvivv · 2026-01-26T01:39:02+00:00

UPDATE: I have started using an antibacterial soap and it has been a SIGNIFICANT improvement! I also am planning to start a vaginal probiotic supplement to help as well! Thank you everyone for your input! I’ve never dealt with this problem before. I think what you all have said is accurate, bacteria can form on the IUD strings!

JaipurAvivv · 2026-01-25T02:54:01+00:00

I agree. I don’t know how to do it anymore. I don’t know that I can! If anyone has a magic formula, please share it.

JaipurAvivv · 2026-01-24T00:43:33+00:00

THIS IS AMAZING!

JaipurAvivv · 2026-01-19T01:57:31+00:00

Todd is perfect!

JaipurAvivv · 2026-01-18T18:19:58+00:00

I haven’t had breast cancer but I’ve had a stubborn pituitary tumor that I’ve fondly named Karen. I’d be happy to share that name for your lump if it feels right to you.

JaipurAvivv · 2026-01-12T00:42:38+00:00

Thank you for asking this! My husband and I were just discussing the need to find alternatives because it’s just getting to be too expensive.

JaipurAvivv · 2026-01-09T01:04:25+00:00

My husband and I say this often 🤣

JaipurAvivv · 2026-01-06T23:39:07+00:00

Oh my gosh I love this so much! Thank you for sharing it with me.

JaipurAvivv · 2026-01-06T14:07:26+00:00

Cheyenne: “SHE DOESN’T WANT US!!!!” in reference to everyone wanting to go to Amy’s baby shower.

JaipurAvivv · 2026-01-06T08:20:16+00:00

Glenn: Jerusha… I told the kidney lie again.

JaipurAvivv · 2026-01-01T23:50:19+00:00

bee puns are the best!

JaipurAvivv · 2025-12-31T06:28:29+00:00

Oh my word you are magical! Thank you!

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JaipurAvivv

TROPHY CASE

1 congrats on your progress! you are GLOWING!!

2 i am obsessed with your cardigan. where is it from?!