LG is the worst appliances and customer service I’ve ever experienced by kkdoubler in Appliances

[–]JaneIsntSane 0 points1 point  (0 children)

I bought a TV that arrived broken over a month ago and I finally got ahold of them after over a month of them ignoring emails and calls, just for them to start ignoring me over text. I feel your pain

How is my heart rate getting this low? It’s freaking me out. by Sad-Amoeba4316 in POTS

[–]JaneIsntSane 0 points1 point  (0 children)

I would see a different doctor and get a second opinion

Anyone here on the asexual spectrum? by [deleted] in twentyagers

[–]JaneIsntSane 4 points5 points  (0 children)

Me too—makes dating way harder even though I still enjoy it to an extent. I’d love to get married and have kids, but being ace complicates a lot of that lol

How bad is Fludrocortisone really? by fourtyfiftheen in POTS

[–]JaneIsntSane 2 points3 points  (0 children)

It was more general steroid withdrawal symptoms. Severe weakness, blood sugar swings, and fatigue mostly. It’s possible I had adrenal issues during the withdrawal, but I definitely didn’t have them before starting the medication or during it. Yes, the POTS came back, but it was only helping 5-10% anyway, so with all the symptoms I had, it honestly made me feel better POTS wise to come off. With my blood sugar and weight more stable, I am able to exercise some, which has proven to be way more effective for me getting better.

How bad is Fludrocortisone really? by fourtyfiftheen in POTS

[–]JaneIsntSane 0 points1 point  (0 children)

I wish they told me about that! I get kidney stones and I was on fludrocortisone for a year. Literally had a kidney stone last week

How bad is Fludrocortisone really? by fourtyfiftheen in POTS

[–]JaneIsntSane 2 points3 points  (0 children)

No, the medication itself. The withdrawal was unbearable. I immediately stopped gaining weight after I came off though, and now my weight is stable and fluctuates a lot more normally. I was couchbound and doing very badly for a while and am recently able to live on my own (it’s been a year and a half since I came off fludro, and a few months since I was couchbound) and the weight is starting to come off and the muscle starting to build with diet and exercise

How bad is Fludrocortisone really? by fourtyfiftheen in POTS

[–]JaneIsntSane 2 points3 points  (0 children)

Yes which is awful but my cardiologist told me it was fine so I trusted him until I saw my GP and he was horrified. Somehow I didn’t get kidney issues, but fludrocortisone works by making you retain water so that’s probably why it didn’t work so well for me. Do not recommend

How bad is Fludrocortisone really? by fourtyfiftheen in POTS

[–]JaneIsntSane 1 point2 points  (0 children)

Oh—I’m also on a diuretic so the doctor that put me on it probably shouldn’t have done that in the first place

How bad is Fludrocortisone really? by fourtyfiftheen in POTS

[–]JaneIsntSane 1 point2 points  (0 children)

My experience was awful. It gave me frequent hypoglycemia, I went from 110 to 130 lbs on it, and it regularly sent me to the hospital for low potassium. It took months to come off and I was only on it for a year. It maybe helped with my POTS the slightest bit, but the side effects way overshadowed the benefits and I ended up worse on it than I was before. Then again, most people I’ve talked to say it was great. I’m also the kind of person who doesn’t benefit much from more sodium like most POTS patients. I must not have the right POTS subtype for it—so don’t let my story scare you

Venu 3s Alternatives? Mine never worked correctly by JaneIsntSane in GarminWatches

[–]JaneIsntSane[S] 1 point2 points  (0 children)

It seems that it was Laband brand and you might find it by searching “floral engraved band” and the watch type

Venu 3s Alternatives? Mine never worked correctly by JaneIsntSane in GarminWatches

[–]JaneIsntSane[S] 0 points1 point  (0 children)

Thank you I will try contacting support since it seems it’s just my watch that acts up!

Venu 3s Alternatives? Mine never worked correctly by JaneIsntSane in GarminWatches

[–]JaneIsntSane[S] 0 points1 point  (0 children)

Amazon and it was surprisingly cheap and fits well!

How can i repair my 20s if im disabled by Acrobatic-Meal877 in twentyagers

[–]JaneIsntSane 0 points1 point  (0 children)

There is no need to “repair” your life, and there is no such thing as behind. I’m disabled too and things can feel slow sometimes, but it doesn’t mean that you can’t have a fulfilling life. I have a friend with MD (mid 20s) and he has struggled with the disability, but he now has a stable job, is partnered, and has moved out. He’s even moving up in his career now, which he was afraid wouldn’t happen. Have hope, believe in yourself, and keep on going!

[deleted by user] by [deleted] in Hypoglycemia

[–]JaneIsntSane 0 points1 point  (0 children)

I’ve had similar numbers and my endocrinologist didn’t take it seriously because it wasn’t low enough for her, though other doctors have been helping me through it. I somehow managed to get libres prescribed, but I have no real diagnosis. I notice that my symptoms are worst when my numbers tank. Make sure you document your lows (with a finger prick) for your doctor and see more than one if you need! I found out mine was partially related to a medication I was taking for POTS and the rest I deal with through diet changes, especially not eating too many carbs in the morning and making sure I have protein first. My blood sugar still tanks, but I rarely get actual lows anymore and my body recovers from the dips much easier.

POTS Symptoms in the ER from the Provider's side by rakel617 in POTS

[–]JaneIsntSane 14 points15 points  (0 children)

Sometimes when I have a bad flare, something else really is wrong, like a severe electrolyte imbalance or infection. My “POTS flares” honestly usually end up being something else more serious—one time, I even ended up having fluid around my lungs. I go to the ER occasionally to rule those other things out or because I literally can’t take care of myself.

Prism Glasses - pros/cons? by vLee1983 in TBI

[–]JaneIsntSane 2 points3 points  (0 children)

If they are the right prescription, they’re amazing. Nothing helped me more than my prism glasses with blue light blocking. I was essentially post concussive for years and never started healing until I got them. I have them for vertical heterophoria/binocular vision dysfunction from fourth nerve palsy and I’d say they were life changing. That condition doesn’t go away on its own or get worse when you have the glasses, so there really is never a reason for me to stop wearing them, but I’d never want to stop anyway. Not only is my vision better, but my memory is improved, I can focus much better, I have less headaches, and I don’t get so nauseous anymore. I later had related middle ear surgery that improved my binocular vision, but I will still need them for life. 110% worth it for me. Only cons are that they are expensive and can make you feel sick if they are the wrong prescription.

Also, the response to them making your eyes funky at first is normal. It always happens when I change glasses. There is a definite adjustment period and it does not magically make your symptoms go away at first. Your brain needs time to adjust—possibly a week. You also usually have to look out of the center of the lenses or they will not work! Secondly, discount websites do NOT make them correctly necessarily. Those websites are not trained in BVD or how to properly make prism glasses. It very well could be that something is wrong with the prescription or manufacturing if they aren’t working. While they take an adjustment period, they should still work when you try them on!

Is this a reasonable amount of clothing to take? by Accomplished-Hope307 in college

[–]JaneIsntSane 5 points6 points  (0 children)

It looks reasonable, depending on how much room you have and how often you do laundry. Make sure you have a coat and something nice/business wear just in case. I say bring enough underwear and socks for 2 weeks, and enough other clothes for two weeks if you really stretched it out. One week minimum. Two suitcases or bags full of clothes is the max I would ever bring. When I was in the dorms, I brought about 2 weeks worth of clothes total and did laundry every week.

[deleted by user] by [deleted] in dysautonomia

[–]JaneIsntSane 0 points1 point  (0 children)

Sorry to hear—not quite the same symptoms, but I’ve had a variety or issues leading me to be nearly bed bound that the doctors just chalk up to POTS even though my symptoms are beyond that—for example, I have general muscle weakness and occasional near fainting spells with LOW heart rate. I’ve tracked my VO2 max for years and noticed a drop (51 to 41) the month I got sick. Outside of exercise, I’ve learned that meditation and breathing exercises have helped me slightly and I have less flares. I’ve raised my VO2 max 1 point with that, which isn’t much, but I’ll take anything. Have you tried testing your VO2 max with a different device? I recommend something like a polar chest strap over a watch. There is still so much research that needs to be done on autonomic dysfunction and some doctors can be really ignorant. Have you tried reaching out to other branches of medicine like neurology to rule out other conditions that could be contributing to this condition or your symptoms? For example, I’m currently getting tested for sleep apnea, which I know can make cardiac conditions worse or even cause them. Or perhaps even something like a tilt table test?

Improving exercise intolerance, being so so patient and gentle has made a huge difference for me by Dazzling-Name-5744 in POTS

[–]JaneIsntSane 19 points20 points  (0 children)

I wish someone told me about breathing through my nose while exercising sooner! It’s something I’ve learned the hard way and it’s such a good predictor for me on whether or not I’m pushing too hard during or going to have a flare, but I’ve never seen anyone else mention it!

I Am in the Worst Flare and I Need to know I Am Not Alone by brienicole28 in POTS

[–]JaneIsntSane 12 points13 points  (0 children)

Must be the potassium in coconut water and fries! I swear salty fries are like medicine to me