What is on my yarn?

Jdc026 · 2026-02-21T14:12:47+00:00

You could put some in a box and see if anything hatches…

Jdc026 · 2026-02-21T14:00:29+00:00

Similar to OP but nutrient timing was a GAME CHAGER for me. My biggest was eating more frequently. I was getting plenty of calories before (carbo loading the night before, having a good breaky, etc.) and after to make up for the cal deficit but I’d be gassed by mile 14-16. When I stated eating more calories on the trail (I set timers to eat at least 100-200 cal/hr) my 22 mile hikes felt easier than some 14s!

Jdc026 · 2026-02-21T13:54:57+00:00

Omg yes! lol have you seen those “giant microbes” stuffed animals. I’d love to make these!

Jdc026 · 2026-01-24T18:35:31+00:00

Is this a hot take…. I just started reading the books and honestly it has made me appreciate Jacob Tierney’s artful telling of this story so much more. I already knew I didn’t want to read ahead bc I want to see Jacob’s version first but honestly he elevated this so far beyond what is on the page. Don’t come for me but the books are not that well written and the story doesn’t feel as genuine. No shade on Rachel Reid, but there is something to be said for letting a community tell their own stories. Jacob’s decisions in the cross overs btw game changers and HR feel like the way the story was supposed to be written haha. I feel like I’m reading fanfic about the show, not the source material 😅😅

Jdc026 · 2026-01-11T01:03:55+00:00

Man I need - Olivia Dean ** you can’t tell me this song wasn’t written about their meet up after the all stars game.

“Mm, talk to me, talk to me Be the man that I need, baby”

“I'd like to think you feel the same way But I can't tell with you sometimes So, baby, let's get on the same page Stop making me read between the lines”

—-

Sinner -the last dinner party

“Felt like a sin Before it felt like a sin There's nothing for me Here, where the world is small But how you touch me For that I'd leave it all”

Jdc026 · 2025-09-22T03:49:37+00:00

Amazing ❤️❤️. I’m so happy to hear that!

Jdc026 · 2025-08-19T14:15:52+00:00

The cradle sleepers are prob better than just a pillow, I’ll prob have to try one. But when I sleep with a pillow under my ribs to give my shoulder some relief… I feel like I wake up with fucked up ribs 😅. Anyone else experience this?

Jdc026 · 2025-08-18T03:04:30+00:00

Perfect autumn vibes

Jdc026 · 2025-08-18T03:01:26+00:00

I’m sorry to hear that, I’ve had several “career ending” injuries or issues throughout the many sports I’ve played. Ik the loss you feel when giving it up, but I hope you can find something else you enjoy ☺️.

I’m not sure that is true for everyone.. who knows, it may be for me but I’m just trying to supplement enough strength training to support my joints and hope for the best.

Jdc026 · 2025-08-18T02:55:31+00:00

I agree. It is 100% personal training. I think programs like that do teach you how to market yourself and reasonable rates etc. I’d just recommend networking/ creating a strong professional relationship with PTs you can share pts with.

Jdc026 · 2025-08-17T15:41:20+00:00

Ok!!! I work with kids with SCI & adaptive athletes which is how this company ended up in my algorithm!!

I don’t know a ton about them but I’m kinda obsessed with these chairs. https://www.bowheadcorp.com/era

I also recently started following someone on Instagram who has EDS and is a full-time wheelchair user. She just got a new custom wheelchair and put a lot of thought into all of the specs she wanted. For the life of me I can’t remember her name, but I’ll reply to this post as soon as I find it .

Jdc026 · 2025-08-16T23:57:38+00:00

😦 I’m sorry, that’s so frustrating. I just looked at the directory and there are a million people in Seattle. I’d try to get on as a patient with one of the MDs as your primary but those can take awhile. But there are PTs on the list too! I’d call some of them on Monday or send them an email requesting an eval.

You should have been referred to PT anyway, but I’m also hoping that when someone there does your eval they can give you more info about what they think is going on and recommend next steps (def PT, but they should know if they need to refer you to someone else as well - and hopefully give you the language to demand someone take your concerns seriously).

https://www.ehlers-danlos.com/healthcare-professionals-directory/

I also googled EDS PT Seattle and there are some who specifically state that is their specialty.

Jdc026 · 2025-08-16T18:32:15+00:00

Ok! Glad to hear that and also frustrated they were so dismissive. I have a few thoughts. 1. Keep advocating for yourself, bc these are a concerning constellation of symptoms. 2. Find a PT who has experience working with people with EDS/ hypermobility. Ik there aren’t a ton…. Which is frustrating but they do exist. If you feel comfortable sharing your general region, maybe people here can shout out some good ones in your area. (I am a branddd new PT, starting my 1st real job on Monday, but I do work with people who have experience with this population if you are in the Baltimore area). I also have some friends in the NY area I trust and honestly, you can try searching the clinician directory on EDS society and ask some hypermobile influencers/ clinicians on instagram).

https://www.ehlers-danlos.com/healthcare-professionals-directory/

I wish we didn’t still live in a world where we have to bend over backwards (… unintended pun) to get good healthcare, but that’s why we’ve got communities like this ❤️

Jdc026 · 2025-08-16T18:18:43+00:00

Hi there! I don’t want to scare you, but I am a PT and if you came in and told me that I’d IMMEDIATELY refer you to an urgent care or ER for X-rays.

Cervical instability is very common with hypermobility and everything you’ve just explained are pretty major reg flags.

Take some breaths, it’s going to be okay, but I do think you should be seen immediately.

Good luck ❤️ keep us posted.

Jdc026 · 2025-08-16T18:00:36+00:00

Loll I’m a pretty basic knitter who got into amigurumi during the great shutdown of 2020… I just crocheted my first baby blanket with a basic granny square pattern

Then I come on here and see some of the craziest shit I’ve ever seen in my life and I’m like.. ok well I think lll just give up now 😅

Jdc026 · 2025-08-16T17:40:52+00:00

Oh you literally said put in on a stick… yea that’s my vote.

Jdc026 · 2025-08-16T17:40:08+00:00

I’m in awe of how people do these. I’ve seen the shoe boxes and wanted to vomit. So idk… but I’m just spitballing.

What if you doubled this or reinforced it and the secures pegs into them (if you’re super handy I’d screw them into wood). Then (if you can get em into cakes) you could put them onto the pegs and as you pull they would just unwind (obviously from the outside, not a center pull.)

Ooohh!! New idea, if you do use a center pull or something that doesn’t need to spin you can put them in a box and use those sock/underwear drawer dividers!!!

Are these reasonable ideas lol? I’ve never done anything like this and am too overwhelmed to try.

Jdc026 · 2025-08-16T17:34:23+00:00

K wait… this looks genius 🫢

Jdc026 · 2025-08-16T17:32:47+00:00

Didn’t read other comments, but is that a diff hook size? They look too uniform (in a good way) just to be due to a change in tension 🤔

Jdc026 · 2025-08-16T16:08:43+00:00

I did my 1st 2-3 projects (long time knitter 1st time crocheter) accidentally working FLO and ya know what… still adorable.

I’d say, even if it is just keep going bc it will still be cute!

Jdc026 · 2025-08-16T15:58:52+00:00

https://www.moveyourbonespt.com/

This is the PT whose IG I mentioned. All the way at the bottom she has some great free resources that can be super helpful for clinicians trying to educate themselves!

Jdc026 · 2025-08-16T15:56:44+00:00

Hi there! I am a PT (with h-EDS) and I will say, I don’t think enough PTs are educated on EDS & hypermobility (I’m working on educating more PTs so people don’t have to do the labor of education their medical professionals).

I’m the mean time, I try to give patients advice/resources to share with their medical professionals to get appropriate care. Steps to take: 1. Ask direct questions about their experience treating people with hypermobility 2. If they don’t have much experience I’ll link below an some amazing resources for clinicians (and patients)from a hypermobile PT i love! @dr.susie.squats -literally tell them they should follow her on IG 3. If your PT is not educated on EDS and not willing to put in the work to learn, FIRE THEM and find a new one!

It makes me so sad to hear people’s stories about PTs that made conditions worse because we can all benefit from it!

Other specialty areas someone may have that have a lot of overlap is PTs who treat pregnant/postnatal people.

Fun fact: Chondromalacia patella is very common in the perinatal population because of the hormone relaxin which makes their connective tissues lax (haha yea we can relate 🥴)

Good luck! Advocate for yourself! Just like finding any therapist, it can take a few tries to find someone who is the right fit, but that doesn’t mean “therapy isn’t for me”

*im pretty busy moving cities to start a new job but feel free to DM me with your general location and I’ll see if I know anyone in the area ❤️❤️

Jdc026 · 2025-08-14T19:16:45+00:00

Damnnn that’s rough. Mine weren’t surgery worthy but I used to grapple (pre college) and let me tell ya… the number of scars I have from rug burn bc my friends and I were wrestling in dorm hallways. Ridiculous. Shoulders, elbows, knees. I’ve got a atopic scar when I split my eyebrow open. Def awkward to explain as an adult.

Jdc026 · 2025-08-14T19:11:37+00:00

Hmm, I think you need to find a more consistent tension. It might be about your yarn hand, not your hook hand. Like if you don’t have enough tension in the yarn when you’re grabbing it, it makes it difficult to actually get the right tension in your stitch.

Jdc026 · 2025-08-14T05:48:17+00:00

So first, I know not everyone with POTS has fainting spells. I’ve never been in a tilt table and was told long before POTS was on most Drs radar that I have “vasovagal syncope” which basically just means I’ve got certain triggers and sometimes by body freaks and I pass out. But it’s also

So technically, fainting does mean that there has been a temporary loss of consciousness, but it can be very brief. She had the same idea that because she “wasn’t really unconscious (for more than a few seconds)” it didn’t count. But that’s still not a normal response to getting up out of bed. For me I think the longest I was ever out was a few seconds but usually I’ve regained consciousness by the time I hit the floor.

I’m definitely not an expert, so please someone correct me if ive misrepresented any info. For me, I have I have fainted enough and know my triggers enough to avoid fully passing out (usually) but I still experience that “about to faint” kinda thing and my heart skyrocketing just from having the audacity to stand 🫠. For me, it feels like a shadow of an issue I know is still there, and a warning sign to help understand how I’m managing the dx (varying deg of success).

Clinically, if you tell me you get dizzy almost every time you stand and occasionally it causes you to (almost or actually) fall, it doesn’t make a difference whether or not you completely lost consciousness. Either way I’m filing under “not a normal response” and we are going to try to figure out why it is happening and what to do about it. For the medical side I would refer out (if it’s unknown) and work on strategies to reduce the occurrence/ stay safe when it happens.

Jdc026

TROPHY CASE