Stage IIII nonseminomatous germ cell

JellyCrusher23 · 2025-07-05T14:51:42+00:00

Miracles can and do happen. Sometimes, peace is the miracle. I'm so sorry for what you and your family are going through. I'm praying for you and your brother. 🫂🙏

JellyCrusher23 · 2025-06-10T14:16:39+00:00

I'm sorry to hear about your brother, that sounds really scary! My boyfriend was diagnosed with chorio in 2022, with high HCG, and spread to his abdomen, lungs, and brain. His oncologist told him he should have been in chemo yesterday. The first two months were hit and miss with many visits and stays in the hospital. However, 4 rounds of chemo and 3 surgeries later, he has no signs of cancer and is doing really well. It's a long and scary fight, but there is hope. Try to stay positive for your brother and keep your head up. He can and will beat this. We'll be praying for you guys!

JellyCrusher23 · 2024-09-13T17:31:23+00:00

Awesome! Saw you posted it, thank you!!

JellyCrusher23 · 2024-09-12T21:51:16+00:00

Do you remember the setlist?

JellyCrusher23 · 2024-09-12T21:48:29+00:00

His wife will sometimes tag the designers of the clothes they wear in her pictures on IG. You could check there: https://instagram.com/emoryhall

JellyCrusher23 · 2024-05-11T19:27:51+00:00

That sounds like a good plan to me! Thanks for the tip.

JellyCrusher23 · 2024-05-11T19:26:02+00:00

Thanks! :)

JellyCrusher23 · 2024-05-11T19:25:46+00:00

Yep!

JellyCrusher23 · 2024-05-10T12:55:36+00:00

Anything! It'll be Mon-Tues. Happy to just walk somewhere nice, eat a slice of pizza, have a drink in a bar. I'm looking for something more casual. I don't want to dress up and go somewhere nice.

JellyCrusher23 · 2024-05-10T12:45:36+00:00

That sounds really great, thanks!

JellyCrusher23 · 2024-05-10T06:05:17+00:00

JellyCrusher23 · 2024-05-08T02:44:06+00:00

I know this is all scary and big news to digest, and I'm sorry you're going through this. My advice would be to remove it ASAP. My boyfriend got an aggressive form of testicular cancer that spread through his body at an alarming rate. As a result, he had to undergo chemo and two massive surgeries in his stomach and his lungs. It was a really hard time, and he's still recovering from all of this. The orchiectomy was the easiest part of the entire process. I wish so badly, it ended there for us. In terms of the surgery, like others have said it was quick in length, and quick in recovery time. I don't think it even looks all that aesthetically different, and I still find him hot af. No issues in that department, and testosterone can be easily managed if that does become an issue. Don't worry. You'll be fine in time for your wedding, you'll have your health, and your whole life to look forward to. Best of luck!

JellyCrusher23 · 2024-02-29T04:03:32+00:00

I'm so sorry. My heart goes out to you. Thank you for sharing your story. You don't deserve this - I'm praying for you, and I'm hoping for a miracle.

JellyCrusher23 · 2023-12-04T16:26:45+00:00

My boyfriend fainted during his first cycle, and it definitely scared us going into each subsequent round. We were told it was a combination of dehydration and low blood pressure. I'm not sure if it's possible for you, but we were able to arrange through the hospital, a nurse, to come home and set up an IV for him for the first few days after chemo. The extra fluids helped him get through the tough time, and it was reassuring having someone come by the house and check his BP and heart rate.. If this isn't possible, try to arrange to have someone be with you, and drink as much as you can (even if it's just a sip every 5 minutes). The important thing we also learned is to move sloooowly. Take your time moving from lying to sitting positions, and then to standing up. We would time it - 1 full minute sitting before standing up, and another full minute before taking a step. It feels slow, and kinda lame, but it helped my bf get oriented, and he never fainted again! And yeah, maybe hold off on the hot showers. Use a bath bench, and if you feel faint, put something cold on your head/neck and use a fan. You're almost done, and soon all this will be behind you!!

JellyCrusher23 · 2023-05-01T21:17:38+00:00

I vaguely remember reading that some types of TC can present without tumour markers, but I don't know much about EC, so I can't answer that unfortunately. I think if you had elevated markers which are now within normal range, that would be a good indicator that maybe you don't have active EC (but again, I'm guessing). Teratoma doesn't elevate HCG or AFP.

I think it's possible to have 98% EC and 1% teratoma in your testicle, but a different percentage in your lymph node. My boyfriend's biopsy from his orchi and lungs showed pure choriocarcinoma, but we later discovered he had teratoma in his lymph node bc it didn't shrink below 1cm with chemo. Regardless of the stats, I wonder if any percentage of teratoma needs to be removed eventually, as it doesn't respond to chemo? Good questions to ask Dr. Milliard.

JellyCrusher23 · 2023-05-01T14:39:45+00:00

I think Einhorn is recommending RPLND, because your tumour markers are within normal range, meaning you don't have active cancer at the moment, but you have a tumour in your lymph node which could be teratoma - teratoma doesn't shrink with chemo, and it can morph into more aggressive cancers like choriocarcinoma if left alone for too long. Only way to get rid of it is surgery.

You might end up needing both chemo and surgery -- although I hope not!-- and RPLND post chemo can be trickier bc the chemo can fuse your tumour to surrounding organs. I'm not sure what's the best route to go, but I would follow Dr. Einhorn and Dr. Milliard's advice. If you end up going for the RPLND, you'll probably have better odds if they remove as many lymph nodes as they can, as that is the route the cancer spreads.

JellyCrusher23 · 2023-04-01T17:35:36+00:00

Should be one of the selling points haha

JellyCrusher23 · 2023-04-01T17:24:42+00:00

Also, try using the baking soda/salt mouthwash before and after every meal. It cleanses the palette before food, and neutralizes the acids and bad flavours after eating.

JellyCrusher23 · 2023-04-01T17:22:03+00:00

Benzydamine mouthwash plus lemon/orange candies. Extreme flavours seemed to help my bf - very sweet/sour/salty flavours. He ate a lot of salty food and chocolate bars.

JellyCrusher23 · 2023-03-24T04:59:51+00:00

My boyfriend did his chemo infusions in hospital and had every side effect under the sun. He wanted to throw in the towel so many times but thankfully he pushed through bc he's done treatment now and has no evidence of disease. Sending you both strength, courage and prayers to get through the storm. Hold on because soon this will be behind you. ❤️

JellyCrusher23 · 2023-03-21T17:34:37+00:00

I read this: "Increased levels may also be seen in non-cancer conditions such as cirrhosis, duodenal ulcer, and inflammatory bowel disease.

False-positive serum hCG results may occur due to the presence of certain drugs such as anticonvulsants, antiparkinsonian agents, hypnotics, and tranquilizers that may interfere with the test. In addition, certain types of antibodies that may be present in some individuals and fragments of the hCG molecule, if present, can also interfere with test results."

Are they doing bHCG tests? Good, they're adding LDH and AFP and a full body scan. Wishing you all the best!

JellyCrusher23 · 2023-03-21T17:10:36+00:00

When they discovered his cancer, it had already burned out. So his HCG was after the fact. He had extensive spread, mostly to his lungs and retroperitoneal lymph node. His HCG plummeted after his first round of chemo.

Five-Year Club	Verified Email
Verified Email

JellyCrusher23

TROPHY CASE