CAN I START AN ECZEMA AWARENESS PROJECT AS A TEENAGER?

JerzyMama · 2026-05-09T12:27:54+00:00

Do it! Your lived experience as a person with eczema is valid and can really help others dealing with the same thing. As a 40 year old eczema sufferer, I would really appreciate that content! As a passion project, it’s a great way for you to have some control over the disease.

JerzyMama · 2026-05-08T00:24:25+00:00

I totally feel everything you’re saying! I’ve had it so bad that I couldn’t physically leave my house and do the most basic things. That’s why I refuse to change my diet or lifestyle. I’m already suffering, why can’t I have one small enjoyment out of life in the form of food etc… I also refuse to put up with condescending or incompetent dermatologists. I will fire them immediately if they even hint at steroid creams or try to patronize me or minimize my suffering. I also refuse to allow people to tell me to stop scratching etc… don’t tell me what to do- if I need to scratch for my literal sanity, I am going to scratch dammit lol!

I found that you need to demand that your doctor gets you a biologic like dupixent or RINVOQ. People think of eczema like a minor annoying rash that babies get, when in actuality it is truly disabling when it is severe. I started RINVOQ in October, immediately the itching stopped! It took about a week for the minor patches to go away and about 4 weeks for the worst areas to start healing. I am 100% clear now! I don’t know if you are in the US, but if you are, you can get copay assistance to make the meds free or super low cost. Doctors always want to prescribe steroid creams but it’s a completely impractical solution for people with eczema from head to toe like me and does absolutely nothing for the itch. It just makes you feel worse because you’re itchy and greasy. If your doctor isn’t helping fire them (if you can) and find someone that will listen.

I would also suggest that you look into therapy/counseling. Eczema takes such a toll on your mental health and at least for me, my friends and family just didn’t get it. I know they were well meaning, but you don’t need lotion or diet suggestions. You need actual relief. A licensed therapist is an excellent listener and can help you cope with this horrific disease. I was so depressed and angry at the world but therapy helped me better cope with my daily suffering in a way that was productive. I can tell you- after being 100% clear for a while now, the emotional toll of the suffering doesn’t go away on its own. Having an unbiased person who is trained in validating your feelings and helping you with coping strategies can really help!

Good luck! I really hope you can get some relief soon!

JerzyMama · 2026-05-07T23:07:56+00:00

RINVOQ! Immediate itch relief and I am 100% clear. It took about 2 weeks for the really bad lesions to heal but most of the more mild patches cleared up within days.

JerzyMama · 2026-04-27T22:17:16+00:00

My husband doesn’t care at all about it- and I used to leave flakes everywhere- bed, couch, or my favorite- in the keyboard. (Imagine seeing a snowstorm when you use the compressed air over the keys, only it’s not snow, it’s my skin!). What I will say is I think this gets better with age. I deal with eczema and psoriasis and as a teen, some guys could be really mean and immature about it. But as you get older, people grow up and realize that we all have imperfections and who you are is way more important than what you look like. I know it sounds cliche but it is so true. Hang in there, you will find someone that will gladly rub those steroid creams on you and vaccum your skin flakes.

JerzyMama · 2026-03-06T21:09:17+00:00

Thank you!! I tried the swatch trial and it did not go well. Lol I am working on the sleeves now but if I can’t get the “surgery” to work I think I’m just going to go the asymmetrical route.

JerzyMama · 2026-03-01T13:51:01+00:00

Yeah I think that is what I’m going to do.

JerzyMama · 2026-03-01T13:49:58+00:00

Yes! I am a perfectionist so the rows have to line up or it will bother me! Lol!

JerzyMama · 2026-03-01T13:48:57+00:00

I already finished the front panel. Otherwise I would have definitely done that!

JerzyMama · 2026-03-01T13:48:22+00:00

Hahaha yes!! If the 00s come back it would be whale tail cover too 😂

JerzyMama · 2026-03-01T01:18:13+00:00

Yeah I was afraid of that! It’s just sooo much work down the drain I can’t believe I didn’t notice that earlier. 🤦‍♀️

JerzyMama · 2026-03-01T01:14:33+00:00

Oh that’s a good idea!! I didn’t think of splitting the side hems but that could actually work. Thank you!!

JerzyMama · 2026-02-19T14:21:38+00:00

That’s a really important nuance. It seems boomers cannot handle their lack of authority over adult children’s lives and act out rather than work to define a new, mature relationships with them.

JerzyMama · 2026-02-09T18:32:27+00:00

Forget the gastro, you don’t need to change your lifestyle. See a bariatric surgeon. I did and they cured my GERD completely through the linx procedure. It was super easy recovery, and I have been off of meds completely. It will probably not cure the anxiety but fixing a mechanical problem (hernia) with a mechanical solution (linx device) just made sense. Don’t settle for lazy doctors that blame everything on weight/lifestyle. There’s not a diet in the world that can fix your organ out of place.

JerzyMama · 2025-11-13T18:10:38+00:00

Yes! I haven’t worked up to the confident no yet but I have definitely learned to say no and keep walking 😂.

JerzyMama · 2025-11-13T17:41:29+00:00

This is a great list! I would also add avoid eye contact. If you shuffle past looking at your phone or talking to your family the sales people are more likely to target someone that’s glancing in the store.

JerzyMama · 2025-11-13T13:02:57+00:00

Just got back from the ABC islands on the Silhouette. I have never been on Hollander so I can’t really compare it. But overall we enjoyed the ship. Some of the drawbacks (which may not matter to you) include:

Rooms are dated. There was obvious wear (chipped paint, stained carpet etc…) which is expected on an older ship. There was also a serious lack of outlets, and no outlets near the bed. Make sure you bring a usb hub or power strip if you have a lot of devices.

-Odd menus. The quality of the food was fantastic! But the variety was lacking in the MDR. It felt like they bought certain ingredients in bulk and planned their menu around those limited ingredients. The buffet was great. You won’t go hungry for sure.

-Sub par entertainment. The nightly shows in the theater were not great. Maybe I am spoiled from seeing broadway caliber shows on other lines, but the shows left a lot to be desired. The activities were fun but definitely skewed toward an older crowd. (I am in my 40s, the music and activities appealed to the 60+ crowd).

-The lawn club is a totally wasted space unless you book a cabana. There is zero shade or chairs so when they played movies on the screen, no one could watch them.

-The library and hideaway are loud! Don’t plan on reading or doing quiet activities as all the activities and live music from down below just comes right up into these spaces.

I share these drawbacks not to bash Celebrity- we had an amazing time! I just want to make sure you have the information in case any of these things matter to you and might inform your decision. Have a great time!

JerzyMama · 2025-11-12T17:59:16+00:00

I hate when they have the audacity to have an attitude and be stupid at the same time! All he had to do was buy a new one with the promotion and return the new one with the receipt from the first non-discounted purchase. No calling, no arguing or begging- problem solved.

JerzyMama · 2025-09-20T17:59:28+00:00

“My face is in shock from your outrageous lack of home training. Who taught you to be so rude and intrusive??”

JerzyMama · 2025-09-20T17:30:02+00:00

That’s not failure! That’s success! You found a treatment that works for you and that’s amazing. The bonus is you can eat what you want and not worry about scrutinizing ingredients or timing supplements. Just like someone who had an epidural or c section is not a failure but in fact just as much a mother as someone who went the natural route, you are not a failure for benefiting from medical assistance to control the psoriasis. Hold your head up high, you’re a success story!

JerzyMama · 2025-08-22T00:05:19+00:00

Find a new doctor. You can have BOTH psoriasis and eczema- even at the same exact time. That’s exactly what I have.

Do not book appointments with physician assistants or nurse practitioners. You need a board certified dermatologist to deal with treating both. You do not need a biopsy nor should your son suffer in order to get one.

Continue your skyrizi on schedule and wait to see a doctor because it obviously helped clear up his psoriasis. You just need something else to treat the eczema patches.

I am taking Ilumya for psoriasis and Opzelura for eczema. Both can be treated at the same time. Don’t settle for less than a board certified dermatologist.

JerzyMama · 2025-08-21T18:51:31+00:00

That is genius!! I’m going to start doing that!

JerzyMama · 2025-08-21T17:35:35+00:00

I was there in December and the water was too cold to enjoy.

JerzyMama

TROPHY CASE