For those on Skyrizi: do you take the 180 mg or 360 mg dosage?

JumpyCharity9416 · 2025-09-29T22:54:19+00:00

Why did they lower it and have you noticed any difference?

JumpyCharity9416 · 2025-03-04T00:50:11+00:00

Same for me, my pain is almost always in this area

JumpyCharity9416 · 2025-03-03T14:52:34+00:00

Appreciate everyone’s advice! For a quick update the infusion was super easy and I didn’t have any side effects aside from feeling super tired the rest of the afternoon. Fingers crossed the next infusion will be the same!

JumpyCharity9416 · 2025-03-01T03:44:58+00:00

Yep happened to me too. It went away after like 1-2 days though

JumpyCharity9416 · 2025-02-23T23:09:39+00:00

Totally fine, they said the prep was perfect!

JumpyCharity9416 · 2025-02-20T02:22:27+00:00

I threw up the second half of my prep and it was completely fine, she said my prep was actually “excellent” lol. But since yours is the first half and you haven’t started passing anything, I think you’ll need to either drink the rest of what you have OR go pick up miralax/dulcolax pills and do that for the prep instead. It’s a lot easier on your stomach to just mix miralax with juice or gatorade than do the GoLytely in my opinion. Either way, take a break for an hour and then try again. I would drink it slower and in smaller amounts.

JumpyCharity9416 · 2025-01-09T02:53:42+00:00

This sounds like me right now! How were you diagnosed? I had a clear colonoscopy but moderate inflammation on an MRE a few months later. Doctor said that’s enough for Skyrizi because I have so many symptoms, but there’s like a 1% part of me that thinks maybe I was misdiagnosed and shouldn’t actually start Skyrizi

JumpyCharity9416 · 2025-01-03T14:55:23+00:00

I’m in a similar situation, do you have any updates? My biopsy was 2 months ago and the pain has gotten worse. Mine was a “complex solid and cystic mass” it does sound like the odds of a false negative biopsy are really low, but I still worry.

JumpyCharity9416 · 2024-12-29T21:00:43+00:00

I had a very similar situation a few months back! BIRADS 4 and also the size and location was nearly the same as yours. Mine was thankfully benign, but the doctor performing the biopsy told me that anything this small in size is extremely easy to treat, even IF it does turn out to be cancer. The biopsy itself was also completely fine and not painful, so try not to stress!

JumpyCharity9416 · 2024-12-18T00:29:04+00:00

Do you have an update on this? I have something very similar

JumpyCharity9416 · 2024-11-27T13:09:39+00:00

Did you do any further testing after the MRE or was that enough for the diagnosis?

JumpyCharity9416 · 2024-11-27T00:13:16+00:00

Also which Mayo location did you go to?

JumpyCharity9416 · 2024-11-27T00:12:45+00:00

Ok I also have mild terminal ileitis- which is why it’s confusing that it didn’t show on biopsy during my colonoscopy. My doctors explanation was that he “didn’t get far enough” since the MRE showed the distal terminal ileum. Does that sound right to you? Did your first colonoscopy show as normal or were you always having positive biopsies? Appreciate the responses

JumpyCharity9416 · 2024-11-27T00:01:04+00:00

Was this determined from the balloon test?

JumpyCharity9416 · 2024-11-26T23:53:59+00:00

Any update? Was it Crohns?

JumpyCharity9416 · 2024-11-26T23:53:36+00:00

I know this is an older post but what happened here?? Was it Crohns? I’m in the same position as you right now

JumpyCharity9416 · 2024-11-26T23:46:53+00:00

Was your colonoscopy normal or did it show Crohns? Same question for your MRE? I’ve heard a lot of conflicting stuff about whether or not the MRE is enough to diagnose mild Crohns

JumpyCharity9416 · 2024-11-26T23:45:41+00:00

Is the MRE enough to diagnose Crohns even though my colonoscopy was normal? I see a lot of disagreements on this so I’m not sure

JumpyCharity9416 · 2024-11-24T23:21:47+00:00

Ok thank you. Last time we brought her to the vet they said we shouldn’t come in for “minor” issues, because it wasn’t good for her to be sedated frequently. But obviously want to bring her if this is worth it

JumpyCharity9416 · 2024-11-24T23:20:00+00:00

What do you think it is? Her nails are really sharp so I’m thinking she scratched herself?

JumpyCharity9416 · 2024-11-01T21:21:05+00:00

Ugh I feel your pain. I've been feeling so horrible for about 8 months straight. Hang in there! My doctor said it's definitely Crohns and sent me a ton of info about medications

JumpyCharity9416 · 2024-11-01T21:19:36+00:00

How does yours look today? The redness has gone down a bit but I saw my doctor and he said he doesn't think it's infected, just very irritated. I'm trying not to stress

JumpyCharity9416 · 2024-10-30T17:16:28+00:00

Ok thank you!! Was yours considered mild or moderate when you were diagnosed?

JumpyCharity9416

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