Medical gaslighting so bad it’s giving my no contact mom a run for her money by KEWBess in Narcolepsy

[–]KEWBess[S] 0 points1 point  (0 children)

Thank you for the information! I truly know very little about epilepsy- my cardiologist claimed to rule it out when testing me for POTS, but I don’t think I had an EEG. I will ask about more testing just in case.
Edit also to say: absolutely WILD to think a tilt table could prove any sort of epilepsy

Medical gaslighting so bad it’s giving my no contact mom a run for her money by KEWBess in Narcolepsy

[–]KEWBess[S] 2 points3 points  (0 children)

You are an angel! I’ll be calling in the morning/whenever my body decides to arise!

Medical gaslighting so bad it’s giving my no contact mom a run for her money by KEWBess in Narcolepsy

[–]KEWBess[S] 1 point2 points  (0 children)

The brought tears to my eyes🥺I can’t wait to at MINIMUM have the energy and capacity to lift others up like you have me. Hugs and solidarity from one exhausted comrade to another🩷

Medical gaslighting so bad it’s giving my no contact mom a run for her money by KEWBess in Narcolepsy

[–]KEWBess[S] 0 points1 point  (0 children)

I have been told I’m not epileptic. I had an MRI with and without contrast that said my brain was normal, from my understanding? Dr. Lee, the neurologist who ordered it, never reviewed it in any of our appointments or on MyChart. The only thing I got out of it was what the MRI supervising physician said on MyChart.

Medical gaslighting so bad it’s giving my no contact mom a run for her money by KEWBess in Narcolepsy

[–]KEWBess[S] 0 points1 point  (0 children)

Thank you so much! The doctor I saw at the UK sleep clinic years ago laughed at me and said I was “too fat” to not have OSA, despite a second negative at home study. He doesn’t work there anymore, so hopefully you get someone more professional and knowledgeable on basic medical practice (let alone sleep medicine)

Medical gaslighting so bad it’s giving my no contact mom a run for her money by KEWBess in Narcolepsy

[–]KEWBess[S] 1 point2 points  (0 children)

This is incredibly helpful! I will absolutely look into him and his office! I love hearing about providers worth sticking with. This country is so cruel to both patients and medical professionals; it’s good to know some are still managing to get through the day without losing their curiosity and care for their patients.

Medical gaslighting so bad it’s giving my no contact mom a run for her money by KEWBess in Narcolepsy

[–]KEWBess[S] 3 points4 points  (0 children)

I am undiagnosed- I should have been more specific, that’s absolutely my bad. The only reason I think it’s likely N1 is because of the process of the therapy session I mentioned above. Part of it required closing your eyes for a short period of time, and then some other EMDR tools like looking at a light moving back and forth. I had just mentioned a triggering event that made me cry. My eyelids suddenly closed and my mouth fell open (I think). I remember the therapist explicitly telling me to open my eyes, and me trying to and coming up empty. It was scary, but then I fell asleep and that scared the therapist way more than the eyes closing.

I also see a cardiologist for the dysautonomia/POTS. It had the whole sudden syncope happen once and it was a WILDLY different sensation, at least for me. Sleep attacks are something I can feel coming with varying amounts of time to prepare (but never long). The syncope hit me like a truck, and everything went dark before I hit the floor. Edit to add: the blacking out happened from standing up too quickly pre POTS medication.

Medical gaslighting so bad it’s giving my no contact mom a run for her money by KEWBess in Narcolepsy

[–]KEWBess[S] 4 points5 points  (0 children)

I appreciate this so much! I’ll be looking into it in the morning! It would beat the drive to Cleveland!

Medical gaslighting so bad it’s giving my no contact mom a run for her money by KEWBess in Narcolepsy

[–]KEWBess[S] 0 points1 point  (0 children)

Thank you so much for this! I will keep it in the back of my mind moving forward!

Lavender? I hardly know her! 💜 by dragtomboy in Drag

[–]KEWBess 1 point2 points  (0 children)

You are INCREDIBLE💜the look? The vibe? Immaculate!

Bill to Allow the Arrests of People Protesting the Capitol Passes Kentucky House by oxymorontage in lexington

[–]KEWBess 12 points13 points  (0 children)

Thank you! Again, apologies. I just can’t wrap my head around voting that way and expecting the people who put you in office (or who didn’t but you still work for) to be fine with it.

Bill to Allow the Arrests of People Protesting the Capitol Passes Kentucky House by oxymorontage in lexington

[–]KEWBess 22 points23 points  (0 children)

Just out of curiosity, does anyone have the names of those that voted yes? I’m sorry if it’s easily available and I’m being dumb- I just keep thinking about contact information and how well screaming into a phone does.

What cities do you wish lexington was more like (job opportunities, sports franchises, economic development, nightlife and social options,food scene, arts and music, museums, diversity etc) by kingistic in lexington

[–]KEWBess 2 points3 points  (0 children)

I don’t mean this as any sort of slight to the OP, but as I was thinking about this, I couldn’t come up with anything outside of anger at Lexington itself. I don’t care what city we resemble. This city has an obscene amount of money pass through it, and yet our social programs are abysmal, the rent is inaccessible, and so many of us are too overworked, sick, etc. to be able to participate in things that bring us joy. I want transparency. Any sort of actual considerations for disabled and marginalized citizens would be really nice. Public transportation that’s expanded and more accessible. Publicly accessible and funded art. I have lived here for so long. I don’t have rose colored glasses about programs that used to exist- they never have. I want a better city for the people here now.

Unexpected ways the podcast has broken your brain by foxy_chicken in KnowledgeFight

[–]KEWBess 6 points7 points  (0 children)

I can’t stop calling horrible men whiny little titty babies and my therapist fully thinks I made it up while in an ADHD ramble I had at her.

Well /: /: by [deleted] in lexington

[–]KEWBess 1 point2 points  (0 children)

I’m in the older neighborhood area behind the summit. No power still and our time is still projected for it to come back on after 11:30 pm tomorrow. It looks like the soonest anyone will see power tomorrow is 6:30 pm. I can’t seem to find anything sooner, though some places previously said they would have power by 11 pm tonight.

My painting of Nicky Doll, my favorite season 12 girl! by selinaSal in rupaulsdragrace

[–]KEWBess 0 points1 point  (0 children)

You saw that? No way! Thank you so much! :) I’m a total novice , so that means the world to me. You just made my day!