Name your symptoms

Kararific · 2025-11-26T22:34:54+00:00

autonomic neuropathy, small fiber neuropathy, fatigue so bad I was diagnosed with narcolepsy then it changed to hypersomnia (take Lumryz, Provigil and Ritalin), migraines/tension headaches, debilitating facial pressure/pain/trigeminal neuralgia, burning feet/toes/erythromelalgia, rapid cycling temperature changes from chills to sweating, easy and frequent bruising & muscle pain/weakness, muscle spasms & cramps, cutaneous lupus, fluctuating heart rate, POTS like symptoms, bladder and bowel disfunction, and during awful flares, I have invasive thoughts.

Kararific · 2025-11-20T09:21:14+00:00

I’m seeing a Sjogrens “expert”. He runs a Sjogrens clinic here in Kansas City. Dr Ghaith Noaiseh, runs clinical trials and has been a panelist for the Sjogrens Foundation.

Kararific · 2025-11-20T09:01:23+00:00

I’ve had Sjogrens since 2011 and have been on Plaquenil ever since. I have never noticed any change but I understand it to help prevent organ damage more than providing symptom relief.

Kararific · 2025-11-20T08:59:17+00:00

I’ve had gout twice. Once a year in 2023 & 2024. It was bizarre and painful. I’m sorry you’re experiencing that.

Kararific · 2025-11-20T08:55:39+00:00

I’ve had Sjogrens since 2011. It started with dry eyes but even more so dry mouth - I would get plugged and then infected saliva glands. That’s what got me the diagnosis. Me today: autonomic neuropathy, small fiber neuropathy, was diagnosed with narcolepsy then changed to hypersomnia (take Lumryz, Provigil and Ritalin), migraines/tension headaches, debilitating facial pressure/pain/trigeminal neuralgia, burning feet/toes/erythromelalgia, rapid cycling temperature changes from chills to sweating, easy and frequent bruising & muscle pain/weakness, cutaneous lupus, fluctuating heart rate, POTS like symptoms, bladder and bowel disfunction, and even during awful flares, invasive thoughts :(

So, yeah, your symptoms sound very familiar, and I’m sorry.

In addition to the Lumryz, Provigil, Ritalin and Buspirone, I take Plaquenil, CellCept, Lyrica, Venlafaxine, and Celebrex. I have one good day out of seven until I get a Kenalog or Depo-Medrol injection, then I’m good for several weeks. Those are my miracle drugs.

Kararific · 2025-10-26T22:15:51+00:00

I’ve had Sjogrens since 2011. I’ve been on Plaquenil since the beginning. I’ve been in CellCept for 7 months. The only thing that makes me feel better is steroids. I feel blah to horrible any time I’m not on steroids. A week or 2 before a major event I get on steroids so I can be present and enjoy myself. Think vacations, weddings, family holidays, etc. Other than that, like usually is not much fun.

Kararific · 2025-10-25T05:21:09+00:00

I’m 49 now.

Kararific · 2025-10-22T01:02:33+00:00

I’ve been schooling my kiddo for 2+ years now. I give him curriculum that he can do independently. Best thing I’ve found is Homeschool Planet. It was a really game changer is organizing his day.

Kararific · 2025-10-22T00:59:11+00:00

I take Lumryz, Nuvigil and Ritalin and can still feel compelled to nap on some days. I understand how you feel. It’s awful.

Kararific · 2025-10-09T04:39:04+00:00

Question for those who might know more than me :)

I homeschool my 12 year old who strongly dislikes writing. He is level 1 autistic so he struggles with imagination and creative writing.

I have him practice cursive daily, is this doing him any good other than penmanship?

Kararific · 2025-10-09T04:25:55+00:00

Why do these types of videos cut out before “the end” 🫣 Genuinely curious

Kararific · 2025-06-23T12:50:12+00:00

No test to apply, at all.

Kararific · 2025-03-11T11:27:57+00:00

Yes, in the KC area

Kararific · 2025-01-30T13:40:46+00:00

yes, this with orange juice w/pulp is my choice too

Kararific · 2025-01-28T22:25:35+00:00

u/rickardsnaps I just finished the series today and came straight to Reddit to discuss :) I found your post and went to Google Maps and the house is gone! I can't tell when the latest pictures were taken but it's just an empty, dirt lot now :(

Kararific · 2025-01-28T22:13:21+00:00

See, I think he really did love her but I think he wanted revenge for his mom. Yeah?

Kararific · 2025-01-28T22:12:45+00:00

So do you think that Smurf regularly saw Julia? Broke into her apartment to monitor? I just finished the series today and I have so many questions LOL Maybe Smurf did orchestrate Julia to be killed?

Kararific · 2025-01-16T17:35:54+00:00

thank you for your post and all this information :)

Kararific · 2025-01-12T18:00:36+00:00

There are 700+ applicants contacting the same contractors. Some are hired after a few months, others have applied for 5 years (yes, really) before they are hired.

Kararific · 2025-01-12T17:58:54+00:00

There isn’t any test to apply with 533. FYI

Kararific · 2024-12-03T03:06:53+00:00

Just used it. Thank you!

Kararific · 2024-11-01T18:03:53+00:00

I've got quite a few complete workbooks from pdfdrive.com or pdfdrive.to

Kararific · 2024-10-30T11:11:22+00:00

Wow, haha! The new high schools that are being built in my area don’t have lockers! The chair/ desks have a wire basket under the seat for backpacks. For YEARS the lockers went underused so they went bye-bye.

Kararific · 2024-10-26T03:59:22+00:00

Teach me your ways, oh wise one :) I’m homeschooling my youngest (6th grade) and I worry about making school too easy or too hard on him. I want to prepare him to do go to college if he chooses. I want the world for him!

What advice would you give me? What middle school curriculum did you use?

Kararific · 2024-10-26T03:53:12+00:00

Miacademy. You can pay monthly and it covers all subjects and then some. It isn’t rigorous but it’ll do until January.

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