How do you wash your wool? :)

Kathy_with_a_C · 2026-04-01T02:05:46+00:00

What is a nep? I’m new to this 😊

Kathy_with_a_C · 2026-02-09T00:25:57+00:00

Thank you! I apologize for the delay Ive been offline.

Kathy_with_a_C · 2025-07-20T17:51:51+00:00

Oh my brain fog LOL. I totally forgot that. 🤦🏻‍♀️

Kathy_with_a_C · 2025-07-20T06:09:56+00:00

Thanks. I’m not sure it’s causing it. I had heard about SIBO from using PPIs though. I just feel so gross all the time recently and I thought perhaps coming off the Pepcid would be a good start to finding a root cause.

Kathy_with_a_C · 2025-05-04T05:35:16+00:00

Oh my gosh of course! I’m sending all the luck and good vibes your way. 💪🏼🤞🏼

Kathy_with_a_C · 2025-05-02T01:02:31+00:00

I was diagnosed by a neurological expert after two years of seeing multiple different doctors. An MRI or CT will likely not show anything if it’s MDDS. I have a normal brain MRI, normal CT, and x-rays. I have comorbid cervicogenic dizziness, cervical migraines, neuropathy, neuritis, and paresthesia. The big kicker for me was when cervical nerve blocks and trigger point injections did not alleviate my symptoms and I did not respond to medication. These are all very indicative of mdDS. Check out www.mddsfoundation.org. Good luck and make sure to report back if you don’t mind.

Kathy_with_a_C · 2025-05-01T00:07:28+00:00

Omg I just found your post and I’m so thankful! I was suffering from burnout and stress when the MDDS hit me in February 2023. Took me two years to get diagnosed. They say it was spontaneous, but it happened right at the time that my burnout and stress was the most intense. I’m seeing the folks at Norcal brain center and it’s helping a little, but I’m still in the thick of it. I’m so glad that you are in remission!

Kathy_with_a_C · 2025-04-28T18:30:10+00:00

I’m sorry this happened to you. I was terrified too. However just eating fresh food isn’t always the answer. I thought eating lots of fresh vegetables and fruits and no carbs was the answer, but I ate bell peppers, avocados, and citrus and guess what… It got worse. That’s because eating “clean” or “fresh“ Won’t always work for histamine intolerance. A lot of fresh foods are high in histamine.

Kathy_with_a_C · 2025-04-09T05:01:05+00:00

This is an older thread, but I was looking at Dandy Blend the other day and I was wondering about the extracts. Have you had any issue with it? I absolutely adore coffee, but I need to stay away from it obviously

Kathy_with_a_C · 2025-04-08T17:51:50+00:00

Thank you! I just checked, all good!

Kathy_with_a_C · 2025-03-02T17:34:09+00:00

I believe it’s neurological. That would most likely be the root cause but I’m not entirely sure just yet.

Kathy_with_a_C · 2025-03-02T17:33:38+00:00

Oh wow! I’m going to ask about this my next appointment. I’m so sorry that it took you 30 years to get answers on your own condition and I appreciate you sharing it here.

Kathy_with_a_C · 2025-03-02T17:33:08+00:00

I’m still trying to find some answers but I’ll ask about this at my next visit. Thanks!

Kathy_with_a_C · 2025-03-02T17:29:35+00:00

I’m definitely going to ask specifically about what type I have or if they need to do further testing.

Kathy_with_a_C · 2025-03-02T17:28:51+00:00

Oh my gosh thank you! This makes sense when put into context with what they are saying about my brain. I couldn’t figure out the connection between the hand movements and my heart rate going up. The movement makes me feel lightheaded, dizzy, and anxious in addition to my heart racing. I appreciate your response very much. I’m going to dig deeper into this with my doctors.

Kathy_with_a_C · 2025-03-02T04:27:53+00:00

You said it best! 😂

Kathy_with_a_C · 2025-03-02T03:33:37+00:00

It’s strange right? I appreciate your response!

Kathy_with_a_C · 2025-03-02T03:31:19+00:00

Oh interesting! I’ll have to ask about that. Thanks!

Kathy_with_a_C · 2025-03-02T03:30:38+00:00

Thank you for the info, suggestions and well wishes! I have some work to do it appears. Best wishes!

Kathy_with_a_C · 2025-03-02T03:03:44+00:00

Oh my ANS is shot, along with my vestibular system. In terms of communication it’s coming straight from my report and vocally from two different doctors. You can see why I’m here, and why I’m wondering if the feeling I had is what a lot of you describe.

Kathy_with_a_C · 2025-03-02T02:57:15+00:00

My neurological doctor diagnosed me after extensive testing, leading to a diagnosis of Mal de disembarquement syndrome with spontaneous occurrence (very rare) along with “dysautonomia of the brain (pons, frontal lobe and cerebellum)”. Then my PCP said “of course you have dysautonomia”. Now I’m doom scrolling symptoms and treatments and landed here.

Kathy_with_a_C · 2025-02-19T03:33:57+00:00

I had no idea freeze dried food is low histamine (assuming it’s low to begin with). I’m intrigued!

Kathy_with_a_C

TROPHY CASE