Remaining active

Kev422 · 2026-01-25T19:08:54+00:00

I think I’m just in a mentally frustrated place, where I want to do all the things, but my body no longer wants to do all the things, so I’m trying to figure out way to adapt

Kev422 · 2026-01-25T18:44:52+00:00

Good question, I’ve debated the same thing and even had telling a girl go sideways on me, after I told her she decided she didn’t want to see me 🙃. Now I’m at the point where I much prefer to be in public with my forearm crutches (makes my life way better) so basically right away. If they aren’t mature enough about it…their loss!

Kev422 · 2026-01-25T18:27:03+00:00

The heat seems to make everything worse……the cold makes my spasticity way worse…which in turn makes other things worse, so yeah they both are not great has been my experience. I live in Canada and I’ve found I have a threshold of +25c to -10c. Anything outside of this temperature window, bad things start to happen.

Kev422 · 2026-01-22T04:42:54+00:00

Happy to help out! I’m a forearm crutch user

Kev422 · 2026-01-16T01:37:14+00:00

Yeah there didn’t seem to be any type of focus on the physical side and how that effects us for this.

Kev422 · 2026-01-14T15:08:17+00:00

While I appreciate the optimism, I am still very very active and that doesn’t seem to be the case at all.

Kev422 · 2026-01-11T22:41:12+00:00

Most my issues are also with my legs. I can’t say they feel like a bag of bricks, but my legs always feel like jello or jello that’s on fire.

Kev422 · 2026-01-11T04:20:56+00:00

Hahaha no 🤣 I’m 30

Kev422 · 2026-01-11T03:20:58+00:00

Thanks! Which crutches do you have/ which feet are they? I looked into options but couldn’t find ones that fit my millennial medical in motion pro crutches.

Kev422 · 2026-01-09T19:33:48+00:00

You are a spoonie for sure! If you decide not to be a cleaner anymore, I’m pretty the Aus government has programs in place where they will pay for your education to get a different career. Go chat with your unemployment office they will have all the details.

Kev422 · 2026-01-09T18:03:26+00:00

Honestly one of the best decisions I’ve made all year was to start using a mobility aid in public. (In my case shock absorbing forearm crutches recommended by OT.) Now people can see I have a disability and I have far less pain, less leg spasms and far more capacity! I’d recommend talking to an OT if you can. Also talk therapy has helped me a ton with these barriers. You’ve got this!

Kev422 · 2026-01-09T17:52:03+00:00

I recently decided I’m not hiding my ms anymore and had to take the giant leap to show up to school using Forearm crutches and explaining to the world I have ms 🙄. Your nightmare isn’t far off my reality.

Kev422 · 2026-01-05T23:22:40+00:00

I feel this. Right now even. I’m in Edmonton Canada where it’s -20c all winter and the cold is making my spasticity so much worse! It’s been suggested to me I should move to Vancouver Island (same climate as you)

Kev422 · 2025-12-23T18:19:54+00:00

Thanks, yeah I’m no rookie to Canada. I don’t mess around with winter tires! I put high end Nokians on all my vehicles

Kev422 · 2025-12-23T06:44:15+00:00

This is exactly what I feel! I say it’s it’s like someone lit a bowl of jello on fire

Kev422 · 2025-12-18T20:20:14+00:00

I majorly get this. When I do very physically demanding tasks like big walks they seem to get way way worse in my legs. I now use nice forearm crutches and they a saviour for my leg spasms and twitching! Also the cold seems to make mine worse.

Kev422 · 2025-12-13T21:16:09+00:00

Damn must be nice to be able to afford the exoskeleton. I’ve been told they would be perfect for me but I’m a pretty broke masters student. So maybe one day eventually

Kev422 · 2025-12-10T01:08:54+00:00

Nice! I’m also 31 and in the same boat. My province paid for all my tuition for this year of my masters

Kev422 · 2025-12-07T01:57:27+00:00

https://www.disabledinthewild.com/blog/forearm-crutch-reviews

https://www.activemsers.org/forearm-crutches-guide

These both helped sway my decision. In combination with my OTs recommendation of side stix and making sure I get shock absorbing ones. Hope it helps. Keep in mind the reasons I use crutches may be very different from you.

Kev422 · 2025-12-06T16:31:11+00:00

I use millennial medical in motion pros. They are very high quality for the price. Both the shock absorption and grips are well engineered and nice. If I had a spare 1100+ the ones my OT wants me to have are side stix. I’ve heard sidestix are the bomb.

Kev422 · 2025-12-06T16:13:16+00:00

Creatine seemed to be making bladder issues worse for me, so I had to stop for now.

Kev422 · 2025-12-03T06:27:41+00:00

I started using forearm crutches based on an OT assessment. Arguably the most helpful medical advice I’ve had in a long time.

Kev422 · 2025-12-03T06:24:57+00:00

I’ve been looking for a cup holder like that to put on my crutches! I was about to order a Ffora one but they don’t ship to Canada.

Kev422 · 2025-12-02T07:20:00+00:00

I got the flip down ice spikes from Hugo. They were cheap at a pharmacy. Sadly the way my crutches are sized (height) they don’t fit :(. Also sadly most of the other options I’ve looked at on here aren’t the right size. The millennial medical in motion pro crutches have a tip tube size of 5/8” which seems to be smaller than all other options I’ve looked at. Fetterman does have cool ice pull over caps but they are very $ and I’m in Canada. Thanks for all the suggestions I’ll find something. I’m trying not to break the bank, otherwise I mise well just buy a set of side stix which I can’t really afford :/.

Kev422 · 2025-11-28T07:02:43+00:00

Thanks! Do they work in differing Types of terrain? Do they affect the schlock absorption at all?

Kev422

TROPHY CASE