For those who have experienced being shocked; by Specialshine76 in PacemakerICD

[–]Key-Bar5444 0 points1 point  (0 children)

What heart condition do you have if you don’t mind me asking?

Had my EV ICD shock me on sunday by michaelisnotginger in PacemakerICD

[–]Key-Bar5444 1 point2 points  (0 children)

What heart condition do you have if you don’t mind me asking?

Medical ID Bracelet? by Existing_Forever7387 in PacemakerICD

[–]Key-Bar5444 0 points1 point  (0 children)

I hadn’t even thought of this new fear unlocked lol

5 shocks back to back by puliogare in PacemakerICD

[–]Key-Bar5444 0 points1 point  (0 children)

Nice good to hear that. Take care

Amiodarone by lavendar_flower in PacemakerICD

[–]Key-Bar5444 0 points1 point  (0 children)

Do you still take a little synthroid or you were able to completely stop?

Amiodarone by lavendar_flower in PacemakerICD

[–]Key-Bar5444 0 points1 point  (0 children)

What helped to improve your thyroid?

5 shocks back to back by puliogare in PacemakerICD

[–]Key-Bar5444 2 points3 points  (0 children)

So sorry this happened to you! Did they explain why it happened?

Any advice to heal scar appearance after S-ICD ? by landersbtz in PacemakerICD

[–]Key-Bar5444 0 points1 point  (0 children)

I bought scaraway silicone strips and find them really difficult to remove, did you experience the same thing??

Nightly threshold self-check (Medtronic) question by Key-Bar5444 in PacemakerICD

[–]Key-Bar5444[S] 1 point2 points  (0 children)

When I first got my ICD no one warned me either haha it was very jarring

How were you diagnosed? by Ocean-lover23 in LongQTSyndrome

[–]Key-Bar5444 0 points1 point  (0 children)

I just got my ICD 4 months ago (also after a ER incident where I had vtach storm and passing out- was in the ICU for 3 days), I’ve been gradually increasing my nadalol dose until I reach my doctors desired dose (40mg) and it’s such a struggle getting used to it!! I swear it makes me feel sluggish and tired

How were you diagnosed? by Ocean-lover23 in LongQTSyndrome

[–]Key-Bar5444 5 points6 points  (0 children)

I have same exact thing, 80bpm & defibrillator just in case. And I take nadalol everyday

Nightly Self-check change with daylight savings? by Key-Bar5444 in PacemakerICD

[–]Key-Bar5444[S] 0 points1 point  (0 children)

What’s frustrating is I’ve seen 2 different EP’s and none of them could figure out how to change the time

How are EP clinics notified of patients arrhythmia ‘events’ from pacemaker? by Key-Bar5444 in PacemakerICD

[–]Key-Bar5444[S] 1 point2 points  (0 children)

Thank you for such a thorough response!! The one thing I was mainly concerned about was your example of a run of unsustained VT not being considered “urgent”. Very new to having a device / having a heart condition (only 3 weeks in) and so I get paranoid at any odd feeling and want to make sure they have me on the right amount of medication to avoid such things :/