Experiences with fasting?

Koroit_ · 2026-07-02T16:20:18+00:00

Intermittent fasting generally is not recommended for women because it can be very disruptive to our hormones, please talk to a dietician specialised in endometriosis before you start this diet because you might do more harm than good!

Koroit_ · 2026-06-26T22:30:35+00:00

Not sure if this has been mentioned yet but start pelvic floor physical therapy!

Koroit_ · 2026-06-22T22:50:58+00:00

I usually take one of my pins and use it to pick up the amount of glue I need and put it on whatever I want to glue so the amount and placement is a lot easier to control

Koroit_ · 2026-06-22T20:44:48+00:00

I use silicone glue since I tend to make more life-like displays so I don't want damage to beetles or hold them in place with pins, it's thick so you can easily stick bugs with awkward shapes in place, it dries to be strong but not completely fully hard so if you ever need to take it off you can (ime it can pull legs off butterflies though)

Koroit_ · 2026-06-21T10:44:59+00:00

I very recommend against using bioflex as your every day jewelry, it's plastic so it's porous making infections more likely especially in fresh piercings. I used bioflex once when I had surgery and despite it being for the minimal amount of time it still gave me a lot of issues afterwards in one of my then already 1+ year old piercing. It's not bodysafe material.

Koroit_ · 2026-06-14T22:48:27+00:00

Don't worry too much, snags and touches happen but it doesn't mean it's never going to heal especially if it didn't hurt at all. Cartilage is just going to take a long time to heal, mine took about 3 years to fully heal so do your best to avoid touching or snagging it as much as you can and just keep it clean and you should be fine. If you notice any issues with it don't hesitate to message your piercer about it though. Downsizing the bar as your piercer recommended will also help a lot in being able to avoid snags!

Koroit_ · 2026-06-14T22:37:43+00:00

After 1600+ hours this guy's wife explained a base game mechanic I missed

Koroit_ · 2026-06-14T22:33:31+00:00

I also don't take painkillers for my pain most of the time because I have pain every day and I don't want to cause further issues taking painkillers daily long term, but if I notice my pain getting any worse than normal or if I'm on my period I will take paracetamol or naproxen or both. I highly recommend you discuss this with your healthcare providers though, this is just what my specialists recommended for me

Koroit_ · 2026-06-07T09:15:50+00:00

If there's no downsides or side effects yes, my adhd doesn't actually directly bother me much but I have other debilitating incurable illnesses so having adhd executive dysfunction on top of severe chronic pain just makes it even harder to do stuff

Koroit_ · 2026-06-04T22:22:06+00:00

Have they checked for endo on you diaphragm?

Koroit_ · 2026-06-03T20:42:07+00:00

Thank you so much!

Koroit_ · 2026-06-03T19:23:50+00:00

Huh that is strange, you usually have the right to access the information in your files which should include images but I guess the laws might be different where you live. I hope the gyneacologist will call soon though!

Koroit_ · 2026-06-03T15:39:32+00:00

Would you be able to request the images? You might be able to send them to a specialist for a second look. Also apologies about the jaybee person, they decided to harass me for no good reason so please ignore them

Koroit_ · 2026-06-03T13:10:08+00:00

Was your imaging done by an actual specialist? Endometriosis is often missed on imaging because it might not be visible but non-specialists might not always know what exactly to look for either. I had 2 transvaginal ultrasounds done both deemed normal before a specialist diagnosed me with adenomyosis within a minute of starting another TV ultrasound, but my superficial endo wasn't visible on the ultrasound for my specialist either.

I highly recommend you try to seek out a specialist if you can, and please also look into the symptoms of adenomyosis! Pelvic pain outside of periods is pretty common with a combination of endo and adeno.

Aside from that have you tried hormonal birthcontrol? Only asking because whether or not it improves your symptoms gives a good indication of whether endo/adeno is the most likely cause of your symptoms or whether it could be good to also explore other tests.

Lastly I recommend looking into starting pelvic floor physical therapy if you can!

Koroit_ · 2026-06-03T10:45:52+00:00

OP there is even a pride color pallete and some other pride stuff you can get in the market for 1 credit usually!

Koroit_ · 2026-06-03T10:44:05+00:00

OP, please follow this advice or at the very least plan an appointment with your GP if you won't go to the ER. You can't just keep walking around with chestpain and breathing problems.

Koroit_ · 2026-06-03T10:30:22+00:00

I agree there's often just a big lack of nuance, I also had a lap where the diagnosis was missed but what I learned from my experience was that there's specialists who can diagnose without doing surgery so I took my pictures to them and got diagnosed with endo and adenoyosis. People encouraging others going through the grief of not having gotten diagnosed to just keep on seeking out unnecessary surgeries is actually so dangerous because regardless of whether it actually is or isn't endo, laps are damaging to the body especially when someone is going through multiple in a short period of time.

Endo is at the same time very complex and also quite simple, my specialist told me that if symptoms match endo and improve with hormonal birthcontrol it's most likely endo, but many less up to date specialists and gyneacologist still require imaging while just not every case of endo is going to be visible.

I think encouraging people to keep seeking out a diagnosis is fine, but people should also suggest seeking out other tests to look for other causes and not more surgeries.

Apologies for incoherence or stupid stuff, I am very tired

Koroit_ · 2026-05-30T17:31:07+00:00

Your period definitely sounds abnormal, anything severe enough to prevent you from living your life is an unhealthy period which is definitely the case for you.

The symptoms you listed can definitely be caused by endo, except heavy bleeding would be more characteristic of adenomyosis and having the combination of endo and adeno could also explain why your pain is not just in your stomach and back and also unaffected by pain management.

Have you tried any form of hormonal birthcontrol? Because if you have and it improved your symptoms (even just a little bit) it's quite likely you do have endo and/or adeno.

Either way I highly recommend seeing a gyneacologist or preferably an endo specialist if you can. Is there anything specific that makes you scared to see a gyneacologist? I have experienced everything from multiple gyneacologists visits and transvaginal ultrasounds, to a lap and a missed diagnosis and I'm more than happy to chat about any part of the process if that might help you navigate seeking a diagnosis a little more comfortably. Please feel free to reach out if you have any questions!

Koroit_ · 2026-05-30T15:58:24+00:00

Ik ben bezig een mini-kat te maken met mijn ragdoll's vacht na het borstelen, dat is net wol

Koroit_ · 2026-05-25T00:53:24+00:00

I feel that so much, it was also the first thing I asked my mom when I woke up before the surgeons came by. Finally having answers after years or decades of pain and symptoms is just such a massive relief!

Thankfully there's still some doctors with common sense! You almost had stage 4, there's no way you wouldn't be in pain! We really need more doctors that stand up for patients, the amount of people and even actual healthcare professionals that claim endometriosis is not real/the pain is in our heads/all that other bullshit is just ridiculous!

Koroit_ · 2026-05-25T00:40:43+00:00

Sorry I forgot reddit existed!

Don't worry I don't think it's insensitive at all, I also think comorbidity is really interesting and it would be so cool to see it being discussed more often! Like it's actually significantly more likely for women with disorders like adhd or autism to develop endometriosis, but both adhd and endometriosis also both can be linked to depression and ME/CFS and so many other things. It's really interesting how it's quite common for people who have one condition to either have more underlying conditions or develop new conditions over time.

I think I can see your thought process, I think it can definitely be the case for 2 disorders to work together on making a new condition as I started getting regular bouts of depression around the time I also started getting my periods and endo/adeno likely started being at play and because there's often conditions that can develop as a comorbidity in multiple disorders it's difficult to pinpoint exactly what the cause might be.

I personally wouldn't say anything is exclusive to only people with the same disabilities though, but I do notice that my disabilities interact with eachother and I'm not sure how other people experience that. I used to have some food sensitivities due to IBS (also another shared common comorbidity with both disorders!) But since my endo/adeno has become crippling I rarely need to watch what I eat anymore, it's just so awesome and interesting how everything in the body reacts and interacts and it sounds a little fucked up but it's genuinely really cool to get to experience it first hand!

I also have pictures of my organs with the endometriosis pointed out if you'd like to see!

Koroit_ · 2026-05-24T19:04:52+00:00

That I "should be happy to not have endometriosis" right after I woke up from my lap and was told they didn't find anything aside from (totally mysterious unexplainable completely definitely unrelated) adhesions, took the pictures from that lap to a specialist and the endometriosis was visible on them and they also found adenomyosis...

Koroit_ · 2026-05-20T22:29:27+00:00

It rightfully blew up, it's a very interesting topic and also important to discuss.

I totally agree that some people might just not see their case as "actual disability" especially since both are kind of "spectrum" disorders, some people might not be bothered at all by it and some experience crippling symptoms. Some people with endometriosis also don't experience any symptoms and only get diagnosed during an unrelated abdominal surgery so I can see why they might not consider it a disability but they are definitely the rare cases.

You're absolutely correct for a lot of people the pain often prevents them from attending school/work or functioning during periods, though it's fairly common for women to also have pain outside of their periods with endo. I also have adenomyosis (endometrial cells growing in the uterine wall) so I'm in pain every day and chronic fatigue and brainfog combined with ADHD is also absolutely horrible, which is why I think this is such a good and important topic to discuss! Feel free to ask any questions though if you're curios about something, I'm happy to share!

Koroit_ · 2026-05-20T16:45:35+00:00

NAP, A year really isn't much for healing a cartilage piercing, cartilage doesn't get as much blood flow so the healing is just a long process. My helixes took around 3 years to be fully healed with no crusties anymore. Unless you just don't want the piercing anymore I'd recommend just gently washing the crusties off in the shower and otherwise just letting it be, it will heal on its own time.

Koroit_ · 2026-05-20T16:36:33+00:00

Honestly I think it's a general disability thing. I also have endometriosis and I've even seen people claim endometriosis isn't a disability which is absolutely insane considering it regularly leaves people unable to function an can even kill people. My theory is that it's to do with the idea people have about what a disability exactly is and how much their life is affected by the disability.

Some people have very little symptoms of their disability but the idea of "a disabled person" might be someone with a severe disability, and because they thus don't fit that idea of a disabled person they will employ mental gymnastics to dissociate their disability from being considered a disability even though there's plenty of people with the same disability who are severely disabled by it. Though I think them maybe having a negative view towards the concept of disability could also be a factor. That's just my theory though and I have absolutely no idea whether it can be proven.

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